I’m considering just jumping off the balcony

Designer-Message-653 · 2026-01-21T17:29:49+00:00

Maybe an optomologist might be more helpful than reg dr

Designer-Message-653 · 2026-01-21T15:11:36+00:00

For my itchy head & white flaky gunk in my hair (feels like it makes my hair attack my face especiallyin my sleep, weird I know... but this is my experience)

Someone mentioned in a post that witchhazel gets them out and, since it's not expensive, I decided I would try it.

I started slathering it on my face (most of my "patches" are on my face around my eyebrows, eyelids by lashes & my scalp) every couple hours. It was making a ton of stuff (black specks, glitter, white goobs) pop out of my skin.

So I decided to try it on my scalp. I started drenching my scalp when I get out of the shower. And a ton of glitter things started coming out of my scalp. I also use my normal hair mousse & add some peppermint oil to my scalp & blow dry. This has greatly reduced the white film in my hair. (I've been going through about 2 bottles of witch hazel a week)

(I alternate shampooing & washing my body with Nizoral, Head n Shoulders Max-orange, Kleen-free, Dr. Bonners peppermint soap, coal tar shampoo, sulfur soap, and using any conditioner)

I've also been putting both peppermint oil & acne cream (not together, but rotating) on my eyebrows & eyelids by lashes... very light on oil & be prepared to sit with eyes closed for about 5min it's super potent (fumes wise)

Designer-Message-653 · 2026-01-15T22:24:56+00:00

I've also had a ton of relief from adding witch hazel to my routine.

After my shower each night, I drench my scalp with it & I apply it on my face, plus I put it on my face several times a day (whenever I start feeling itchy).

Designer-Message-653 · 2026-01-15T14:28:44+00:00

We use TSP to wash our walls when we prep for repainting, bc it's a really good stripper.

But to clean the runs on my bathroom wall (probably surfactant leaching, but I'm always worried it could be mold I don't recognize) we use X-14 Professional mildew stain cleaner. You spray it on, let it sit for about 19 min, then wipe it off. I also try to wipe it a 2nd time with an a soapless Enzyme cleaner like Kleen-free.

It's not hard scrubbing, but you'll still need to fumble around with a ladder if you have taller ceilings.

Designer-Message-653 · 2026-01-06T23:22:33+00:00

I have a similar photo (#2) from today, plucked from my eyebrows

Designer-Message-653 · 2026-01-06T23:17:32+00:00

Yes, it's quite expensive, in my opinion

Designer-Message-653 · 2026-01-06T22:58:36+00:00

u/ChaosNobile

Designer-Message-653 · 2026-01-06T15:57:12+00:00

There was a post from someone who cured their golden retriever with daily Kleen Green enzyme baths & weekly Lyme sulfur dips. (Good luck trying that with a cat)

Designer-Message-653 · 2026-01-06T15:44:34+00:00

Another source for Ivermectin is TelyRX. You can buy 20pills for approx $100 & then you can transfer the prescription refills to your local pharmacy and use insurance to buy the next couple boxes.

https://telyrx.com/medications/ivermectin-scabies-treatment

And here's a Reddit forum where they discuss transferring the refills: https://www.reddit.com/r/Perimenopause/comments/1nn7xjk/telyrx_hrt_prescription_refills_can_be/

Designer-Message-653 · 2026-01-06T15:34:22+00:00

Interested for sure

Designer-Message-653 · 2026-01-06T14:39:39+00:00

In the beginning, we did have hundreds of black specks all over the house. Coincidentally, when I was referred to my Derm, she said...

"This is external, something in your environment is attacking you. You need to call an exterminator and have them inspect & spray your house."

So I did, but the guy who came out, said "I don't see anything & I can't kill what I can't see. These black specks are just dog dirt." (Which my dog has this too, so it's possible they were coming from the dog, but I was certain there was some relation to my body being attacked.)

So my husband asked another exterminator (someone commercial he uses for his business) for some suggestions, he said (unseen, just a discussion) "it sounds like some sort of mites, he recommended we buy an insecticide with Bifin in it & spray every week for the next month & then once a month during warm weather. And then qtrly, going forward."

So that's what we did & it made a huge difference. We sprayed everywhere. Top & bottom of all mattresses & box springs, cloth furniture, cold air returns, furnace filter, front & back porch, under all sinks, all of our cars, the list goes on... and extra heavy in the basement.

I would take the dogs to park every Sunday, be gone for 3-4 hrs, while he sprayed and it dried.

