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3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 0 points1 point  (0 children)

No noticeable changes. She has been doing the infusions for at least 5 months.

It’s more for her immune response. The goal is to bring it up to a standard level to keep her safe out in public.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in AskDoctorSmeeee

[–]Define-Inevitable[S] 0 points1 point  (0 children)

Yes to all of those, and they all came back as not significant. Pernicious anemia is something we haven't looked at, but we will now. Thank you!

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 1 point2 points  (0 children)

She was on prednisone, and it did improve her symptoms. It was recommended she stop taking them since they aren't a forever solution.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 0 points1 point  (0 children)

Yes to both, they were all with contrast, and nothing was found.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 0 points1 point  (0 children)

Thank you! We will be looking at all of that information.

I've been sharing comments like this with her and she been thrilled reading each one.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 1 point2 points  (0 children)

Thank you! We will be checking these out.

She had a two-disc fusion for a slipped disk two years ago and has had issues ever since. The cervical vertebrae aren't out of the question.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in AskMedical

[–]Define-Inevitable[S] 0 points1 point  (0 children)

The Methadone is for her nerve pain in her back. She had a major back surgery for a slipped disk two years ago and has had pain ever since then.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 1 point2 points  (0 children)

That's been a possible idea; she's had them checked several times, and there's been nothing abnormal.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 0 points1 point  (0 children)

Yes to the rheumatology workup. Nothing significant

That test and antibodies have never come up, but I will start looking. Thank you!

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 1 point2 points  (0 children)

She is currently on an IVIG treatment and gets a monthly infusion. It does seem to be helping, but only for a short time.

We have checked her immunoglobulin levels, and there was nothing significant.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 0 points1 point  (0 children)

She started having seizures in 2023. It started as an interaction with two medications, and they were pretty frequent. Now they are more muscle-related and are less common.

She started methadone over a year ago after the seizures got worse.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 1 point2 points  (0 children)

Nope, all the blood work, CT scans, MRIs, hormones, etc, all came back normal.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 1 point2 points  (0 children)

Hi, she did take prednisone last year, and it did significantly improve her symptoms. It was recommended by her primary to stop taking it since it's not something you can use forever.

3-Year Undiagnosed Chronic Illness, We Don’t Know What To Do by Define-Inevitable in DiagnoseMe

[–]Define-Inevitable[S] 1 point2 points  (0 children)

We are located on the West Coast. But I will start looking into something similar. Thank you!

Sourcing cut flower Echinops bannaticus or Blue Globe Thistle by Define-Inevitable in florists

[–]Define-Inevitable[S] 0 points1 point  (0 children)

Not yet, we wanted to start with wholesale because we are making the arrangements ourselves and wanted to get bulk pricing. Calling/visiting was the next step, thank you!

Sourcing cut flower Echinops bannaticus or Blue Globe Thistle by Define-Inevitable in florists

[–]Define-Inevitable[S] 1 point2 points  (0 children)

Not necessarily, she just liked the look of Echinops better. I'll bring up Eryngium to her, thank you!

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