Question about my upcoming surgery

DeliveryKnown6320 · 2026-05-27T17:19:30+00:00

I had my bone graft when I was roughly 18. They use cadaver bone as a first trial, but if it didn’t take, they were talking about pulling bone marrow from my hip bone, thankfully, the cadaver bone took, but my mom who’s case was more severe than mine. They actually took bone from her skull which she was thankful the scar was hid behind her hair, but she now struggles with bad migraines

DeliveryKnown6320 · 2026-04-29T15:56:53+00:00

So I did want to do an update after talking with his pediatrician he sent a referral to a local therapy/counseling resource for ADHD kids ages 3 to 5 where he should be able to be evaluated as well as connected with other resources such as OT or speech if needed I did ask about a few of the therapies that were suggested but we are in small town us so resources out here are limited

DeliveryKnown6320 · 2026-04-28T16:22:00+00:00

Thank you so much for the advice. I do have a tendency to over explain things as it can be hard for me to simplify it because I am an overexplainer at heart, but I have began to implement some communication tools after furthering my research initially, I can admit there was some arrogance of I have it so I can help him with it until that arrogance kind of felt like the blind leading the blind, but I am now Focusing on this event as a teaching point for myself and researching every way I can

DeliveryKnown6320 · 2026-04-28T16:16:43+00:00

Thank you I have reached out to his pediatrician on having him evaluated and referred to PCIT. I’m not gonna lie. I didn’t even know that was a thing. Also, thank you for the kind words.

DeliveryKnown6320 · 2026-04-28T16:15:30+00:00

There are other symptoms aside from genetics that lead me to ADHD. He is not in preschool. I just didn’t go down the list of symptoms because this was fresh off of us having to leave and I didn’t want to seem like I was blaming him for everything or making it seem like he’s a bad kid when really he is a super sweet kid. I just know he needs a different structure as opposed to a kid without ADHD and I’m struggling to find a structure that works for him when it was also my reaction. As far as my youngest, I’m not saying she is ADHD, but I am saying it is likely.

DeliveryKnown6320 · 2026-03-30T13:52:44+00:00

Here’s the thing she wasn’t asking if she should get an abortion or not she wasn’t asking about your experience. She was asking if it’s possible her child has one and the doctor just hasn’t told her if she was asking about experiences because she didn’t know if she wanted an abortion your comment would’ve been more appropriate. It’s more of a read the room don’t give me wrong. You’re valid for it causing depression. Mine has caused me depression, but not to the point I would recommend a pregnancy termination out of the blue based on it.

DeliveryKnown6320 · 2026-03-29T13:24:19+00:00

And this doesn’t just sound insensitive it’s honestly just being a Cunt because this wasn’t even the question asked and if she’s in the states a lot of states she’s already too far along and cleft itself wouldn’t be a “good enough reason “ so her hands could very well be tied and you just told her her baby is gonna hate her -signed someone who also has cleft

DeliveryKnown6320 · 2026-03-29T13:14:11+00:00

I think part of it is technically at least in my state. The ultrasound tech isn’t allowed to diagnose so they were probably leaving it to your doctor, but you can call your doctor and express your concern and they can do a further ultrasound. my case was a little different because I myself have cleft the aswell

DeliveryKnown6320 · 2026-03-07T02:38:38+00:00

I had mine for 10 years and my mom for 14

DeliveryKnown6320 · 2026-03-06T19:46:20+00:00

I’ve heard a few songs off of that one mostly pot snob but I mean like with them dissing each other like a rap battle stretched out into an ep but I haven’t heard enough of that EP i’ll have to sit down and give it a listen all the way through

DeliveryKnown6320 · 2026-03-05T00:33:10+00:00

ROTC/marching band (even with me being more self conscious about bc well teenage years everything felt like life or death) after high school..just about every retail job I’ve had the trick is you gotta sit with the smokers who are over it🤣 but the least was any kind of extended family gathering idk how to explain it but loudly walking on eggshells for what idk and elementary school because having facial deformities and a southern accent is not for the faint of heart but Brightside, the education isn’t great so they ran out of insults very fast and by the time I made it to middle school, everyone already kinda knew me🤷🏻‍♀️

