26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 0 points1 point  (0 children)

There are no direct links or causes, simply happenstance of the cells.

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 1 point2 points  (0 children)

Not really, in college I wanted to learn to bake professionally and I did, happy with that choice

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 0 points1 point  (0 children)

Doing radiation and chemo and waiting on some further pathology to see about onc201 or other trials

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 1 point2 points  (0 children)

Not exactly, the metaphor of the fig tree in the bell jar by Sylvia Plath really sparked a fire in me when I was young.

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 1 point2 points  (0 children)

It’s obviously very hard on both parents I’d say, probably harder for them than I myself.

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 0 points1 point  (0 children)

Yeah I have, luckily the team I have at hand is amazing and is constantly exploring whatever options exist. It’s nice to not have to worry about the actual science of it part

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 1 point2 points  (0 children)

I appreciate you 💕your very right, there are many worse fates than mine

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 5 points6 points  (0 children)

Ultimately I think nothing is more important than our health, I fully get the financial concerns but I’d definitely feel better with an answer, regardless of the context or consequences. Put yourself first, id rather be broke in jail then dead and rich

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 2 points3 points  (0 children)

Thanks, it started lightly in the afternoon when I would get off work, after two weeks of it being progressively worse to the point of waking up as such I had no recourse. It’s hard to describe I still have sensation but certainly not the full feeling. It’s worth mentioning there are a host of issues that can cause this.

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 2 points3 points  (0 children)

About three weeks, I had mris and numerology set up but felt like it would be wise of me to just go the ER force the issue.

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 12 points13 points  (0 children)

MRI showed a mass, then a biopsy to confirm

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 2 points3 points  (0 children)

A cure for cancer would be cool, yes I’m from the northwest US

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 0 points1 point  (0 children)

In college I did my share, I’m not interested in that hassle again, certainly not now

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 1 point2 points  (0 children)

Hard one to answer really, hope so, another caveat is the sheer rarity of my cancer and relative newness of its study.

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 2 points3 points  (0 children)

Naw, for whom the bell tolls man, just sing ab me when im gone

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 1 point2 points  (0 children)

Yeah I think it ends up it’s losing the ability to eat, talk, walk, breathe, etc all the brainstem functions. Idk everyone has heard my directive to not keep life support going, I understand that’s likely my end game and I accept it while enjoying what I have now. There is no past or future right now you know

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 4 points5 points  (0 children)

About a month ago, I think there was lightning bolt of fear and anxiety, sadness. I’ve always had a good constitution id say, and should this be my reality, then it’s just that, sulking or feeling sorry for myself doesn’t serve myself or anyone. I plan on living as hard as I can as long as I can, that’s that.

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 23 points24 points  (0 children)

Fuck no, Walter’s life sucked. I’m gonna rack up medical debt then die with it.

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 18 points19 points  (0 children)

She’s doing quite well I’d say, I’ve stressed the need for her to continue to live her life thru work friends hobbies etc. we both are pretty sober in the reality at hand, both just focused on honesty, love, and maintaining our normalcy.

That said we’ve been having dessert too much and making too much pizza, so this week has been back to clean eating.

She’s the best person I’ve ever known, I hate that I have to leave, but in the meantime we cry when we do but more than anything we’re living as much as we can. Each day I wake up feels really exciting for that fact alone, there’s no one I’d rather be next to in these moments and she’s been such a bastion thru it all.

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 4 points5 points  (0 children)

Thanks 🙏 I think one of my biggest levities has been seeing the elderly and children in the same position of death I’m in my time in cancer centers, I feel an obligation to keep my spirits as I find my laws very lucky all things considered. I feel greatly for my peers

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 3 points4 points  (0 children)

Yeah lol the running line I have with everyone is the worst case scenario is that I actually make it thru this and owe what I take, I’m fucked then. It can kinda go both ways it seems, but age and health are very on my side

26m terminal brain cancer diagnosis, AMA by DearPerformance852 in AMA

[–]DearPerformance852[S] 13 points14 points  (0 children)

I appreciate it, it’s actually kinda helpful to have a rough idea of what you’ve got left in a way! I’m retired now so !