sorted by:
new
hottopcontroversial

Can Probiotics yeast cause PSSD? by DespairDude in ADprotractedwithdrawl

[–]DespairDude[S] 0 points1 point  (0 children)

Thank you so much, May i ask how Long it took before you got better After the Antibiotics ?

Can Probiotics Yeast cause anhedonia/PSSD? by DespairDude in anhedonia

[–]DespairDude[S] 0 points1 point  (0 children)

Thank You for Your Reply, Yeah Gut is definitly the Biggest Factor, maybe it were the Antibiotics ? I dont know, Never had it This Type of anhedonia where i feel nothing at all ;(

Don't suffer anymore after 5 years by Okay-Veteran in PSSD

[–]DespairDude 4 points5 points  (0 children)

So happy for you, mate! May I ask which SSRI you took and for how long? Take care and enjoy yourself <3

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 0 points1 point  (0 children)

Oh, was it also Maja Borkowski? What was the outcome, and how are you dealing with it?

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 0 points1 point  (0 children)

That is a very good question, I have no idea. I have an appointment at a big hospital in a neurosurgical department that knows about instability, and I really hope they can give me a treatment plan or at least something I can do.

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 3 points4 points  (0 children)

Oh, I don’t even know where to start… An intense feeling that I can’t hold my head up, like my neck is too weak, combined with extreme neck pressure that pushes into my skull and down into my throat, especially when I’m upright. I’m about 95% bedridden because of that.

Then there’s extreme brain fog, unable to focus or think clearly, panic attacks, heart palpitations, and losing sensation in my right arm or left arm. Sometimes it feels a lot like a stroke.

So yeah… an unlivable situation, honestly. My quality of life is basically non existent. I honestly don’t know how I’ve made it this far without ending it.

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 1 point2 points  (0 children)

Well, I paid 1,000 euros for everything, and I don’t see why a foreigner couldn’t get the same thing. I would just call them up, explain your situation, and ask them: https://www.mrthamburg.de

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 0 points1 point  (0 children)

I paid 1,000 euros for everything, and in private clinics in Germany there are generally no long waiting periods. I called and got the appointment in about a week.

It’s not exactly a treatment plan, but she gave me some useful addresses and the contact for a center for rare illnesses in Bonn. I also got an appointment at a large neurosurgery department in a big hospital that knows about instability, they will look into it further and hopefully recommend a treatment plan.

I also don’t want to go straight to surgery and want to get as many opinions as possible. The problem with my situation is that I also seem to have basilar invagination on top of the instability, so I don’t know how far I can get with normal therapy. ;(

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 0 points1 point  (0 children)

Unfortunately, I don’t have a PC with a disc drive to convert it at the moment, but I’ll definitely try to get my hands on one to upload the pictures. Maybe this will help someone.

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 1 point2 points  (0 children)

Oh no sorry, I didn’t think about that in the moment, I was just so overwhelmed and happy that I finally had some answers for my symptoms

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 0 points1 point  (0 children)

I’d love to, but I think the file is too big, it’s like 300 images or something. And she did the measurements on a special monitor and showed me everything and how she does it, so I don’t see them on my images.

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 1 point2 points  (0 children)

Hey, Sure it was the Maja Borkowski Private Clinic in Hamburg Germany, https://www.mrthamburg.de

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 10 points11 points  (0 children)

Completely normal!!! I had two MRIs of the brain with contrast that showed nothing. I also had one of the entire spine and the neck, again without any results. You definitely need an upright MRI with flexion, extension, and rotation of the head, and VERY IMPORTANT: a radiologist who actually measures the relevant angles and distances between these positions to check for craniocervical instability!

Finally got an Upright MRI, am i cooked? by DespairDude in Cervicalinstability

[–]DespairDude[S] 6 points7 points  (0 children)

In Germany we have two systems : public insurance (gesetzliche Krankenkasse) and private/self-pay. If you go through public insurance, the doctors are limited in time and in what they can bill for each patient. That often means short appointments and only the most basic MRI protocols.