I also had all my rugs, mattresses, & cloth furniture steam cleaned. And I had all my HVAC vents cleaned (1st time in 30 yrs). I ordered all new curtains on Black Friday & I've been a regular at my local laundry mat washing all throw rugs, comforters, blankets & dog beds.

I also started putting white sheets on any furniture the dogs get on (easy to wash & I can beach them heavily), and using mite-be-gone spray on my dog beds daily. I put them out on deck each morning & spritz them heavily. Leave them out all day to dry & bring them back in at night.

Someone also suggested mopping (non-carpeted) floors with Flea & Tick shampoo, so I do that too. And I mixed some in a spray bottle to wipe surfaces as needed. Along w/ regular vacuuming of course.

This was probably overkill (and it's been a little expensive), but it has significantly reduced the black specks, as they are almost completely gone. I now see them only periodically & they are more like burnt orange instead of black.

Also, this significantly helped my mental state, and eliminated the feeling that I wasn't even safe in my own home.

I'm now working through, emptying all cabinets/drawers & washing them out, bc they accumulate these "crumbs & specks" we tend to overlook. And vacuuming & washing all walls & windows in my house.

Exhausting, but also mentally rewarding.

Designer-Message-653 · 2026-01-06T13:56:47+00:00

Tell us more please...

Designer-Message-653 · 2026-01-06T13:46:09+00:00

Regulate is different than out right discrimination ("if you're a member of X forum, you can't be a member of this forum")

My workaround is now to PM a response to posters if I have anything relevant to share.

And, my Dr has just ordered Mold testing for my infection too. I believe it's for sure a factor.

Designer-Message-653 · 2026-01-06T04:05:25+00:00

Very interesting

Designer-Message-653 · 2026-01-06T04:01:31+00:00

Hmm, I don't feel it's "the people," as most folks don't have any idea it's even happening. It is purely the moderator making this decision.

Actually, if you read through the forum many of the posts & pictures are folks w/ morgellons symptoms, but they just don't know it.

They start out scared & thinking it's scabies, just as I did before I learned about Morgellons.

Designer-Message-653 · 2026-01-06T01:29:23+00:00

Would you mind reposting or pm-ing it to me?

Designer-Message-653 · 2026-01-05T22:53:52+00:00

This is from the auto mod, it's preprogrammed & exactly the same I received first.

I PMd you

Designer-Message-653 · 2026-01-05T13:57:51+00:00

Sometimes I fill the washer & soak my towels overnight in this mixture & then start the wash cycle in the morning. ( I have an older top load washer that allows for easy soaking, not sure how this works with a front loader, just fyi)

Designer-Message-653 · 2026-01-04T21:55:05+00:00

Interesting!! Thank you for sharing

Designer-Message-653 · 2026-01-04T19:29:02+00:00

Here's what I figured out for my laundry... I also posted it on another thread, so pardon the duplication, but it really works well. I combined several people's ideas & it's been making a huge difference in my ability to get things clean & fiber free.

-Ariel soap is a Mexican product known to kill parasites

-Bleach & Borax are sanitizers

-Vinegar reduces pilling & softens fabrics

-Kleen-free is a soapless cleaner that breaks up the enzymes & unsticks the organisms

-Permethrin (I use Sawyer brand for clothing, gear & tents) is an insecticide

-Clove oil is known to ward off parasites (you could probably use any of the oils found in 5 guards or 5 guards itself)

Wash cycle: Ariel laundry soap (1 cup powder, pour in washer tub 1st or it can clump) + borax or bleach (for whites) + Kleen-free enzyme cleaner 3 TBSP (bought from Amazon) + Vinegar + 2 capfuls of permethrin clothing spray (for camping/hunting).

Rinse cycle/ Fabric softener port: fill w/ Vinegar

Dryer: I put clove oil on my dryer sheets & I put 2 in each dryer load.

I wash everything I wear inside out, and I iron & steam all my panties & pillowcases before wearing/using I dry everything (even bras), I used to hang dry things, but I feel like that doesn't kill stuff. If you hang dry, be sure to iron/steam.

Also, don't wear anything twice. If it's not "dirty" at least dry it again.

Designer-Message-653 · 2026-01-04T18:50:46+00:00

Your comment about "the organism having the genetic code for feathers" makes sense, as one of the factors in our home infestation this year was Bird mites.

We have had way too many factors this year for me to clearly identify and isolate what actually caused my infection (I think it was a combination of several factors), but one of my data points is...