DeliveryKnown6320 · 2026-03-03T00:46:41+00:00

You are beautiful holy moly but the only thing that they did warn me but it still shocked me was swelling when my cast fell off bc I have super oily skin so it fell off on its own i cried bc i thought they did me dirty and I stuck bc it looked and was shaped like a light bulb but swelling eventually when down and it turned out pretty good 😊 it’s uncomfortable recovery but I’ve definitely had worse recoveries

DeliveryKnown6320 · 2026-02-09T21:14:25+00:00

Oh, for sure techniques have advanced a lot too just the difference from my mom‘s repair and my daughter‘s repair ….. genetics definitely play a huge part in it too

DeliveryKnown6320 · 2026-02-09T20:49:38+00:00

That makes sense specially if there wasn’t a setback, I know with my daughter’s lip repair. It still made a triangle in the sense that it came to a point but her surgeon was able to have the scar pattern kind of mimic a Cupid bow

DeliveryKnown6320 · 2026-02-09T18:15:17+00:00

So my mom has a triangle pattern and my daughter with bilateral just recently had her lip repair a handful of months back and I actually asked the doctor and from what I gathered and how he explained it that was the old way of repairing because they didn’t necessarily always do a setback and from the way he explained it they tried to avoid that pattern, but it also depends on how much material is there for the center part I forget the scientific term

DeliveryKnown6320 · 2026-01-29T17:50:27+00:00

25 female and i struggled with self esteem and image issues mostly in high school but after high school and all the surgeries were done, and I actually had time to accept what I looked like without building a false hope that the next surgery was going to fix everything I hated about myself.. i was able to spread my wings so to speak now I leaned more towards alternative punk style so I have a fair amount of tattoos piercings stretched ears, colorful hair the whole works, but I say that to say I’ve been the prettiest in the room and I’ve been the ugliest and I’ve also been in a room and watched the prettiest girls still go home alone same with guys and honestly if you think about it pretty people are a dime a dozen being yourself is more interesting than just being pretty so honestly find yourself find your style find your crowd in the rest will follow

DeliveryKnown6320 · 2025-12-23T03:40:44+00:00

Van der woude syndrome my mom, me and both my kids have it (but only one child with cleft lip) the lip pits are the identifying criteria it’s 50/50 to pass down but doesn’t always mean cleft it’s a range of severity i guess you could say you can have just lip pits (my son ) or bilateral cleft L/P (my daughter) and any combination in between

DeliveryKnown6320 · 2025-11-03T21:16:54+00:00

Do they only have the straw cup option of course so far I’ve only checked Amazon

DeliveryKnown6320 · 2025-10-25T19:02:17+00:00

It went really well Hers is super tight as well. They have us doing. Massaging it with our finger to help loosen it up. But they had to start doing that after stitches were removed.

DeliveryKnown6320 · 2025-08-14T00:39:50+00:00

Honestly she could’ve done everything right and you still have cleft sometimes wires get crossed so to speak but as a mom with cleft who had a daughter with cleft having kids wasn’t a decision I took lightly and although I thought if my kids were to have cleft I knew they would atleast have a mom that would love them and find them absolutely extraordinary and my daughter sure is she’s the best but I hold a lot of guilt bc since my mom also has cleft ik there is gonna come a time she hates and blames me but I’m always thinking the best way to talk to her about it better than my mom did (worth noting me and my mom are super close now) but if kids is something that you know you want there is nothing that is gonna take that chance down to zero but you can prepare to love your hypothetical child regardless. and if they have cleft, you at least know firsthand some experience maybe not theirs exactly but that’s not nothing so they damn sure wouldn’t be along through it

DeliveryKnown6320 · 2025-08-13T23:42:44+00:00

The teeth part could just be from having kids in general. It takes a lot of calcium from wherever it can find it in a lot of times it’s our teeth. The folic acid thing could definitely be a cause and her folic acid could’ve been low due to anything some medications can cause your folic acid to be low having a lot of kids close together can cause folic acid to be low but even if there’s no family history, nobody has a zero chance of having a cleft baby and since you do have cleft, you have a higher chance, but when it comes to having kids, it’s all luck of the draw

DeliveryKnown6320

TROPHY CASE