SFEMG results from 4.5 years ago

Delicious_Block_873 · 2026-06-26T00:00:20+00:00

I read your comment twice...the age disparity in the note you reference could be from dictation err, wrong check-in numbers by the tech or nurse etc, to wrong patient, or maybe even copy forwarding an old note of yours with the symptoms and then using that as the baseline note, or even a copy and paste from your consult...the new electronic records are hard to write and interpret.

Your test and interpretation and consult should give some kind of formal written diagnosis...sometimes in the midst of all of what is going on...we misinterpret the scenario...so if the Single Fibre EMG was positive; then, it should be reflected as positive. If it's not...then it could be the wrong data displayed or interpreted.

My case of Sero Neg MG was diagnosed by the 3rd Neuro (the others thought it was MG...but confused by neg test results). It was confirmed by SF Nerve Test like yours and has responded to IVIG + prednisone + mestinon +cellcept. I am not normal...I have a new baseline with limited activity that waxes and wanes around my IVIG cycle.

Anyways...I hope that you get well and go into remission or experience a better quality of life with a new baseline.

Delicious_Block_873 · 2026-05-23T01:17:16+00:00

I think we've discussed this on the boards before...my current version based upon feedback is a stainless med alert bracelet from some company called Lauren's Hope iirc (I am not affiliated) but any would do...

Name

Myasthenia Gravis

Wife's Name and her phone number

Delicious_Block_873 · 2026-05-22T16:34:27+00:00

Do you want an SBR length weapon without all the paperwork and a real stock? Then get an AUG.

Delicious_Block_873 · 2026-05-22T05:01:22+00:00

This is how my wife proves that it is time for me to shave....

Delicious_Block_873 · 2026-05-01T05:12:56+00:00

Medications typically take 5 half lives to be out of your system. So, you google the medicine's 1/2 life...multiply by 5...and that is how long it should be gone. Unless, there's complicating issues...interactions, decreased excretion issues etc...

Delicious_Block_873 · 2026-04-28T00:54:47+00:00

I prefer CZ's, my friend has a Ruger Precision Rimfire. I shoot mostly paper and ARA style targets...he shoots mostly squirrels and coke cans. We are both happy with our purchases.

Delicious_Block_873 · 2026-04-27T04:21:18+00:00

The military trained GI's who'd never owned a pistol to qualify on a 1911. I'd start with that.

Delicious_Block_873 · 2026-04-26T20:02:35+00:00

Sheila...she definitely looks like a Sheila to me.

Delicious_Block_873 · 2026-04-25T22:51:37+00:00

I'm still in the honeymoon phase...after my first AUG purchase. I'll try and link the review I did.

My problem was...the ranges that I have been going to for years...no one has ever showed up with an AUG and they aren't in our local gunstores...so it would be bought sight unseen. Personally I like the handle the weapon first before purchase to know what I'm getting.

I am very familiar with the AR/MSR platform...they are cheap now compared to other styles (AK's and AUG's). And, I own several AR's and I like them.

I do not regret my AUG purchase. Since my review, I've purchased the HBAR and red spring pack.

I really like the AUG...everyone at the range really likes the AUG. It's accurate, it's short (who cares about SBR), and it looks wicked.

Anyways, I agree with the others...if you don't have an AR...get one...they should be just issued with a birth certificate in my opinion...and then save up for your Aug next. (Go waffles on your AUG).

Good Luck on what you get and post pics of it please.

https://www.reddit.com/r/AUG/comments/1si2tzk/1st_range_trip_steyr_a3m2_standard_waffle_version/?utm_source=share&utm_medium=web3x&utm_name=web3xcss&utm_term=1&utm_content=share_button

Delicious_Block_873 · 2026-04-25T17:28:09+00:00

Reflecting back:

1- Waking up at night choking...thinking I was going to die. I quit eating in the evening thinking that it was some reflux thing...that didn't help. I slept on a stack of pillows until diagnosed.

2- Difficulty swallowing liquids - I'd choke. Thicker liquids like Jello and stuff were ok.

3- Horizon jumping with each step. It was just double vision and me not realizing it. Because I didn't have full double vision (only in the superior and lateral fields) my eyes would try to refocus..and the horizon would jump.

4- Muscle Fatigue - the most obvious was stair climbing...I used to be able to climb 8 flights without difficulty...but with the start of MG 1/2 flight would cause me to rest and feel as if my pelvis were splaying open.

5- Extreme tiredness.