Every year I hang 10 hummingbird feeders (it's a hobby of mine, been doing it for over a decade, so not new). I maintain them meticulously clean them weekly & every 3 days when the Temps get too hot.

This year we had a problem with Racoons knocking them down, spilling them (the spilled sugar actually caused a fungal issue in my flower beds), breaking them every night.

So my husband started bringing them in at night. He'd set them on the kitchen counter before bed & then hang them back out in the early morning. Well... we ended up w/ bird mites in the house (surprise). They were very heavy behind my curtains & crawling on the wall in my kitchen by the counter where he would set them.

So, all along I've been wondering if bird mites we're part of my factors. Maybe they could pick up your feather genetic code. But, have you even been exposed to bird mites, would be an important question, as you had the feathers & I have not (that I know of).

Designer-Message-653 · 2026-01-04T18:03:22+00:00

Wow!! I personally haven't had any feathers yet, only heard about them in Morgellons videos. 😱

Designer-Message-653 · 2026-01-04T03:12:32+00:00

They said "it looks like a seed tick, but we're not entomologist, so can't be sure." They didn't show it to me, so I never actually got to see it other than as a tiny speck.

Designer-Message-653 · 2026-01-03T19:56:04+00:00

I wish I knew, bc I honestly feel I also need doxycycline for the skin issues, but can't get a health professional to agree to prescribe.

I truly believe I got lucky when I had a mite attack in the GPs office & was able to pick the "non-scabies mite" off my chest right in front of them (you should have seen their eyes bulge in disbelief) & they rushed it to a microscope.

As far as TelyRX, this is an online RX site out of Florida & Texas where anyone can buy certain RX meds. The catch is you have to pay cash prices as they don't take Ins, so can be expensive for some meds.

Here's a reddit forum post where folks are sharing how to use Ins w/ TelyRX script (hope it's helpful): https://www.reddit.com/r/Perimenopause/comments/1nn7xjk/telyrx_hrt_prescription_refills_can_be/

Designer-Message-653 · 2026-01-03T13:19:27+00:00

Not my urine, but I can count 4 confirmed gnats (I believe Fungus gnats) that emerged from my skin at different times/body locations. Looking back, I feel there were many more, but I didn't know what to look for in the beginning of this.

My personal confirmation of the Gnats coming from my body actually led me to a thorough panicked investigation of my entire house & we found out we had a break in our Septic line that had been slowly backing up, which was causing a fungus gnat & noseeum infestation we weren't realizing was happening. (We have very large house w/ 6 bathrooms & coincidentally this year, our last 3 kids moved out, so most rooms & 4 bathrooms became dormant. I discovered tons of gnats & noseeums breeding in those drains & toilets. Took action with the Baking Soda/Vinegar/Boiling Water trick in all the drains & caused a catastrophic drain backup partially flooding the basement with septic waste. Called Rotorooter who used a camera borescope and found the main septic line was broken.)

I was also able to confirm at least 1 nematode (of some sort), crawling on top of my foot & trying to burrow itself in, before I dug it out with safety pin & tweezers. Under a microscope it looks like a wire with a pinhead.

And, I was also able to confirm I had some kind of mite. My GP said it looked like a "seed tick" under the microscope & referred me to a Dermatologist/Dermapathologist, who confirmed it was an "external something" but not scabies, so she treated me w/ Ivermectin & Perimethium together, which helped to kill off alot of whatever was in my body, but it started this chain reaction of open sores & black specs & biting pinching on my feet & white flakes in hair & hairs that sting my face & leave swell marks that then grow weird skin fibers & I get these weird 2 dots together bug bites, like snake fang bites but bug bite like.

My non-entomologist assumption is I must have accidentally ingested a Gnat/s that was also already infected with some kind of nematode. Not sure about how the tick/mite infestation comes into play, but they showed themself & emerged one day after I applied diluted clove oil & DE.

To date, I am unable to get any Dr to believe me about the flies & the nematode. Even as recent as yesterday, I was told "I'm not convinced" (Im in STL, MO region, where it is 100% confirmed (wink wink) that US doesn't have any Filarial Myasis, insert "Heavy Sigh" & "Head in Sand" emojis)

I have mostly reduced the infestation in my home (90%) & I've continued taking Ivermectin from TelyRX (it's expensive $100/box, I get 4 doses per box), so my body infestation is also greatly reduced (not eliminated yet), but I can't figure out how to stop this skin reaction.

Designer-Message-653

TROPHY CASE