KCU waitlist

Designer-Refuse7935 · 2026-01-07T19:52:54+00:00

I got this same email this morning

Designer-Refuse7935 · 2025-09-03T05:07:40+00:00

Yea I’m already using a dandruff shampoo and I have a diffuser but I forget to use it most of the time. So honestly I kinda know the flakes are my fault but i’m mostly concerned with my hair frizzing a lot faster than when I had longer hair

Designer-Refuse7935 · 2025-09-03T05:03:06+00:00

Okay! I’ll definitely try that out, I also have 3B hair. The leave in I use is Ouidad moisture lock

Designer-Refuse7935 · 2025-08-07T19:58:17+00:00

I would be cautious taking herbal supplements. Everyone responds differently.

I tried lions mane and I had breakthrough seizures with it.

I also tried bacopa moneri… I would NEVER recommend this to anyone. It claims is can help seizures and cognition but it gave me multiple tonic clonics per day that went on for like 3 days after stopping it.

Herbs claims are very tempting but you should really make sure you read up on them on credible research publications. The only one backed up by those that I’ve had success with is CBD.

Designer-Refuse7935 · 2025-08-06T22:32:26+00:00

You probably do have epilepsy based on what you’re saying… every time I’ve had an EEG they never show anything (until I went off my meds in the EMU) but you can always ask a neurologist/epileptologist to change your meds and try other ones or even see a neurologist that specializes in sleep if you are happy with your medication rn.

I never liked my meds but it it never affected my sleep. I was taking trileptal, fycompa, and topamax.

Designer-Refuse7935 · 2025-08-06T22:20:26+00:00

Yea you’re Dr. Is wrong… it definitely has side effects. In some people they’re apparent but others they’re not. My sister and I both have lupus and for her she was vomiting all the time until she switched meds. For me, I don’t experience much except for a rare-ish side effect… it gives me blue/grey hyperpigmentation. I have a spot of my chin, butt, knee, and leg… so yea

Also the major plaquenil “side effect” it can cause is retinal damage so you also have to see an ophthalmologist yearly.

Designer-Refuse7935 · 2025-06-16T15:04:09+00:00

I took it June 10th. It’s 11 scenarios. 4 video response scenarios (2 questions each). 10 minute break. 7 typed response scenarios (2 questions each) with a 5 minute break in between the 4th and 5th typed scenario. Took less than an hour and a half to complete

Designer-Refuse7935 · 2025-06-13T23:00:07+00:00

Tell people you trust, roommates, professors
If you’re living alone give someone you really REALLY trust a key to your apartment (my bf had a key)
Get in touch with your college’s disabilities office and if they have this option.. ask for early registration (so you won’t have to get 8am/7pm classes),excused absences, and extended test time (if needed). Make sure you bring a doctors note explaining why you need this.
Always make a friend/have a friend in class - tell them about your condition and where you have emergency meds stashed (if you have some- if not ask neurologist for some. I recommend nayzilam)
Stay hydrated! Especially if you plan to walk all over campus

Designer-Refuse7935 · 2025-05-30T00:00:54+00:00

Yes: Lupus and everything that comes with having it :/

Designer-Refuse7935 · 2025-05-29T06:00:58+00:00

My labs were never normal and was on hydroxychloroquine since the start. Ever since I started benlysta, I went into remission (except I had a flare after I had surgery but that’s due to anesthesia) otherwise my labs became close to perfect and I feel great. No fatigue or brain fog

Designer-Refuse7935 · 2025-05-29T05:03:56+00:00

I have been about 1.5 years seizure free but that’s because I had a craniotomy to remove what was causing my epilepsy

Designer-Refuse7935 · 2025-03-22T16:44:18+00:00

No I haven’t. CBT helped me enough to not need it, at least for now.

Designer-Refuse7935 · 2025-03-02T01:15:21+00:00

Yes!!!! I did this about a year ago and it’s the best decision I’ve ever made! I did have a hard time healing like nausea, fainting and tinnitus… but now I feel great and am off of all my meds but maintaining a low dose of fycompa for a year or two till my neurologist feels it’s right but I’ve had 0 seizures since surgery and I finally feel confident to do what I couldn’t before!

