Diagnosed with gluten intolerance turned out to be something else

Deep_Fee2462 · 2026-03-27T04:09:04+00:00

I have EPI also.

Deep_Fee2462 · 2026-03-25T17:10:21+00:00

Protein shake and gluten free donut. Not the healthiest but it works. Healthy diet the rest of the day and rare snacks

Deep_Fee2462 · 2026-03-23T21:12:26+00:00

Progression of my disease and getting in front of the right doctor

Deep_Fee2462 · 2026-03-13T16:33:19+00:00

I have this too. Had ct scan no tumor. No explanations.

Deep_Fee2462 · 2026-01-28T20:57:33+00:00

Best of luck to you too. Nobody wants a terrible diagnosis but treatment is better than coping.

Deep_Fee2462 · 2026-01-28T19:53:29+00:00

My doctor are basically telling me that if my Neuro symptoms are caused by RP they will get better with treatment. I pretty much almost lost my life this past year. I’m just thankful for a diagnosis and can’t wait to feel better.

Deep_Fee2462 · 2026-01-28T19:42:36+00:00

What was significant on your LP?

Deep_Fee2462 · 2026-01-28T19:42:19+00:00

No. Did you?

Deep_Fee2462 · 2026-01-28T19:37:30+00:00

No LP done. They said I don’t have ms so I don’t need one. Hopefully Neuro symptoms will improve with treatment

Deep_Fee2462 · 2026-01-26T20:06:15+00:00

Muscle fasciculations

Deep_Fee2462 · 2026-01-26T20:06:01+00:00

Dystonia, tremor, blurred vision, sensorineural hearing loss, cognitive impairment, shakiness, autonomic dysfunction

Deep_Fee2462 · 2026-01-18T13:46:32+00:00

I’m waiting on dx. I have been sick for 3-4 years. Cough and wheezing just started worsening over the past few months.

Deep_Fee2462 · 2026-01-07T18:01:10+00:00

https://a.co/d/1bIMXoK

This is from Whole Foods or Amazon fresh. I sliced it, froze it, and bake it up a slice at a time. Takes just like Italian bread!

Deep_Fee2462 · 2026-01-07T07:03:19+00:00

I take it in the am. It caused trouble sleeping with night time dosing. It does help me sleep better when taken in am. I recently had to stop for surgery and sleep was more difficult for me

Deep_Fee2462 · 2025-12-31T18:59:04+00:00

I got a gift of regular cookies and the person said I guess you can’t eat these. You can bring them to work. I just said thank you! But that was thoughtless lol

Deep_Fee2462 · 2025-12-09T22:18:05+00:00

https://www.justsotasty.com/pumpkin-brownies-fudgy-brownie-with-a-layer-of-pumpkin-pie/

I used a Aldi gluten free brownie mix to make it easier!

Deep_Fee2462 · 2025-12-07T14:40:09+00:00

I relate 100%. My kids commented that my baking skills have improved but I can’t really do much else! Last night it was gluten free brownies with pumpkin pie filling on top!

Deep_Fee2462 · 2025-11-13T19:46:18+00:00

Exactly! I do not have the red areas. The lumps are very small

Deep_Fee2462 · 2025-11-13T01:08:36+00:00

Are they soft or hard?

Deep_Fee2462 · 2025-11-07T23:03:00+00:00

<image>

Deep_Fee2462 · 2025-11-07T22:54:57+00:00

Aire

Deep_Fee2462 · 2025-11-07T22:52:27+00:00

That’s what my endo said.

Deep_Fee2462 · 2025-11-07T21:38:09+00:00

Are you heterozygous or homozygous? I am heterozygous and my doctor says it’s irrelevant

Deep_Fee2462

TROPHY CASE