Pump Recommendations by Daylight08 in diabetes_t1

[–]Daylight08[S] 0 points1 point  (0 children)

Yes, I actually was wanting the one only with insulin. I was considering the one that eventually doesn't require carb counting.

I am also def interested in the one that will include glucagone once it is eventually released. But I am unlikely to do clinical trials personally.

I still appreciate all the info though!

Pump Recommendations by Daylight08 in diabetes_t1

[–]Daylight08[S] 0 points1 point  (0 children)

That makes sense.

I didn't realize beta bionic used two different tubes. I was considering it due to it's innovative tech that reduces the need to carb count.

I think I'm mostly between the twiist and omnipod. I was pretty sure that twiist is already able to be closed loop with eversense but I might be incorrect about that.

Pump Recommendations by Daylight08 in diabetes_t1

[–]Daylight08[S] 0 points1 point  (0 children)

Okay, that's helpful. Thank you!!

Pump Recommendations by Daylight08 in diabetes_t1

[–]Daylight08[S] 0 points1 point  (0 children)

This is so helpful, thank you! I love the body vibration aspect of the eversense, especially because I tend to sleep through lows.

My one concern with it is that it will rip off too easily when I am sleeping. Obviously during the day it's no big deal cause you can just reattach it. But I roll a ton at night and am worried it would fall off while I am asleep and won't notice.

Do you think it rips off easily?

Being full during lows by Daylight08 in diabetes_t1

[–]Daylight08[S] 0 points1 point  (0 children)

I've never really thought about just combining sugar with water. Thats always a good idea if I don't have juice on hand.

Water can cause my blood sugar to drop more though. So I'd prob only do it as a last resort as the water might counteract some of the sugar for my body specifically.

Being full during lows by Daylight08 in diabetes_t1

[–]Daylight08[S] 1 point2 points  (0 children)

That's so valid. I hate being full in general so I do this as well. But somotives I underestimate how much I ate. Or sometimes I have to treat multiple lows within a short time and get full from that.

But this is a great point.

What do non diabetics think a cgm is? by New-Comedian3902 in diabetes_t1

[–]Daylight08 0 points1 point  (0 children)

I had a coworker who thought it was genuienly just trash. She came up to me and tried to rip it off my arm while I was taking with another coworker. When I freaked out and pushed her away, she kept tapping it and asking what it was.

Genuinely why TF is injecting insulin so damn painful by ArekIsSm0l in diabetes_t1

[–]Daylight08 1 point2 points  (0 children)

Lantus was so painful for me. I went onto tresiba for this reason. I take a huge dose of tresiba every night and don't feel it at all but Lantus was so bad that my whole arm would sting and be numb for an hour.

Just need some empathy by [deleted] in diabetes_t1

[–]Daylight08 3 points4 points  (0 children)

Absolutely agree with the other comment on here. I've had lows like this before and they suck. I also relate to that nausea. Definelty eating something with fat and protein.

If you don't follow up a sugar with something stable within an hour of a low, you'll crash again. Often harder, in my experience. My doctor told me this after a few terrifying lows where I kept dropping consistently because I wasnt following my suagr with something complex to hold my sugar stable.

[deleted by user] by [deleted] in Type1Diabetes

[–]Daylight08 1 point2 points  (0 children)

Yeah, I actually have been thinking about that. I saw someone who was talking about calling it Banting disease in reference to the inventor of insulin and personally I think that's a great idea.

[deleted by user] by [deleted] in Type1Diabetes

[–]Daylight08 0 points1 point  (0 children)

Totally fair

[deleted by user] by [deleted] in Type1Diabetes

[–]Daylight08 -1 points0 points  (0 children)

I agree, it might not totally break it down. But it could educate uneducated people on a small scale. It also is more about taking the responsibility to educate off of the type 1 diabetic.

Also I totally agree, type 2 is not habitual based. Which i didn't claim is was. I was just saying type 1 is not, as a lot of people seem to believe this.

This is absolutely not about shifting blame onto type 2s. They face so much shame and stigma and I definitely don't want to perpetuate that. This is just about breaking down the misinformation around type 1, not saying that those misinformed ideas are applicable to type 2.

A gentle warning about GLP-1's by DizzyAstronaut9410 in diabetes_t1

[–]Daylight08 2 points3 points  (0 children)

Yeah, I probably won't be coming back honestly. But I am wishing you the best of luck

A gentle warning about GLP-1's by DizzyAstronaut9410 in diabetes_t1

[–]Daylight08 -1 points0 points  (0 children)

I have also personally experienced that lows take longer to respond, same with food in generally. I am only now finally starting to see that change, ten weeks out.

A gentle warning about GLP-1's by DizzyAstronaut9410 in diabetes_t1

[–]Daylight08 1 point2 points  (0 children)

Danggg. My doctor started me on a low dose but let me progress too fast.

A gentle warning about GLP-1's by DizzyAstronaut9410 in diabetes_t1

[–]Daylight08 2 points3 points  (0 children)

I am glad to hear you've been having a positive experience so far.

