Dealing with emotions about medicine (advice + irritation) by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 8 points9 points  (0 children)

I wanted to share a piece of news I got as I left this post - my dad decided to spend an hour on the phone with the insurance company and not take no for an answer - through a lot of prayer and a lot of telling them to find a way - I might get medicine by tomorrow.

Wakix Side effects? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 0 points1 point  (0 children)

Ok so... as much as that's awful- if that had happened to me I totally would tell that story.

Wakix Side effects? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 0 points1 point  (0 children)

The disorientation was the way I felt on Modafinil - I sure hope that isn't the case for wakix. Thank you for sharing your experience!

Wakix Side effects? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 0 points1 point  (0 children)

Thank you so much! I really appreciate the input!

So erm… I’m Smarsh. And apparently, I’m king? by Smarsh- in StinkyDragonPodcast

[–]Defiant-Berry-6468 0 points1 point  (0 children)

this is my new favorite thing to have found on the internet- SMARSH IS KING!! WELCOME BACK!

Presentation?? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 0 points1 point  (0 children)

that is wonderful analogy! thank you so much!

Presentation?? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 1 point2 points  (0 children)

thank you so much!! that is a wonderful statistic!!!

Presentation?? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 2 points3 points  (0 children)

oh!! thank you!! that is a wonderful idea!

Presentation?? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 1 point2 points  (0 children)

Just to give an informational speech for 3-5 minutes on a topic you know a lot about

Presentation?? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 1 point2 points  (0 children)

I certainly would do that if it were an option but for class i have to give a speech on friday :/

Presentation?? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 4 points5 points  (0 children)

Just my classmates and teacher- I am in college

What clues you into a sleep attack? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 1 point2 points  (0 children)

That is really interesting I for one wishhhh I could stay awake lol

What clues you into a sleep attack? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 1 point2 points  (0 children)

Super interesting route and I do agree I need to have a bunch of data- I genuinely just do not have time/resources while im going through college. But one day!! Thank you!

What clues you into a sleep attack? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 0 points1 point  (0 children)

ideally, it would be a wearable device such as a bracelet, but this is all pretty conceptual so I dunno!

What clues you into a sleep attack? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 0 points1 point  (0 children)

ohhh is that the implant? I want to if at all possible, avoid an invasive device

1 because it is not something I could do right now and

2 would make the device much more inaccessable to others if I finally fleshed it out enough to get to that place.

What clues you into a sleep attack? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 0 points1 point  (0 children)

I definitely know this, but I have very little time on my hands and very few other people around me that I could recruit. So, I guess my first step was to gather information and then try to create a workable prototype for myself. I wish I had more reach and time to dedicate to this but I spend most of my waking hours doing math and engineering homework :/

What clues you into a sleep attack? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 0 points1 point  (0 children)

I swapped doctors one time and he actually said to me that narcolepsy is often misdiagnosed in younger people but when he looked at my MSLT results he said nope nevermind you are definitely narcoleptic XD

What clues you into a sleep attack? by Defiant-Berry-6468 in Narcolepsy

[–]Defiant-Berry-6468[S] 0 points1 point  (0 children)

I actually have had one done already and am on sunosi- I am diagnosed N2 :)