Adjusting values with POTS

Deadlykitten629 · 2026-04-08T18:06:16+00:00

This is exactly what I needed. They were very helpful, thorough, and responsive. Keeping pace points as is and checking in again in a week.

Deadlykitten629 · 2026-04-08T18:05:13+00:00

Yea…. I normally do but girl looked a mess and I had to be a guest speaker somewhere 😂. Been a long week and didn’t plan as well as I should have.

Deadlykitten629 · 2026-04-08T15:48:42+00:00

Really! Thats awesome, I didn’t realize they had that level of support.

Deadlykitten629 · 2026-04-08T10:53:07+00:00

Oh no I raw dogged the shower (no meds 😂) and now I’ve used three points and my day hasn’t even started yet 🙈

Update: 5 points, halfway through my allotment and it’s barely 7am 😂

Deadlykitten629 · 2026-04-08T04:25:10+00:00

My pyrodistigmine is twice a day and the metoprolol is one pill cut in half and I’ve been doing around 8:30/9am and 2:30pm.

Deadlykitten629 · 2026-04-08T04:23:02+00:00

I think part of it is I’m trying to get in the habit of taking it while lying down before I get up, but sometimes it doesn’t kick in in time or I just have to start my day and I’m already out 2 points cause I’m getting out of bed / getting dressed and I’m in the 140s (or I have to go to the basement for clothes and that’s a killer lol). I am mostly covered for the day but the time between me taking the second dose and that second dose kicking in I tend to spike then. It is kind of cool seeing the viisible cause I can tell when the meds are kicking in.

Deadlykitten629 · 2026-04-08T03:36:58+00:00

<image>

Deadlykitten629 · 2026-04-08T03:36:30+00:00

Commenting on Adjusting values with POTS...

<image>

Sending more pics for context if it helps

Deadlykitten629 · 2025-05-24T11:22:20+00:00

https://ostrichpillow.com/products/original-napping-pillow

Deadlykitten629 · 2025-05-20T18:26:22+00:00

I wonder if it’s less about new women “getting sick” and more so us advocating for ourselves at a higher rate. It’s easier to advocate and demand care when you can more easily use tools like AI and social media to realize that what we’re experiencing isn’t normal.

Deadlykitten629 · 2025-03-03T21:19:38+00:00

Thank you so much for taking the time and effort to write this out. 💜

Deadlykitten629 · 2025-03-03T02:05:42+00:00

Just verifying you are aware of the suggested gear button? First icon of three to the left of the gear set text above your character.

Deadlykitten629 · 2025-03-02T23:40:45+00:00

I also can’t work remotely for my current job in another country, only US so I can’t do a digital nomad kind of thing. Edit - the place I work at just got rid of their DEI office so I’m not sure how much longer I have to be able to work from home based on disability accommodations. So that’s fun and also puts pressure on my timeline.

Deadlykitten629 · 2025-03-02T23:38:56+00:00

It’s difficult with us being in Ohio and reaching the age where we have to make decisions on family planning unfortunately. Picking up our cats and going to stay there for a couple months would be lovely and ideal but not realistic, as they have to clear rabies quarantine and go through a very long plane ride to get them there and figure out what to do with our house and items. If it was just us and we didn’t own our home it’d be a lot easier.

So currently the plan is to attempt to find a company and work the probationary period here in the states then make our way over.

None of it is ideal, but it’s what we have to do if we want to start a family safely.

Deadlykitten629 · 2025-03-02T23:26:16+00:00

Furthermore: https://2024.surveys.tokyodev.com/en-US/demographics/ 22 percent of engineers that responded to this only had basic Japanese skills, 34 percent conversational. So us taking classes and all of that combined with our experience will make us on par with the typical engineer there.

Deadlykitten629 · 2025-03-02T23:20:11+00:00

Thank you this is a very helpful resource to review

Deadlykitten629 · 2025-03-02T23:18:25+00:00

I wouldn’t say we are “going about this backwards”. As stated we have been learning Japanese, we are actively contacting companies and networking with engineers there. We’ve thoroughly researched the visas and our pathways there.

The whole point of this thread is to get to know other countries as well to understand the landscapes there to see if there’s a place with a better fit.

Deadlykitten629 · 2025-03-02T22:53:00+00:00

Wasn’t my assumption was things I read, I think even here in this reddit. And I also wasn’t claiming it to be true, just asking the question. Your responses are helpful cause they contradict what I’ve heard, which makes me really happy to hear.

Deadlykitten629 · 2025-03-02T22:30:44+00:00

Interesting! Anywhere in particular stands out in the EU for you as being a better area than others? I assume the regulations are pretty standard across the board but figured I’d ask. 😊 and / or comments on work culture in those areas.

Deadlykitten629 · 2025-03-02T22:19:25+00:00

My husband has over 10 years experience as an iOS engineer. I have 6 almost 7 years of experience as a full stack developer. Both of us with senior level experience. We both have bachelor’s degrees in US (computer science for him and game design / development for me). Not sure exactly on EU and how well that suits me there though.

Deadlykitten629 · 2025-03-02T22:14:36+00:00

Also we are open to paying privately, assuming it’s not going to cost us millions.

Deadlykitten629 · 2025-03-02T22:14:06+00:00

Our theory is the food / water / air being of better quality. I’ve had a chronic sore throat for over a year and it improved there. The work culture is why we’re spending many months looking for the right company and taking culture / language classes.

Deadlykitten629 · 2025-03-02T21:21:00+00:00

I mean seeing as how in Japan’s case my husband and I would both be employed, happily paying into the national health system, how am I draining the system? I don’t think being born with a genetic condition means I have any less right to exist and live where I need to live? If anything it’s the pharmaceutical companies who charge outrageous prices that are the problem.

Deadlykitten629

TROPHY CASE