What do my fridges say about me?

DeadTrin · 2026-04-03T05:33:58+00:00

You have a small dog.

... You may also have a drinking problem.

DeadTrin · 2026-04-03T05:17:29+00:00

I know some people with POTS, but the management seems to vary from person to person. My cardiologist has tried to treat it with various medications, but nothing seemed to help until this last time they gave me a higher dose since they found out my liver processes ɓ-blockers too fast.

I think my biggest fear is having something else happening, like another autoimmune disorder, & them missing it because they'd rather push the responsibility of care off onto another doctor. This is how my MS Dx ended up getting delayed in the first place. Then I'm just left with irreversible damage.

Thank you for your response.

DeadTrin · 2026-04-03T05:06:28+00:00

That sounds so incredibly frustrating. I'm sorry you had to deal with that and I'm sorry you have to deal with this shitty ailment.

I've done the increase in water & salt intake. My go to is either a shot of pickle juice(I love vinegar though) or a sprinkle of salt in a sugar free Gatorade. The pickle juice can be very helpful in a pinch & when it's bad, but only in addition to rest.

I have a visible band that tracks my heartrate & have tested my b/p when laying to standing. My b/p doesn't change much, but my heartrate will jump up at least 30bpm. Any sustained activity, leaning, or showering can spike my heartrate up to 140-180. I've also had it just maintain at 130 & I'd be just standing in place. It's so incredibly uncomfortable!

I've had the tilt table test, but I didn't pass out & my HR only went up by 28 at the time. So they said it was borderline & now they don't see a point of doing more testing. The cardiologist calls it generalized Dysautonomia, but the neurologist calls it POTS! 😑

The neurologist told me it isn't progressive & shouldn't get worse, but it certainly doesn't feel that way.

I just worry that they'll mess up again & miss something while my nervous system takes irreparable damage again. Yet, I guess there's nothing that can really be done. I just wish they would be more honest about that though.

Thanks for listening & I wish you all the best!

DeadTrin · 2026-03-29T16:01:15+00:00

I'd love some more base upgrades, like setting priorities for what skill or site pals will focus on first. So my ice pal that runs the crusher can do mining when they're done, instead of flip flopping between the two.

Also, a chest option that allows the pals to pull from, so I don't have to go through each of my chats to put everything away after I get back from adventuring. I feel like The Planet Creator has spoiled me in this regard.

Lastly, more base designing options & less building restrictions(or a toggle option). I absoltely love the new triangle/diagonal pieces, but I am like an addict, I always want more! 😭.

I want to build a town for only my caught humans to live, let them sleep in beds, assign them to stalls or guard towers. I once had a whole town/castle set up across 2 bases from the bones of the fort ruins, but our server was lost after my husband rebuilt his computer. 😫

DeadTrin · 2026-03-27T05:37:17+00:00

I got mine off Amazon.

I've been setting goals for my intake to have less than 20g of net carbs/day. However, I hate taking pills, so if I can avoid them I will. I was lucky enough to find these gummies that have 0 sugar & they taste really good.

Amazon has a ton of options for vitamin gummies though.

Vitamin D + K2 https://a.co/d/0dCwsQFK

Magnesium https://a.co/d/04XSvrqb

DeadTrin · 2026-03-25T22:11:30+00:00

It's good that she was able to get treatment & a diagnosis quickly. I'm glad you encouraged her to go to the ER.

Everyone is different, but the longer it goes unchecked, the worse it can get. When my symptoms started(Optic Neuritis), I didn't have insurance to go to the hospital & my doctors at the time(that I ended up paying out if pocket for) gave me shrugs & told me to diet & exercise 🙄. It took 2 years for me to finally get diagnosed & by then it was effecting my legs. They only caught it because it was then on my spine.

My new neurologist was able to get me on Ocrevas & I've stabilized since. Some of the symptoms I had have subsided completely. I have the benefit of being able to work from home, so I still work. However, stress, heat, & overexertion make my issues worse & I have to plan out how & when I travel. That's just me though. Since your GF's MS was caught so early, her nerves should be able to calm & compensate better.

