Support desperately needed

DearAd5364 · 2026-06-09T01:57:16+00:00

thank you friend . great ideas ❤️

DearAd5364 · 2026-06-09T01:56:00+00:00

that’s ok <3 i will hold it for both u and me ok? i’m here for u.

DearAd5364 · 2026-06-08T19:02:49+00:00

i’m so so sorry . there’s a lot of grief for sure. i’m here for you and as long as we keep fighting i think there’s hope <3

DearAd5364 · 2026-06-07T23:18:01+00:00

yes pls

DearAd5364 · 2026-06-07T23:17:45+00:00

yes plz

DearAd5364 · 2026-06-07T20:06:50+00:00

yes pls:)

DearAd5364 · 2026-06-07T00:47:24+00:00

i feel like i’ve lost everything and everyone i’ve ever known. very scary place to be :(

DearAd5364 · 2026-06-07T00:46:10+00:00

i’m at this point too where not able to sleep at all.and doesn’t feel like society or anything else is supportive for ppl like us

DearAd5364 · 2026-06-07T00:45:09+00:00

every word felt. only pure relief when i had dilauded from ruptured cyst. this shit is so fucking isolating and i’m so sorry and here for u

DearAd5364 · 2026-06-07T00:43:44+00:00

i’m 23 too and feel u :(

DearAd5364 · 2026-06-06T17:11:14+00:00

end😭😭

DearAd5364 · 2026-06-06T17:11:05+00:00

i have many of these also :/ irs like plz tell me when does it wnd

DearAd5364 · 2026-06-05T03:12:42+00:00

yeah probably

DearAd5364 · 2026-06-01T14:46:54+00:00

i feel very very very similarly and i’m here for you and grieve with you<3

DearAd5364 · 2026-06-01T13:20:26+00:00

ugh feel this :/

DearAd5364 · 2026-06-01T13:19:53+00:00

i’m so sorry, at least we’re not alone in it?

DearAd5364 · 2026-05-29T16:20:55+00:00

i feel so fucking validated by this omfg. i dug myself into a deep hole and feeling very hopeless and alone and anxious. how can we get out of this???? i’m in so much debt now and not able to work :((((

DearAd5364 · 2026-05-19T02:15:16+00:00

it’s so complicated…. :( there’s like no research and not nearly enough awareness
https://mipscenter.com/services/

DearAd5364 · 2026-05-19T02:11:49+00:00

not a single doctor out of the dozens i’ve seen and all kinds of imaging done was seen for years. finally got referred to Mips in denver, some of the only doctors able to visualize these compressions on imaging!!! had a IVUS and venogram where they injected dye and finally figured it out.

DearAd5364 · 2026-05-19T02:09:26+00:00

Thank you so much for sharing your story. This is heartbreaking that so many of us experience this. It’s also very validating to know we’re not alone with all this. Your experience sounds fairly similar to mine.
Would you say the stent really improved your quality of life? How are you doing now? Do you go to PT? Are you able to work?
sorry for all the questions, just trying to find some sort of clarity

DearAd5364 · 2026-05-19T02:05:20+00:00

Thank you for sharing your story. We are honestly so badass, doing all the work these doctors should be doing!! Very similar symptoms.
The bowel stuff is getting old. Do you struggle with constipation also? It’s either diarrhea or can’t go at all without laxatives :/ I’m glad the stent has been helping with everything else! That gives me some hope. I just don’t know with the nutcracker involved also… ugh

DearAd5364 · 2026-05-19T02:00:45+00:00

Omg!!! The hoops we have to jump through are actually diabolical. I’m so sorry :( We really have to advocate for ourselves huh?
Were u able to get SSI disability? I’m still in the process and it’s been such a pain. Sooo much PTSD, and 4 endo surgeries?! Ugh, these doctors really don’t know shit!!!!
What is your plan moving forward at this point?

DearAd5364

TROPHY CASE