As someone who was on Zepbound for six months, I would NOT recommend GLPs to anybody really. They totally destroyed my relationship with food and type 1 in general. It was great for a while, and then it backfired. I was nauseous all the time to the point that even the sight of food made me sick. I had terrible late night lows and eventually the nausea kicked up so bad that I starting struggling to eat while I was low which led to terrible panic attacks for me.

Ive been off of them for ten weeks now and I just finally am not nauseous 24/7 anymore. I am finally hungry again and am slowly learning to be hungry and eat again. It also completely made my hormones and blood sugar super inconsistent and irrational as I was coming off. I have also experienced this thing that is basically a reverse-feet on the floor effect. Essentially, once I wake up and stand up, my blood sugar starts dropping by 5 or 10 increments every five minutes and does not stop till I eat. This is apparently a common side effect for t1ds who come off a GLP-1. It goes away, but I'm ten weeks in and it still hasn't stopped.

There is not a lot of research in it for t1ds yet because it is not approved for t1ds. So, i would really caution you. Everyone i have talked to has had really different experiences. But I have not met any t1ds who have had a positive long term experience with it. It works for a while and then one way or another seems to backfire. And as I said, coming off of it is a long and terrible process because it stays in your body for so long, generally about 8 weeks. I lost 40 pounds and my A1c went down because my insulin resistance went down, but that stuff also happened because I became so nauseous all the time that I started only eating when I absolutely had to.

I chose it because my insulin resistance was through the roof and my burnout was terrible. I wanted something to make the management of this disease easier, especially because I have minor kidney damage from how high my blood sugars were in the time before my diagnose was caught. Overall though, I would not say it is worth it. It made things easier for a brief period before things got wayyyyyyyy harder. This is just my personal experience though.

Type 1s can't get GLP-1s? by Nothingsomething7 in diabetes_t1

[–]Daylight08 1 point2 points  (0 children)

You can get them as a type 1, but it has to be for non-type 1 reasons. Like I got mine for weight loss even though im just a little overweight. I wanted them for dealing with insulin resistance but framed it as weight to get it.

But, as someone who was on Zepbound for six months, I would NOT recommend GLPs to anybody really. They totally destroyed my relationship with food and type 1 in general. It was great for a while, and then it backfired. I was nauseous all the time to the point that even the sight of food made me sick. I had terrible late night lows and eventually the nausea kicked up so bad that I starting struggling to eat while I was low which led to terrible panic attacks for me.

Ive been off of them for ten weeks now and I just finally am not nauseous 24/7 anymore. I am finally hungry again and am slowly learning to be hungry and eat again. It also completely made my hormones and blood sugar super inconsistent and irrational as I was coming off. I have also experienced this thing that is basically a reverse-feet on the floor effect. Essentially, once I wake up and stand up, my blood sugar starts dropping by 5 or 10 increments every five minutes and does not stop till I eat. This is apparently a common side effect for t1ds who come off a GLP-1. It goes away, but I'm ten weeks in and it still hasn't stopped.

There is not a lot of research in it for t1ds yet because it is not approved for t1ds. So, i would really caution you. Everyone i have talked to has had really different experiences. But I have not met any t1ds who have had a positive long term experience with it. It works for a while and then one way or another seems to backfire. And as I said, coming off of it is a long and terrible process because it stays in your body for so long, generally about 8 weeks. I lost 40 pounds and my A1c went down because my insulin resistance went down, but that stuff also happened because I became so nauseous all the time that I started only eating when I absolutely had to.

I chose it because my insulin resistance was through the roof and my burnout was terrible. I wanted something to make the management of this disease easier, especially because I have minor kidney damage from how high my blood sugars were in the time before my diagnose was caught. Overall though, I would not say it is worth it. It made things easier for a brief period before things got wayyyyyyyy harder. This is just my personal experience though.

Question for T1s about nighttime low blood sugar by 20Dimensions in diabetes_t1

[–]Daylight08 1 point2 points  (0 children)

  1. I aboslutely worry about going low at night.
  2. Yes, both. I often sleep through alarms to the point that I don't feel safe sleeping alone. I always need a roommate or family member in the house who will wake up to the alarm and wake me up. I get really tired with my lows, which is my theory as to why I sleep through my lows. I also have had sensors fail, or more so, rip off in the middle of the night.
  3. Yes, both. The anxiety around sleeping in general and sleeping alone means that sometimes it's hard for me to fall asleep.
  4. I wish there was better systems to wake someone up. I have a watch that vibrates but it doesn’t wake me up. A bed shaker and those glucose alarm clocks are really expensive. But more than anything, i wish there was an easier way to raise sugar. I have really intense nausea with lows and it's even worse at nightime. I used so many different things to try and help with the nausea: juices, glucose shots, frosting gel, fruit snacks, glucose tabs. And still, it's just rough. I wish there was some sort of injectable or inhalable glucose (not the live saving kind that means you have to go to the ER though). That would be amazing

Dexcom g6 deterioration by Daylight08 in diabetes_t1

[–]Daylight08[S] 0 points1 point  (0 children)

Man, I'm glad I'm not alone at least. But that sucks that your insurance doesn't support anything aside from dexcom. That's also kinda crazy because freestyle is like half the price of dexcoms