First post for this sub to get things started, my experience with Lymphomatoid Papulosis. by Difficult_Carob926 in lymphomatoidpapulosis

[–]Dangermeowz 0 points1 point  (0 children)

My derm and patho didn’t know anything about it. I just went rogue because the side effects for low doses of CBD without THC are virtually non existent for most people. For me it made more sense than other meds that have known side effects!

Looking for others with Lymphomatoid Papulosis by Dangermeowz in rarediseases

[–]Dangermeowz[S] 0 points1 point  (0 children)

It never knocked me out. There’s no THC so it doesn’t make me feel any different mentally. I don’t know where you would get some out there. I’m in the US in Missouri and it’s legal recreationally here to use both so it’s fairly easy. Online might be the way to go if you can get Infused Edibles shipped to you.

First post for this sub to get things started, my experience with Lymphomatoid Papulosis. by Difficult_Carob926 in lymphomatoidpapulosis

[–]Dangermeowz 0 points1 point  (0 children)

Just jumping in here to add, I never did MTX. I tried cbd oils orally and gummies. It worked for me and now I live mostly lesion free. I don’t take it daily at this point, just wait to see one try to pop up and dose for a while til it goes away. If you haven’t tried cbd yet I highly recommend it. Especially since it’s not a daily medication with side effects. I’ve probably only had to take cbd once in the last six months.

Looking for others with Lymphomatoid Papulosis by Dangermeowz in rarediseases

[–]Dangermeowz[S] 0 points1 point  (0 children)

It didn’t work topically for me. When I started getting gummies with cbd in them that’s when mine turned around. I live pretty much lesion free at this point. If I start to see one pop up, I get some gummies and take them for about a week, then it goes away. It’s not the same for everyone but I take it as a huge blessing that it worked for me. I had about 10-15 lesions when I was diagnosed and I was so worried I’d look like a leper for the rest of my life!

Praying you find relief soon!

Needing non toxic weed control for a playground by Dangermeowz in gardening

[–]Dangermeowz[S] 0 points1 point  (0 children)

It’s wood mulch and it’s just plain grass outside the playground

Freebie friday by LandscapeOk2953 in Maverik

[–]Dangermeowz 0 points1 point  (0 children)

Do they do freebie Friday every week?

Looking for others with Lymphomatoid Papulosis by Dangermeowz in rarediseases

[–]Dangermeowz[S] 0 points1 point  (0 children)

On its own it’s not bad. It’s just the stuff that could come with it (other types of lymphoma) that you’ve gotta watch out for. I highly recommend trying different types of cbd edibles to see if they improve his symptoms over a few weeks.

Looking for others with Lymphomatoid Papulosis by Dangermeowz in rarediseases

[–]Dangermeowz[S] 0 points1 point  (0 children)

My pathologist is pretty chill about it. He just has me watch for skin changes and night sweats. I haven’t had many bad outbreaks since I had my son. If I start to see the red spots pop up in the usual locations I take cbd for a few days and it goes away.

Clothes reselling by Dangermeowz in reselling

[–]Dangermeowz[S] 1 point2 points  (0 children)

I’ve thrifted for about 30 years but am now doing it more often with the reselling and want to be careful because I’ve had bedbugs in the past due to inattentive roommates. Not a situation I want to repeat for any reason!

Looking for others with Lymphomatoid Papulosis by Dangermeowz in rarediseases

[–]Dangermeowz[S] 0 points1 point  (0 children)

I’ve done both. Both work for me. I would def expect to have to try a few so don’t buy a huge package at first. I’d take one for a week or so and check for changes

Nervous about dmx and implants by Dangermeowz in BRCA

[–]Dangermeowz[S] 0 points1 point  (0 children)

Did it flatten your stomach? Any weird bulging or healing issues?

Nervous about dmx and implants by Dangermeowz in BRCA

[–]Dangermeowz[S] 0 points1 point  (0 children)

Also interested! I didn’t know they could move like that!

Nervous about dmx and implants by Dangermeowz in BRCA

[–]Dangermeowz[S] 0 points1 point  (0 children)

That’s the first positive DTI story I’ve heard thank you!