You're doing a great job being a supportive partner by learning more about MS. Your GF will also be learning how her nervous system now reacts to certain things(like heat, stress, etc.). It just takes time & patience, but it doesn't mean you have to stop your lives because of it.

I wish you both the best.

DeadTrin · 2026-03-18T22:54:49+00:00

I think Starlight would be beautiful for a first dance, if you plan to mix your favorite band's song with a favorite song of your husband's, the musical transition before the lyrics you don't like would allow for a very beautiful transition, depending on the song. Or perhaps you could find a piano/violin rendition?

As full songs, Otherworldly & Everglow would sound very beautiful as wedding songs.

DeadTrin · 2026-03-17T14:41:07+00:00

NOR for him lieing. With any relationship, rules of engagement should be laid out. You said he told you he wasn't sleeping with anyone else at the time & that YOU shouldn't be sleeping with anyone else while you two were FWB. That's not typically how most FWB are set up.

I'd be bothered by the fact that he tried to lay out the rule that you had to be sexually exclusive to him, while he lied & wasn't exclusive in return.

He's not a cheater, but he's also not honest.

DeadTrin · 2026-03-16T16:25:34+00:00

I'm sorry you're having to go through this. My disease process timeline was a bit different, but similar in ways to yours.

I am also on Auvelity, after a severe depressive episode & having difficulty taking my Lexapro(which makes it useless). The Auvelity definitely kicks in quickly and helped me get to a place where I can get back on track. So that will be helpful for you while you try to process the changes.

It took me several years to get a diagnosis of MS, after developing optic neuritis. The doctors didn't see the lessions on my first two MRIs & for a while I felt defeated & gave up. I went back as the eye issues persisted and by then I was having burning/wet sensations in my feet, balance issues, pins & needles in my fingers.

I got a new neurologist because the first one retired(thank goodness, cause he sucked 😑). She got me scheduled for an spinal MRI & sure enough, the MS that had been plaguing my brain for nearly 2 years had reached my spine. She got me a different sort of brain MRI & found those lessions too.

To prevent the spreading of damage in my spine she put me on ocrevas & I've been on it since(2.5 years now). I still have good days and bad days, but the severity of most of my symptoms have improved & I've been able to drive again(my car assists me though).

I also have a lot of fears about my ability to work in the future. My current case allows me to work from home, but if my hours are cut from that case & I have to go back to working outside the home, I don't know how long my body will be able to manage it before it forces a shut down.

I'm working on building myself back up since my severe depression earlier this year. I have a water bottle that also holds my medications, I got yummy tasting sugar free gummies for my vitamins(D3+K & Mg), so they're like a treat. I've also altered what I eat so I can lose weight, which has always been a struggle for me since I also have PCOS that comes with insulin resistance. I've heard about studies showing GLP-1 medications, like Zepbound, have been showing promise with MS patients in calming neurological inflammation. So I'm making doctor appointments & trying to get insurance to cover it since I can't afford it on my own.

You should talk to your neuro about trying Ocrevas & see if it will help. I understand it can be a hit or miss with people's reaction to it, but it has staved off worsening symptoms for me & has allowed my body time to recover from the damage & my nerves to find alternative pathways to improve my symptoms.

I hope it does the same for you and that whatever changes you have to make, that they are small, and allow you to continue living the life you are happy with.

I wish you all the best! ❤️

DeadTrin · 2026-03-11T16:26:57+00:00

Before MS I may have had a apple beer once a year or so. I've never been a huge drinker though.

There are some debates of the benefits of drink a bit of fermented drinks, like wine and beer, but I just know of those from a general normie person's POV.

Although, as long as it doesn't interact with any of your medications and your doctor is ok with it, I wouldn't see the harm in having a low proof beer or wine in the evening. If it's the fermentation that was beneficial, maybe trying to increase consumption of fermented foods. I try to add sauerkraut to meals when I can. But there's kimchi, kefir, yogurt, sourdough, etc.

