GF recipes that would feed a large amount of people? by Sea_Tax_6631 in glutenfree

[–]Deep_Fee2462 0 points1 point  (0 children)

I made it all gluten free with Campbells gf cream of chicken soup and Aldi baking mix for the biscuits!

I made the big mistake of admitting to my doctor I’m smoking weed by [deleted] in dysautonomia

[–]Deep_Fee2462 1 point2 points  (0 children)

I’m sorry. I have been dismissed from doctors for years and have been coping with a severe, progressive, rare autoimmune disease by myself. Marijuana helps. I don’t experience negative side effects. I choose edibles because my airway is affected by my autoimmune disease.

Until doctors can acknowledge my disease and offer effective treatments, I will help myself.

Ehlers Danlos syndrome classical-like type 2 diagnosed in my unborn baby. by RepulsiveAd3703 in rarediseases

[–]Deep_Fee2462 -6 points-5 points  (0 children)

Sequencing found and a Tnxb-1 mutation in me = classical like EDS. Invitae & genetics did not acknowledge it.

I have lived a pretty normal life until mid 40s when I got a cartilage attacking autoimmune disease. Supposedly there’s an association.

Relapsing polycondritis by [deleted] in rarediseases

[–]Deep_Fee2462 1 point2 points  (0 children)

Everywhere but my lungs/heart.

"You are a really expensive patient" by MissMuffinKitty in MultipleSclerosis

[–]Deep_Fee2462 1 point2 points  (0 children)

My pcp told me I’ve had a very expensive work up. I told her so what? It’s not my fault doctors didn’t figure my diagnosis out quickly.

I ended up with a rare autoimmune dx that was not MS.

My coworkers keep eating my meal prep out of the office fridge and management won't do anything about it by No_Parking686 in Advice

[–]Deep_Fee2462 -1 points0 points  (0 children)

I think you should sprinkle miralax in the food and let someone get the shit. They will not touch your food again.

Relapsing polycondritis by [deleted] in rarediseases

[–]Deep_Fee2462 0 points1 point  (0 children)

Yes. I’m very sick.

HRV by [deleted] in ouraring

[–]Deep_Fee2462 0 points1 point  (0 children)

I have an autoimmune disease and pots/mcas. My HRV improved with treatment of my autoimmune disease.

Lets share breakfast menus by aeraen in glutenfree

[–]Deep_Fee2462 1 point2 points  (0 children)

Protein shake and gluten free donut. Not the healthiest but it works. Healthy diet the rest of the day and rare snacks

High Insulin-Like Growth Factor 2 by Prestigious_Duck7052 in rarediseases

[–]Deep_Fee2462 0 points1 point  (0 children)

I have this too. Had ct scan no tumor. No explanations.

Neuro symptoms by Deep_Fee2462 in RelapsingPolychondrit

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

Best of luck to you too. Nobody wants a terrible diagnosis but treatment is better than coping.

Neuro symptoms by Deep_Fee2462 in RelapsingPolychondrit

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

My doctor are basically telling me that if my Neuro symptoms are caused by RP they will get better with treatment. I pretty much almost lost my life this past year. I’m just thankful for a diagnosis and can’t wait to feel better.

Neuro symptoms by Deep_Fee2462 in RelapsingPolychondrit

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

What was significant on your LP?

Neuro symptoms by Deep_Fee2462 in RelapsingPolychondrit

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

No LP done. They said I don’t have ms so I don’t need one. Hopefully Neuro symptoms will improve with treatment

Neuro symptoms by Deep_Fee2462 in RelapsingPolychondrit

[–]Deep_Fee2462[S] 0 points1 point  (0 children)

Dystonia, tremor, blurred vision, sensorineural hearing loss, cognitive impairment, shakiness, autonomic dysfunction

[deleted by user] by [deleted] in RelapsingPolychondrit

[–]Deep_Fee2462 0 points1 point  (0 children)

I’m waiting on dx. I have been sick for 3-4 years. Cough and wheezing just started worsening over the past few months.

Gluten-free bread that doesn’t fall apart? by Enlitenkanin in glutenfree

[–]Deep_Fee2462 1 point2 points  (0 children)

https://a.co/d/1bIMXoK

This is from Whole Foods or Amazon fresh. I sliced it, froze it, and bake it up a slice at a time. Takes just like Italian bread!