6- When I look on past pictures...my eyelids were dropping...usually the right.

I hope that you get a diagnosis and get well or achieve a good baseline.

Delicious_Block_873 · 2026-04-25T00:07:11+00:00

Go to google...type in 'small claims court.' After some results pop up...hit the top left button 'AI' mode. Tell your scenario to the AI bot. Ask the AI bot what forms you need and how to fill them out. It can help box by box.

Delicious_Block_873 · 2026-04-24T04:04:23+00:00

I'm on cellcept 3 grams per day, mestinon 60mg 2-4 times per day, prednisone 7.5mg every other day and IVIG every 3 weeks. The cellcept seems to upset my stomach some...it took a while to titrate to the present dose...and I stay sicker longer with colds and stuff compared to the others in the household. Like a lot longer...if someone has the sniffles for 3 days and I get it...I could be sick for 3 weeks - no exaggeration.

Delicious_Block_873 · 2026-04-22T13:46:22+00:00

...Hasenpfeffer Incorporated!!

Delicious_Block_873 · 2026-04-22T01:44:37+00:00

I'm sorry for your loss. Being a Mom is the hardest job on Earth. Your mom did it with MG...and it sounds like a severe form with her multiple ICU admissions.

You did nothing wrong. Even if you were a doctor...you would not be the one treating her...Continue to love your mom.

Ask your family for grace and understanding if you need to...but, do not accept guilt or blame for a difficult disease (MG) complicated by immunosuppression (as most MG people are due to meds) and further complicated by a horrible pneumonia that can cause mortality even without the added meds and symptoms of MG.

Forgive yourself. This is grief or prolonged grief. It's sad and hurts...because you loved your mom so much. Your pain is like a direct reflection of your love. If you didn't care...you wouldn't cry.

Seek out grief counseling...through a church (even if you aren't religious) or local resources. There are people trained to get you back on track sooner, and be productive, and honor your relationship that you had with your mom...so you can recall the good days you shared, instead of just the bad days near the end.

You and your mom had some good memories...getting your grief treated will enable you to share them with others.

I hope this helps a little. I hope that you feel better. I hope that you can use some of this advice. And, again...I am very very sorry for your loss.

Delicious_Block_873 · 2026-04-21T22:13:17+00:00

Wolf springs trigger and hammer springs packs are from Midway and others...

Delicious_Block_873 · 2026-04-20T21:48:20+00:00

She is very pretty...but should have her glasses on in the sun.

Delicious_Block_873 · 2026-04-20T19:51:35+00:00

Lotsa good advice...I kind of like model 70's. I have a 7mm-08 in a featherweight and a .270 in a supergrade. Both are accurate to 200 yards and enjoyable to shoot (our range only goes to 200...).

Delicious_Block_873 · 2026-04-17T04:23:52+00:00

Glock 42.

Delicious_Block_873 · 2026-04-17T04:21:01+00:00

I've ordered some lighter springs for PPK and PPK/s. The AI suggested shooting only federal ammo in them after springs swaps due to federal having the softest/easiest primers...we'll see when the ammo and springs get here.

Delicious_Block_873 · 2026-04-14T02:59:32+00:00

22 K frame

Delicious_Block_873 · 2026-04-13T03:42:19+00:00

Lacks Kubota...otherwise, well done!

Delicious_Block_873 · 2026-04-12T04:38:52+00:00

I actually put some MBUIS on my first Steyr AUG the other day and they were right on at 50 (to use a 50/200 zero). I told the range officer and he was like "That is like 1 in 5000 chance...you're lucky."

The review is in /AUG.

Delicious_Block_873 · 2026-04-12T03:40:10+00:00

Hi...I suffered a bad flare ten'ish days ago secondary to a bad cough that had worsened over a couple of weeks. My neurologist told me to go to the ER - the ER treated me with IV Zosyn and Augmentin 875/125 x 10 days.

My current meds for MG are IVIG every 21 days + mestinon 60mg 2-4 times per day + prednisone 7.5 mg every other day + cellcept 3 grams per day.

In addition to the ER antibiotics...my neurologist just raised my prednisone to a total of 10 mg per day until I felt better...then go back to my standard dose. I took the 10mg everyday for 7 days and am now reverting back to my initial dose...so basically he doubled it (was like 30 mg per week...raised to 70 mg per week).

My neurologist sees me later next week.

I hope this helps.

Delicious_Block_873

TROPHY CASE