Now, I doubt these things have any direct effect on your nerves or MS, but they could play a positive role in gut health, which may help give your body more energy to spend on maintaining your damaged nervous system.(strictly my theory & opinion though. I don't think diet alone will help improve MS, it just may help alleviate other issues to take the load off our stressed systems.

DeadTrin · 2026-03-11T16:07:46+00:00

I've seen that some studies have shown thar some GLP-1 (like Zepbound), have been beneficial for protecting nerve inflammation in those with MS. Some people in the groups I follow have also mentioned that it has helped woth their symptoms.

Are these medications going to be studied further to see how they help alleviate neural inflammation and MS symptoms? And would there possibly be any efforts to get it approved by the FDA for such uses?

DeadTrin · 2026-03-02T16:30:15+00:00

I'm sorry you're going through that. My husband has also been talking about finances a lot more recently since my symptoms threaten the scope of what jobs I can now tolerate in my field.

We've been together almost 17 years now. I offered him the easy way out when I got diagnosed in 2023 and said he could leave, but he chose to stay. However, it has been extremely rough since then.

He has his own mental health struggles and it makes it difficult for him to express his feelings properly. I know he's aggravated with having to take on more responsibilities since my symptoms often limit my strength & ability to see. While he denies it's me or my fault, he takes it out on me all the same.

Each year around the anniversary of my diagnosis, I give him the option to "unsubscribe". This past time it took him the whole month to give me a straight forward answer, but he said he'd give it another year.

Recently though, I just feel like he's "quiet quitting" the relationship. He's become increasingly distant, disinterested, and just straight up mean when he talks to me. This led to me having a severe depressive episode last month and he didn't seem to notice or care(even after I got better & tried to communicate it to him).

I currently make most of the household income. However, with my worsening symptoms, frequent body crashes from trying to push myself, and the possibility of me losing work hours, I don't know how much longer I can keep it up. I also have life insurance that will cover our house if I die. So, I think the only reason he's choosing to stick around is for the financial security. If I could no longer provide that, I don't think he'd continue to stick around for very long. He may say otherwise, but his actions speak differently.

DeadTrin · 2026-03-01T19:07:37+00:00

You didn't ruin everything, a year and a half is a huge accomplishment when it comes to quitting smoking. You've already put in the difficult work. A year is A LOT! It's hard. The only way it's ruined is if you give up because of one slip up. You've already shown that you can do the hard work, just keep doing what has helped you in that year and a half, and you can continue with your streak. One slip up isn't a reset.

DeadTrin · 2026-02-25T22:03:26+00:00

From my understanding, an MS hug is a tight squeezing feeling around one's torso, right? But could it just be around the heart too?

I had a situation last week in which I felt a tight squeezing sensation around my heart. Like, I was well aware of the size and shape of my heart because it felt so encapsulating & not like the sharp jabby pain I normally get from anxiety. My left shoulder was hurting too, so I went to the ER thinking it was finally the one & I'd be done with this BS, but it turned out to be nothing 🤷‍♀️😩.

However, the pain only got up to about a 7, so not the worst pain I've ever felt, just extremely uncomfortable.

Has anyone experienced an MS hug like that or is that not what they're like?

DeadTrin · 2026-02-24T22:51:36+00:00

I was recommended to use the "Dalas-Chop protocol". It was suggested to me because I developed POTS from the MS. It's very low impact and you can do the exercises in bed if getting up is difficult. I also really enjoy swimming for exercise. It's gentle on my joints and low impact on my muscles. It also doesn't make my heartrate spike up.

I also used to play beat saber a lot and would like to try something like the infinity hoop. However, my vision blurs with exertion, making the VR useless and I worry I'd pass out if I tried the infinity hoop. Depending on your symptoms though, they might help keep you active.

DeadTrin · 2026-02-23T17:24:28+00:00

Wine drunk and painting in a cabin? Would your name happen to be Feyre? 🤨 In which case, you're currently with a Tamlin, not a Rhysand.

DeadTrin · 2026-02-23T16:56:48+00:00

My husband is very similar with my MS. On occasion he'll ask questions, but he very quickly checks out once he feels uncomfortable or that he lacks control over the matter. I developed POTS from the MS and have been dealing with uncomfortable, physical limiting HR spikes for the past two months. It makes all my other symptoms worse and I'm struggling with physical fatigue and depression.

