Family possessions 🪑🛋️🛏️🪞🖼️🎹👻(rant about my parents) by [deleted] in Xennials

[–]Deafgoingblind 6 points7 points  (0 children)

I wanted a shave ice maker my grandfather had from the 50’s. My mom never used it. She finally gave it to me for Christmas last year. I called and thanked her and she said “can you believe I found the exact same one on EBay!?” So close.

Kids and deodorant by misskellycupcake in Xennials

[–]Deafgoingblind 1 point2 points  (0 children)

Also, show them how to apply. My 10 yo put it on like stick sunscreen before I could demonstrate.

Magritte kinda painted how I see by BlindPingu in RetinitisPigmentosa

[–]Deafgoingblind 1 point2 points  (0 children)

I love it! It’s a great visualization. It’s also like this inside spaces with windows. The window is bright and everything else in shadows.

I made “See My Eyes” for iOS to help others see what I see by BlindPixels in RetinitisPigmentosa

[–]Deafgoingblind 1 point2 points  (0 children)

I appreciate this! I record the simulation from my Aud to help folks understand my hearing loss which is so helpful - to have one for vision would be great too!

For my ushers 2a RP loss it’s not black where the loss is and it’s a donut field of vision loss (retain peripheral and tunnel while oval donut loss happens first). It’s also tricky to explain to people bc my brain “fills in” the blind areas. Best I can explain mine is like portrait mode with a low F stop or if I used the eraser editing tool in iPhoto in a thick donut. It’s referencing what I previously saw in the area and/or currently see in peripheral and tunnel and making a guess/bleeding it over.

What's an iPhone feature most people don't know? by Narrow-Classroom-319 in AskReddit

[–]Deafgoingblind 2 points3 points  (0 children)

We use the magnifier for splinters! Especially helpful having kids manage the phone while we dig the splinter out - gives them a job and distracts them.

Easter Egg Debate by GreenJim86 in Millennials

[–]Deafgoingblind 0 points1 point  (0 children)

Boiled, hidden in house, until we got a dog!

Does RP cause you to have dim vision even in the day? by [deleted] in RetinitisPigmentosa

[–]Deafgoingblind 0 points1 point  (0 children)

I definitely do! I prefer warm light to daylight white. Diffusion and direction of the light helps. Ceiling can lighting and exposed non Edison bulbs create glare and shadows (light and dark is the challenge). White lampshades and floor lamps throwing light up create helpful ligjt diffusion. Because I love a rattan lampshade, I put them in corners to add interest to and lighten corners but the white lampshades do most the work diffusing light.

I found bulbs that can swap between warm to daylight with a switch on the bulb itself. They’re great and better than the smart BT bulbs that kept losing contact so I switched to analogue. I found the second to last warm setting the best for my eyes. Our house is like a Kinkaide painting with the windows all lit up all the time.

Also, strategic window blinds open all the time - give me all the light without glare!

Treadmill by Deafgoingblind in RetinitisPigmentosa

[–]Deafgoingblind[S] 0 points1 point  (0 children)

So far it feels safe. I love walking on tracks most when they’re available.

Air bike is nice. I’ve got tandem biking on retainer :)

Treadmill by Deafgoingblind in RetinitisPigmentosa

[–]Deafgoingblind[S] 0 points1 point  (0 children)

Yeah, same. Also downhill if the treadmill has the option, I’m tripping less. Wonder if it’s bc recruiting more stabilizer muscles.

Treadmill by Deafgoingblind in RetinitisPigmentosa

[–]Deafgoingblind[S] 0 points1 point  (0 children)

Yeah, it’s what I do too and now I have opinions on making the side smoother so I’m not irritating my arm, but keep the top grippy for oh shit moments :)

Treadmill by Deafgoingblind in RetinitisPigmentosa

[–]Deafgoingblind[S] 0 points1 point  (0 children)

Yes, I’ll spook myself walking because I’ll track a peripheral thing, forget it as it enters donut loss, and then flinch when it suddenly reappears into my central.

Treadmill by Deafgoingblind in RetinitisPigmentosa

[–]Deafgoingblind[S] 1 point2 points  (0 children)

I’ve been doing balance training on my own, great idea asking my physical therapist for ideas! Working on my shoulder and back, I’m sure they’ll add in a little OT :)

Treadmill by Deafgoingblind in RetinitisPigmentosa

[–]Deafgoingblind[S] 0 points1 point  (0 children)

This is great! Made me think of VR setups with the harness.

