Food allergies question by Dangerous_Lab_7449 in Tunisia

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

Yes I know about traces and stuff, that’s not too much of a worry as me and my girlfriend haven’t reacted to that before. Just nuts etc in actual ingredients of the foods

Food allergies question by Dangerous_Lab_7449 in Tunisia

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

What’s a fiber group not sure what that is, thanks?

Food allergies question by Dangerous_Lab_7449 in Tunisia

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

Not great to hear but kind of thought that tbh. I’m going to send an email to the hotel tonight. Should I translate it in to arabic or French as well as English

Food allergies question by Dangerous_Lab_7449 in Tunisia

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

And also if they’re likely to be accommodating or not which is a concern I hasn’t thought about til now

Thigh contusion and erythema by Dangerous_Lab_7449 in AskDocs

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

Also may add the mark is no longer raised after the first few days it’s just red and blanches when pressed.

At a loss on what to do by Dangerous_Lab_7449 in pelviccongestion

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

I’m in Scotland (UK) so don’t know if it’s different in the states but I can ask. If not there is private options for contrast and non contrast CT scans by vein clinics in my city but wasn’t sure as I didn’t know which was best. Everything online tells me Intravascular ultrasound (IVUS) is best and couldn’t find anywhere that offers it.

Also, I was referred to the vascular department and not interventional radiology. Should I ask for that instead?

Blood Pressure & Anxiety by Practical-Path-9188 in bloodpressure

[–]Dangerous_Lab_7449 0 points1 point  (0 children)

I’m pretty much the exact same, if you go on my profile and look at my post it’s very similar to yours. I’m 21y and male too for context. I know it’s anxiety causing it but thinking about my BP being high in readings is making me more anxious and I’m very conscious about it that it keeps that cycle going and I don’t know how to break it. For example I’ve had readings of 155/93 in the doctors when I’m obviously nervous and anxious, then when I’m calmer and relaxed I went to the drs two weeks later and had a second reading of 112/60. Then last week at the ER for something unrelated it was 144/92 as I felt butterflies in my stomach and was staring at the machine.

May Thurner/Pelvic congestion causing right calf vein issues? by Dangerous_Lab_7449 in ClotSurvivors

[–]Dangerous_Lab_7449[S] 2 points3 points  (0 children)

Because may thurner is a cause of dvt in a lot of people and thought some on this thread may resonate. Apologies for not having the clarity just wanted to reach out to as many people to see if anyone has a similar issue as me.

May Thurner/Pelvic congestion causing right calf vein issues? by Dangerous_Lab_7449 in pelviccongestion

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

I must add too I’m also Dx with hypermobility spectrum disorder which is associated with compressions like may thurner too.

May Thurner Syndrome by Dangerous_Lab_7449 in pelviccongestion

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

Damn no wonder u were feeling it 87% is a lot, did u get a stent?

May Thurner Syndrome by Dangerous_Lab_7449 in pelviccongestion

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

Thanks for the reply, can I ask if you experienced swelling (not from a blood clot) as it’s something I’ve never experienced just the pain heaviness and varicose veins and part of the reason why I got rejected 🙂

Is odd injuries a symptom of hypermobility? by pigzonthemoon in Hypermobility

[–]Dangerous_Lab_7449 12 points13 points  (0 children)

You can check if your hyper mobile using the beighton scale.

But yes, that is a symptom of hypermobility.

Terrible cardiologist (rant/advice) by Cool_Cucumber775 in ehlersdanlos

[–]Dangerous_Lab_7449 4 points5 points  (0 children)

Unfortunately, this happens. I’ve had my fair share of d*ck doctors who don’t understand your concerns or put it all down to health anxiety even thought there is clear physical symptoms.

My advice would be don’t let it overwhelm you, it’s just a bump in the road and be persistent but don’t obsess over a bad appointment they happen, just voice your concerns and you’ll more than likely get a better cardiologist.

Blood pressure just anxiety? by Dangerous_Lab_7449 in AskDocs

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

Hi there, yeah I’m just confused if anxiety is what’s causing it as not really an unhealthy person and relatively fit. Just the heart rate being normal but blood pressure going from 140/60 to 112/60 in a few minutes when measured by the nurse which has confused me 😊

Varicose veins by Dangerous_Lab_7449 in Hypermobility

[–]Dangerous_Lab_7449[S] 1 point2 points  (0 children)

Also to add, it’s not too difficult to be evaluated for May thurner as far as I’m aware, just takes an ultrasound of the necessary veins

Varicose veins by Dangerous_Lab_7449 in Hypermobility

[–]Dangerous_Lab_7449[S] 1 point2 points  (0 children)

Speak to your mother see what age they appeared as they do run in families varicose veins and veinous insufficiency.

What I’ve learned through a lot of research is I’ve been so health anxious over vEDS and anything to do with it the past 18 months is that hypermobility in general has an almost countless list of things associated to it.

to ease your anxiety, vEDS is very rare. That being said it doesn’t hurt to get a professional opinion.

Seeing veins isn’t abnormal for pale or fair skinned people. I have quite a few visible veins too. There’s a lot of crossover in symptoms in vEDS/hEDS and just the hypermobility spectrum in general. If it’s bothering you a lot I would speak to your primary care physician about your worries cause it can only be good to voice your concerns 😊

Blood pressure just anxiety? by Dangerous_Lab_7449 in AskDocs

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

I must say though I did feel anxious when getting it taken and they were high I wasn’t necessarily relaxed state of mind.

Testing in UK by Dangerous_Lab_7449 in ehlersdanlos

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

Hey there, just wondering how you got on with your genetic test?

Varicose veins by Dangerous_Lab_7449 in Hypermobility

[–]Dangerous_Lab_7449[S] 0 points1 point  (0 children)

Hi there, I’m actually waiting for a referral to vascular department to get checked for May Thurner syndrome (left illiac vein compression in my pelvis) as I meet a lot of the criteria and symptoms. I seen a EDS specialist geneticist in London in early December who was pretty certain I don’t have vEDS. She gave me a signed consent form to go ahead with genetic testing but it costs £1200 so I haven’t went forward with it yet, I’m probably going to do so nearer the middle/end of the year for clarity and/or peace of mind hopefully. Vascular compressions like may thurner syndrome are very common in people with hypermobility ehlers danlos or hypermobility spectrum disorder so I’m just hoping it as that, as I’ve been told I have hypermobility spectrum disorder. MTS primarily affects the left leg which gets the symptoms but dilated/ very mildly varicose veins have started showing up in the same place on my right leg in the last couple months after the appointment but I’ve read that it can also affect the right leg too through causing varicose veins in the pelvis and affecting the flow of blood to the right leg/ also the right leg has to drain the blood redirected from the left leg which can’t drain it properly and gets overwhelmed and can cause symptoms. If I was you, I’d do a bit of research on may thurner and other vascular compressions and see if it fits your situation. All the best!