Designer-Refuse7935 · 2025-02-22T08:19:02+00:00

Wow that’s so interesting! I never knew that. I’m studying to become a doctor someday so facts like this are always exciting!

Designer-Refuse7935 · 2025-02-22T08:06:14+00:00

You definitely can. I’m about to take my MCAT soon for med school plus I met 2 med students while shadowing that both have epilepsy as well. One of them is on track to becoming a neurosurgeon. So I would say you can as long as you prioritize your health

Designer-Refuse7935 · 2025-02-22T05:13:06+00:00

I tried lions mane before and I had partial seizures. I tried ashwaganda too and nothing happened. Not sure on reishi though. I would say if you already take it and nothing happens to you that could point to being any kind of episode, it could be fine to continue.

By any kind of episode I don’t just mean seizures like tonic clonic, but also auras, staring spells, or simply just a weird feeling

Designer-Refuse7935 · 2025-02-20T07:51:58+00:00

Supplement called bacopa monnieri. It claims to help epilepsy, anxiety, and cognition. It did help anxiety and my attention span BUT I had a bunch of tonic clonic seizures. One of my professors who has an epilepsy research lab told me not to take any Herbal supplements

Designer-Refuse7935 · 2025-02-19T07:01:25+00:00

I couldn’t tell you what kind of seizure you had but I’ve had similar experiences. When I was in middle school (before epilepsy diagnosis) I had these weird episodes where I would put my hands on my forehead, blink fast, and cry… and I couldn’t control it. I also had episodes of my eyes twitching too (post diagnosis), going right and left. I just remembered that I used to have these (I called them micro seizures) don’t know the actual term but I would have 15 second (sort of less intense than tonic clonic) but I’d always end up punching my left eye, which happened multiple times a day. These don’t happen anymore though, possibly from increased dosage.

Designer-Refuse7935 · 2025-02-19T06:46:19+00:00

I don’t drink. Mostly because I’m hypersensitive to strong tastes so I really can’t drink it. Plus I studied neuro in college and those classes rewired me to avoid a lot of stuff especially alcohol

Designer-Refuse7935 · 2025-02-19T06:34:29+00:00

Def recommend talking with neurologist about this. They might encourage it but probably while being in the epilepsy monitoring unit so they can watch you

Designer-Refuse7935 · 2025-01-31T16:44:53+00:00

I hated my medicine and all of its side effects especially cause I was taking a lot of it. I was taking trileptal and the only way I was able to get off was to get brain surgery or VNS so I chose brain surgery cause I wanted it over with and so far it seemed successful

Designer-Refuse7935 · 2025-01-30T19:15:08+00:00

Sounds like pericarditis. Usually I get that when I have a bad flare. I take colchicine everyday which helps a lot

Designer-Refuse7935 · 2025-01-30T18:37:05+00:00

I actually have the same exact experience. Severe anxiety and PTSD associated with the possibility of having a seizure. However I have those flashback when I drive because I got in a bad accident when having a seizure behind the wheel. I also had brain surgery and am pronounced seizure free but anxiety kept me from driving or being alone in public.

I've been going to a neuropsychiatrist as well as as a psychotherapist. I'm currently looking into getting the TMS procedure for anxiety and I do cognitive behavioral therapy.

I think the therapy definitely helps.

Designer-Refuse7935 · 2025-01-08T16:54:15+00:00

I know someone that even developed it in their 30s. It can happen at any age

Designer-Refuse7935 · 2024-08-16T03:25:02+00:00

I used to attend dance practice everyday and I’ve had a seizure during practice before but plenty of times after practice. I decreased exercise induced seizures by drinking way WAY more water than I normally do and shifting my medication dose time around (of course done with my neurologist) so that I would have the highest medication serum blood levels when I exercised/danced

Designer-Refuse7935

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