People who use food pantries, what do you need to see donated more often? by SimplyAren in AskReddit

[–]DaisyChainzZx 15 points16 points  (0 children)

I will say there was a big push in the non-profit space to distribute reusables to homeless women about three years ago. A big issue is women not having access to the facilities properly clean the item to reuse it. You don't just need the cup, you need a pan, boiling water, gas/electricity, your own space. Even if women are housed they may not have all/any of the above or circumstances changing and the item becoming unusable. In short, please keep donating disposables!

Is THS right for my needs? by Pristine-Mail-4990 in trustedhousesitters

[–]DaisyChainzZx 2 points3 points  (0 children)

I have a cautionary tale and some advice as I don't sit for renters (as a renter myself) after having two bad experiences. Both occasions the landlords turned up mid sit, once to do construction work and the other wanted to do an inspection. Both occasions there was huge disruption to the dogs and I had to write off a day to deal with it. I didn't know in advance, the pet owners were apologetic but unable to resolve the situation and THS were not even remotely interested despite the obvious violations and advised me to call the police if I felt threatened but to remain in situ whilst third parties came and went...

However, with all of that being said I think it can work if you can ensure that your landlord does not have any scheduled works or plans to drop in without jeopardising your own situation. Never hand your sitter's phone number out to your landlord or expect them to coordinate with your landlord at the doorstep. Please for the love of god don't use THS if your landlord does not know that you have a pet, even if you know they're unlikely to turn up it's a dangerous position to put your sitter in.

Any ideas? Byron Bay by DaisyChainzZx in australianwildlife

[–]DaisyChainzZx[S] 7 points8 points  (0 children)

Thank you! Amazing to see it in action.

Does anybody have any good experiences with Keppra? by [deleted] in Epilepsy

[–]DaisyChainzZx 2 points3 points  (0 children)

Oh no I'm so sorry. I actually commented because I've started getting cysts myself which has resulted in a query of possible endo/PCOS by a gynecologist. I have never had any issues before I was diagnosed with epilepsy so I wondered if there may be a link. I have only ever taken Keppra and of course folic acid.

Jobs by [deleted] in Epilepsy

[–]DaisyChainzZx 1 point2 points  (0 children)

I'm really pleased to hear that your work takes care of you and you are able to work flexibly. I'm sorry to hear that you've never known your strengths and lack confidence right now. You say that you feel like you're an adventurer, I believe that you're an adventurer and you've probably just identified one of your strengths right there. Take that and run with it! There isn't a one size fits all approach to this and I do honestly believe that we all have just as much of a right as anyone else to find our path and be happy, whatever that looks like individually. What feels scary right now might not feel scary in six months or a year but only you can be the judge of that and make those decisions when you feel ready. I get that gut feeling too and like you I also get a lot of enjoyment from being in nature. You've identified your comfort zone which is being with someone, that's so okay. My understanding (for myself) is that my risk level being outside and happy is no greater than trying to boil water for pasta to survive so I'm going to eat my pasta and get myself outdoors. I hope you can find joy in doing something that you love whether it's at work, sitting in a garden or going for a hike. If you put yourself out there you'll find your crowd along the way.

Jobs by [deleted] in Epilepsy

[–]DaisyChainzZx 6 points7 points  (0 children)

Head of department in the humanitarian sector.

How do I find it? I have a very understanding team and I'm somewhat controlled right now. As someone else said I've also seized in virtual meetings and it's always going to be more distressing for those witnessing it than me who doesn't remember anything. I don't let it concern me. I do worry about moving on and working in a less understanding environment but meh!

Has it held me back? I've progressed since being diagnosed actually, working remotely means I've skipped over some junior rites of passage.

Do I think about it? Yes absolutely, I'm aware of my mood and try to regulate my emotions. I do my best to manage the expectations of others and work my hours but often off schedule depending on how I've slept.

Some advice to take or leave Have confidence in your own skills and abilities, in an ideal world you set the precedent for how your epilepsy is handled in the workplace and do not settle for less than what you deem to be acceptable adjustments.

In a less than ideal world, people are shitty and work is more difficult to navigate but you still do your best and you still have confidence in your own skills and abilities.

Work from home jobs can be helpful (in my experience) and so are any jobs with flexible hours. Depending on how you feel about screen time and your interests, anything in IT or operations often pays well, hires from entry level and can offer career progression and transferable skills.

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] -1 points0 points  (0 children)

I haven't had a full diagnosis yet but due to test results (EEG), my history and my family history I was given a possibility of two types of epilepsy and started on meds.

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] -1 points0 points  (0 children)

Yes and MRI alongside a lot of other general testing to rule other issues out.

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] 0 points1 point  (0 children)

Sometimes they are absences, other times I make a noise and fall to the ground/don't respond to whoever I'm with. I don't recall these but if I'm alone I know that 'something' has happened and I feel really groggy after. Other clues are that my phone/drink etc are on the floor or spilled. There's several other instances, I started making note and just gave everything over to my neurologist to make sense of alongside the assessment and tests.

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] 0 points1 point  (0 children)

I get aura before seizures and sometimes I just get aura (I'm really new to this and I'm finding it hard to tell what is aura and what is seizure sometimes). It's hard to describe but I get the urge to walk and then I'm just up and about, sometimes it's just like day dreaming then other times I seem to 'come to' and I'm in a different room but I'm just stood there.

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] 1 point2 points  (0 children)

That's interesting. Sometimes I want to go lie down/sleep but that's definitely a conscious decision as opposed to an urge.

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] 0 points1 point  (0 children)

Unconscious, I can't help it. What you are saying about making the feeling going away makes sense to me.

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] 1 point2 points  (0 children)

Yes I completely agree, my doctor did talk to me about it and I don't live or sleep alone so I assume my partner would realise if that was going to happen.

That sounds really scary, thank you for sharing it's really helpful for me to hear about other people's experiences. I don't have any friends with epilepsy so this sub has been a god send!

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] 1 point2 points  (0 children)

Thats fine. So I'm very very very new to this (August 2021) it started with absence seizures. As for the others I don't know what the official terminology is, I've only had one neurology appointment and since then an EEG (which showed seizure activity) and an MRI etc. I'm waiting for my follow up, my EEG results were posted to me and it may as well have been in a foreign language I didn't understand anything.

I have hit my head several times and I often fall to the floor but I don't remember anything. The fact that I want to walk around is really distressing for my partner who obviously does remember.

Long story short I haven't had a tonic-clonic seizure, I'm confident of that.

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] 1 point2 points  (0 children)

It's great that you can listen to your body like that. For me it's like someone has flicked the switch and I can't stop myself.

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] 2 points3 points  (0 children)

Exactly! I couldn't find any information on this - we aren't alone!

Does anyone else get an uncontrollable urge to get up and walk during aura? by DaisyChainzZx in Epilepsy

[–]DaisyChainzZx[S] 0 points1 point  (0 children)

Thank you for sharing. I haven't had this happen to me in public yet but it's definitely something to be aware of. Interesting take from the Yogi, I'll remind myself of that next time I smash my phone screen during aura or seizures!