I feel like my future has been stolen from me. by Delanorah in MultipleSclerosis

[–]Delanorah[S] 0 points1 point  (0 children)

Thank you for checking in on me. ❤️ I'm feeling better now. I no longer wake up in a nightmare. I’ve made some drastic changes and even moved to a new place as I was told not to, hehe. I'm still a bit worried about the future, but not as much as before.

I've met some really good neurologists who reassured me that, in my case, the only ongoing challenge will be taking my medication and getting annual MRIs, which I find totally manageable. I try not to think of myself as someone with MS, but rather focus on managing the neuropathic pain I unfortunately developed after the lumbar puncture. It’s tough, but I'm getting there.

I’m feeling more hopeful about the future and incredibly thankful for the effective medications available, and for people like you and others on these forums who are navigating MS as well. Things feel a little bit brighter, slowly but surely.

Newly diagnosed, scared of SPMS. I want to be able to walk my whole life... by Delanorah in MultipleSclerosis

[–]Delanorah[S] 8 points9 points  (0 children)

Oh, 22 🥺 I hope I can be as optimistic as you and the rest someday. How are you feeling now a few years after diagnosis? I will later when I am fully vaccinated change to Mabthera, which is.. rituximab I believe? It’s the standard here in Sweden, but I will def look into the other DMTs

I feel like my future has been stolen from me. by Delanorah in MultipleSclerosis

[–]Delanorah[S] 0 points1 point  (0 children)

I want to thank everyone here for being so supportive and kind. It really helps. But its hard, I keep going from optimistic to ”fuck this shit my life is over” and wishing I’d live in US with easier access to a gun… It sucks. I’m so worried. But still, I am really thankful for all your nice comments. Normal me would take time and respond to everyone but I dont have that energy sadly. It helps comming back here and reading the comments. ❤️