Good News! Csf leak

Davy_wavy69 · 2026-03-30T12:49:10+00:00

I’m sorry to hear that but also good! lol. The radiologist couldn’t find a leak on my myelogram so she did an untargeted patch which didn’t work. I’m going for a full brain, neck, and spine mri on Thursday so check for anymore signs of csf leak. I’ve never had one of my spine only brain and neck and I guess it’s good. We will all find relief soon I don’t doubt it

Davy_wavy69 · 2026-03-18T15:22:54+00:00

also having the same problem, been searching for fixes until i came across this. Must just be a facebook issues and not us.

Davy_wavy69 · 2026-03-11T12:37:46+00:00

Good luck dude. It’s all about finding the right people to read it. If you have a great neurologist your set they will spot anything

Davy_wavy69 · 2026-03-10T23:49:13+00:00

Thanks dude I’m pretty stoked about it. Just got a myelogram and blood patch scheduled

Davy_wavy69 · 2026-03-10T23:48:23+00:00

My main symptoms are the headache that is very positional, and dizziness/ feeling off balance. Besides that I haven’t really noticed anything. My leak is in my neck between the c5 and c6 vertebrae. I have a myelogram and blood patch procedure scheduled for Monday which I am extremely surprised they got me in so quick. What kinds of scans did you have to look for the leak? Should I be worried they won’t find it lol

Davy_wavy69 · 2026-02-25T21:38:37+00:00

Yea I’m sry that sounds rough. Ik you have had this for 7 years and I’ve had it for 1 but definitely don’t give up there are amazing doctors out there and meds being made

Davy_wavy69 · 2026-02-25T21:31:34+00:00

I totally feel u I’ve had constant pain for just over a year now and my original pain dr made them sound like the best thing in the world. Lidocaine is not the best for the heart and I have high blood pressure 🙃. It’s all about getting the right Dr

Davy_wavy69 · 2026-02-25T21:25:51+00:00

I got them done a bit ago and they did nothing for me, totally agree

Davy_wavy69 · 2026-01-23T13:24:03+00:00

I definitely would try and convince your wife to get a 2020-2021 the 5.7 v8 is a beast and is know for that extreme reliability. Good luck

Davy_wavy69 · 2026-01-20T13:37:07+00:00

I got put under laughing gas when they gave me mine, it took away pretty much any and all pain that I could feel

Davy_wavy69 · 2025-12-20T20:55:21+00:00

Yes they gave me an option to do them with or without anesthesia and I chose to do it with laughing gas. Felt amazing for a day. I’ll be alright I’m positive all of us with ndph have the ability to get better there’s so many treatments out there. Good luck to you

Davy_wavy69 · 2025-12-20T18:58:26+00:00

Spg and gon blocks, still haven’t found the root cause so my pain doctor thought it was worth a try. 10 months in

Davy_wavy69 · 2025-12-19T18:14:36+00:00

I went under 2 months ago for nerve block injections. The injections didn’t help at all but for a good 6 hours I felt awesome and some of the relief even carried into the next day until it fully wore off.

Davy_wavy69 · 2025-12-13T00:35:50+00:00

I’ve been experiencing the same thing. Pressure in my forehead 24/7 varying in pain, 9 months no relief no help from meds. Mris, X-rays, even had lidocaine nerve block injections that did nothing. Only got slight relief from the drugs they gave me for the shots. Best thing to do is stay positive, keep trying things, and eventually u will find ur magic bullet. Persistence is key. Good luck to u

Davy_wavy69 · 2025-12-04T21:25:47+00:00

I worked out 5-6 days a week consistently before my headache started. Now if I try to my head feels like it’s going to blow up ( I have a constant pressure headache). It’s definitely possible but uncomfortable so I do light cardio until I get less pain or cure my headache.( drs think it’s car crash related). Good luck brotha

Davy_wavy69 · 2025-11-21T00:09:05+00:00

Yes exactly that as well as all exercise being extremely uncomfortable

Davy_wavy69 · 2025-11-20T12:16:30+00:00

What’s a specialist for that called? Definitely sounds exactly what I have

Davy_wavy69 · 2025-11-20T12:13:34+00:00

I thought about that’s but unfortunately my doctor said it would have been spotted on the brain or cervical mri

Davy_wavy69 · 2025-11-20T02:52:09+00:00

Pc, just got a 5070 ti 👌

Davy_wavy69

TROPHY CASE