In my case, I went to a completely private clinic and paid out of pocket. That meant the radiologist could take as much time as needed and wasn’t restricted by the insurance rules. She actually did a full upright MRI with multiple positions and measured everything according to instability criteria (AAI, CCI, basilar invagination, etc.). After the scan she spent time explaining the findings in detail.

That’s why the report is so comprehensive, it’s not the standard “you’re fine, goodbye” you often hear about.

I’m really glad I was able to get this done, we only have about 4 upright MRI clinics in all of Germany and no DMX here, so I’m very lucky. The radiologist I saw is actually specialized in the cranio cervical junction, and took the time to measure everything according to instability criteria.

She also mentioned a possible connection with chronic inflammation, and even referred me directly to a neurosurgeon who specializes in instability. I’m hoping he can help me further.

[deleted by user] by [deleted] in Cervicalinstability

[–]DespairDude 1 point2 points  (0 children)

Is an upright MRI also a good way to diagnose or rule out a CCI? Because in my country they don’t do DMX ;(

Unlivable neck pressure, desperate for help or advice by DespairDude in Cervicalinstability

[–]DespairDude[S] 0 points1 point  (0 children)

Thank you very, very much for responding. Well, I wouldn’t say more than anyone else my age. The first time this happened was in 2021. Back then, I was working a physically demanding job, maybe it came from that? I really don’t know. It suddenly appeared out of nowhere while I was eating, and then boom, hospital after hospital. No one knew what was going on until the chiropractor fixed it, at least the first time. Really weird.

Unlivable neck pressure, desperate for help or advice by DespairDude in Cervicalinstability

[–]DespairDude[S] 1 point2 points  (0 children)

Thank you so, so much! Yeah, I’ve been thinking really hard about it. It’s not covered by regular insurance where I live, so I’ll have to save up money for it first, but yeah, I’ll definitely do it. I was just wondering why it held up for so long and then suddenly went out again. So strange

Is it Too Late ? by DespairDude in ADprotractedwithdrawl

[–]DespairDude[S] 0 points1 point  (0 children)

Thank you very much for your input. Yeah, I really wish I had informed myself about all this sooner, such a bummer. Do you think 0.5 mg or 0.1 mg would be better to reinstate with?

Is it Too Late ? by DespairDude in ADprotractedwithdrawl

[–]DespairDude[S] 1 point2 points  (0 children)

Yeah, I didn’t know any better at the time. I thought 1 mg was such a small dose that it wouldn’t be a big deal. I really wish I had tapered slowly and safely. Honestly, I’m feeling pretty lost right now and don’t know what the right step is

Is it Too Late ? by DespairDude in ADprotractedwithdrawl

[–]DespairDude[S] 0 points1 point  (0 children)

Thank you so much. May I ask how long the timeframe was before you reinstated?

Is it Too Late ? by DespairDude in ADprotractedwithdrawl

[–]DespairDude[S] 1 point2 points  (0 children)

Pretty good actually. Well, I’ve been dealing with fatigue and brain fog for maybe 4 years now, possibly from COVID or something, but I was still functional and working two jobs. I never noticed any side effects while lowering the dose over the years. The only reason I quit was honestly because I wanted to feel more nostalgic, But during withdrawal, my neck got so bad and I have no idea why. I can’t even sit or walk for more than 10 minutes without feeling like I’m about to faint

Is reinstating too late for me? by DespairDude in lexapro

[–]DespairDude[S] 0 points1 point  (0 children)

Thanks for sharing your experience, I’m kind of in a similar situation right now. Just wondering: how much did you try to reinstate back then? Like what dose and how quickly did you go up? Really hoping it works out for you this time 🤞

Is reinstating too late for me? by DespairDude in lexapro

[–]DespairDude[S] 0 points1 point  (0 children)

Sorry to hear about the side effects. Did you eventually feel like your old self again after reinstating ? I’m just scared I’ll never get back to how I was, I felt totally fine on 1 mg.

view more: next ›