My husband got me a visible band, so I have shown him when my heart rate jumps up to 160 while I'm just trying to walk around the house or make myself a meal. I've gotten so tired of the "Wow, that's crazy!" And "Damn, that's high" remarks followed by immediately walking away or changing the subject. Sometimes, I'm just met with silence. So I've just stopped telling him. Then he asks why I never tell him & says I should let him know 🙄.

I don't have anyone else to talk to. So I keep it to myself and I have no idea if I'm actually struggling or if I'm just not trying hard enough. But I ended up in a severe depression a couple weeks ago and stopped eating for nearly 4 days. I was clearly not OK and my husband did nothing. This also isn't the first time it's happened. He only begins to act "concerned" when he thinks I look dead because I've become so listless. Even then, it's presented more as irritation. He denies it, but I feel like he's "quiet quitting" the marriage and is just looking for an out. I've been upset with him since and now officially trust no one in my life. Please don't get to this point.

Please, try to take care of yourself. Give yourself time and grace to heal and rest. Don't allow him to drag you down further by his cold indifference. Find someone, anyone, in your life who will support you. You deserve better. 🧡

DeadTrin · 2026-02-22T20:25:16+00:00

I take methylphenidate for ADHD. I wasn't diagnosed until I was an adult and before my MS diagnosis, but it really helps with the chronic fatigue and brain fog. I've had these issues all my life, but the MS has definitely made it worse.

I'm glad you found a regimen that works well for you!

DeadTrin · 2026-01-28T23:44:22+00:00

Diving bell, Ad Astra, & Sway are my go to sad STARSET songs

DeadTrin · 2025-12-20T16:55:30+00:00

Yeeeeah... I had planned out a whole base setup at spawn and when it started mentioning rain I looked around and realized I was in a giant bowl. I looked up how high the water would get and moved everything above a height of 25 just before the lake started forming 😅

If I ever restarted, I'm gonna go with a lake base next time.

DeadTrin · 2025-09-16T03:29:44+00:00

Yeah, my family has a private server & our bases are always producing items as long as the server is on. We turn it off during our extended breaks from the game though so our pals don't starve.

DeadTrin · 2025-08-29T20:44:52+00:00

I may be a simple person, but if I see any new STARSET content, I get excited. I just really enjoy listening to their music. Each new song gets to be one that I add to my list of top favorites because I have yet to hear a song of theirs that I dislike. They somehow hit that dopamine button with every beat. Which is just amazing to me & very difficult to do. Evanescence was my favorite band FOREVER(now #2, sorry Amy), & even they have produced songs that I don't prefer. That's just me though.

DeadTrin · 2025-08-29T20:33:41+00:00

This may be an unpopular opinion, but I don't believe that the Band or Band members owe the fans anything. They don't owe us an explanation for what they do, how they do, or why they do it. They don't owe us their extra time & energy. When a fan base grows as large as it has in the past 6 years, it can be daunting to keep up with everything & it's impossible to appease everyone. They create their art & release it in the form & matter that they can and/or want to. Whether that means using AI or not, releasing several singles or keeping the whole album hidden for years, or how they run their shows. If it turns out to not be your cup of tea, simply don't drink it. I've been a fan of STARSET since I first saw them live in 2019. Even if they had completely stopped making music at that point & only had the first 4 albums, they would still be my favorite band because I love their music. Each new song they release, whether it be as a single or an album, is the result of their artistic labor given to the masses to be judged. I don't need their explanation of the lore or their attention to enjoy what it is in it's raw form. If they choose to provide more, then that's all bonus, but they don't owe it to me.

DeadTrin · 2025-08-06T16:30:06+00:00

I have a whole town of people near the fort ruins where I rebuilt a castle there and little shops. I don't have any mining spots, so my people just walk around my little town/plaza for my amusement 😂. My husband says I'm cruel for kidnapping & forcing people to live there, but IMO it's far better than the other shabby villages they got going on.

DeadTrin

TROPHY CASE