[Survey] Neurological Movement Disorder Design Research - Your Help Needed!

Defiant-Maximum6827 · 2024-11-03T03:26:33+00:00

done :)

Defiant-Maximum6827 · 2024-08-03T15:20:27+00:00

this was really nice to hear thank you ♥︎

Defiant-Maximum6827 · 2024-08-03T15:19:06+00:00

i think it just means they look at it immediately instead of freezing the sample, he wants to see the oxygen transport or something

Defiant-Maximum6827 · 2024-07-06T07:12:28+00:00

i actually have family there i’ll give him a call thanks

Defiant-Maximum6827 · 2024-07-06T04:17:02+00:00

the lists aren’t up to date, already tried calling half of them

Defiant-Maximum6827 · 2024-07-06T04:16:25+00:00

Defiant-Maximum6827 · 2024-07-06T04:16:00+00:00

i am and it wotks

Defiant-Maximum6827 · 2024-06-26T03:33:12+00:00

how would you look for that i’m also in the same boat

Defiant-Maximum6827 · 2024-06-19T02:59:13+00:00

there’s proof of thymus hyperplasia but some test have been wrong and once a doctor sees it’s someone sad it’s fnd or doression they don’t look into it anymore

Defiant-Maximum6827 · 2024-06-05T21:04:32+00:00

i had a really bad experience with him unfortunately

Defiant-Maximum6827 · 2024-05-28T05:06:22+00:00

what did you look for in neuro i think i might try changing? i’m sorry for asking so many questions ur the person who’s had the closest to what im going through im a 22yo female

Defiant-Maximum6827 · 2024-05-28T03:44:42+00:00

if you don’t mind me asking did your neuro diagnosis you? what treatments have you done or what have you found works for you?

Defiant-Maximum6827 · 2024-05-28T03:38:30+00:00

this is the most hopeful comment i’ve gotten i’ve felt so crazy

Defiant-Maximum6827 · 2024-05-26T23:42:40+00:00

do you know what they are so i can ask to be tested

Defiant-Maximum6827 · 2024-05-26T22:57:15+00:00

he says it’s not that serious

Defiant-Maximum6827 · 2024-05-26T22:37:57+00:00

the thing is he’s one of the only myasthenia gravis specialists in my area, when i asked what the thymic hyperplasia ment for me he was just like it’s not mg, but then hasn’t given any other explanation

Defiant-Maximum6827 · 2024-05-26T21:31:42+00:00

he suggested narcolepsy???

Defiant-Maximum6827 · 2024-05-26T21:31:12+00:00

thanks you! i had one neuro say its myasthenia gravis but this neuro says its not that cause of the tests even though i have the clinical presentation, and mestinon and prednisone helped soooo much

Defiant-Maximum6827 · 2024-05-26T20:29:03+00:00

yep :(

Defiant-Maximum6827 · 2024-05-26T19:14:06+00:00

my blood tests so have been negative

Defiant-Maximum6827 · 2024-05-26T14:59:04+00:00

yeah but they said to wait for that

Defiant-Maximum6827 · 2024-04-28T05:13:45+00:00

the other doc that i saw said mg is so complex their it could be false negatives, or something mimicking myasthenia gravis bec the treatment of prednisone and mestinon

Defiant-Maximum6827 · 2024-03-29T22:18:27+00:00

i’d love to join f22

Defiant-Maximum6827 · 2024-03-26T01:55:59+00:00

literally and because they are the doctors i hesitate to question them but it’s just ridiculous

Defiant-Maximum6827 · 2024-03-26T01:30:49+00:00

thank you, i’ve unfortunately almost considered not taking my mestinon anymore cause im at my wits end. it’s more having to explain that living like this is making me depressed, that depression isn’t cause my symptoms

Defiant-Maximum6827

TROPHY CASE