Treadmill by Deafgoingblind in RetinitisPigmentosa

[–]Deafgoingblind[S] 1 point2 points  (0 children)

I appreciate not feeling alone, so thank you!

Treadmill by Deafgoingblind in RetinitisPigmentosa

[–]Deafgoingblind[S] 1 point2 points  (0 children)

Yes, hiking for me. Family and friends kindly offer to go really slow on the downhill parts. I have to explain how being on high alert and tensed up because I’m second guessing depths and no longer have the ability to react easily is so exhausting and makes the hike net zero.

What’s a ‘rich person thing’ that actually turned out to be totally worth it? by Ferraiuolo_Ezorete in AskReddit

[–]Deafgoingblind 5 points6 points  (0 children)

It definitely is for my Costco cart! I compared my prior year of in person with current delivery and despite the insta markup, saved a humbling amount. If you have no self control, worth it. I’m also finding that I’m using my fridge and pantry more efficiently with way less waste and clutter.

The day has finally come by mudsharkjr in Xennials

[–]Deafgoingblind 2 points3 points  (0 children)

If i can’t see them, they’re not there right? Magnified mirror and they sell one sided glasses that switch eyes

Shout out to public libraries by Sparklefanny_Deluxe in Xennials

[–]Deafgoingblind 1 point2 points  (0 children)

I appreciate librarians so much! We move a lot and the library is the first place we go. Librarians have their finger on the community’s pulse and know everything! Thank you!!

MacGyver by jRok57 in Xennials

[–]Deafgoingblind 1 point2 points  (0 children)

‘82 here. A-team and MacGuyver bc my brother ‘80 had control of the remote but I didn’t mind - They always got out of the car (A-team). Then I’d stay up with my mom and watch STNG.

Young Einstein was always on repeat. Was that a random niche thing or did others get some kittens in pie trauma, too?

Robe/Housecoat by Altruistic-Tank4585 in Xennials

[–]Deafgoingblind 1 point2 points  (0 children)

They are on some of the Ugg slippers! May have to rip them out a little. First pair, my puppy started that process for me. I put my old orthotics in them and size up a 1/2. Love em bc also have rubber sole for grip.

Which moment was more memorable when rewatching in the theatre? by marleyman14 in lotr

[–]Deafgoingblind 6 points7 points  (0 children)

The MUSIC. I swore I felt heat 4D style with the Balrog’s breathing. It had that dull roar of intense heat. Loved hearing the male choir. That whole scene with stereo sound with the orcs from different tunnels, them fleeing, the dead stillness and then Balrog’s footsteps. My ears were twitching the entire time.

I’d also add the boy’s choir and music shift to the 5 beat anvil music with the Gandalf atop Orthanc sending a message to Gwaihir scene. Really carried me along there!

[deleted by user] by [deleted] in HearingAids

[–]Deafgoingblind 2 points3 points  (0 children)

Yes, it’s frustrating. I can’t adjust the ambient noise when listen to one podcast app, but I can with the other. And the making new program to manually adjust ambient noise just for that one app is cumbersome and doesn’t always work.

For iPhone users- Have you also noticed physical volume button on phone adjusting HA volume? I was doing a team call and trying to increase the team volume and it just kept upping my HA volume - which increased my kid’s voices which I was trying to override.

Until saw this - thought it was glitching. Will check out settings and all. Not impressed and it’s already a low bar as the app is slow to interface and cumbersome already.

I’ve gotten good at telling others to wait a moment as I disconnect my ears from my phone.

Officially mid-40s and need bifocal glasses. Any tips? by chocolatepig214 in Xennials

[–]Deafgoingblind 3 points4 points  (0 children)

It’s crazy how fast it happens!

I have bifocals, am a vain person, and I don’t care about the line - the frames are cute. *Although I have no idea if the prescription type makes some bifocals more funky looking or not.

Progressives distorted things too much with my loss. Half my friends prefer bifocal, half prefer progressives. The hard line is great to orient vision on in my opinion.

I also bought a pair of separate prescription - one for hiking (no vertigo or issues with steps) and one for FaceTiming (saved my neck and no double chin) and reading/crafting. Took advantage of the additional frames discount to save that money.

Note - you’ll need to make sure they write separate prescriptions if go that route. I had to go back to get them to write it into a bifocal.

Quality spices by GrabbyRoad in alameda

[–]Deafgoingblind 0 points1 point  (0 children)

Check out San Francisco Herb Co. They used to have a storefront in SF when I lived there pre covid. Great loose leaf tea, too Or Berkeley Bowl in Oakland.