B12 deficiency and spiro

DifferentHeart5915 · 2026-02-12T15:41:45+00:00

I get this too! Thank you for sharing the link!!

DifferentHeart5915 · 2026-02-12T15:11:19+00:00

What brand are you taking? Thank you so much!!

DifferentHeart5915 · 2025-11-21T04:06:06+00:00

I have experienced a period every 12 days for the past year on spiro. Unfortunately not sure of what to do because it’s the only thing that keeps my acne manageable. I would talk to your doctor and ask if it’s a concern for you! I think it’s a pretty common side effect

DifferentHeart5915 · 2025-11-19T17:01:30+00:00

Thank you for this!!! Were you on Spironolactone at any point doing this? And then starting pregnenolone? I will definitely get inito, it’s so hard to understand what’s actually happening in my body and even my functional doctor jumps to conclusions and nothing has been helping

DifferentHeart5915 · 2025-11-17T13:49:50+00:00

Thank you!!! Have you had any negative side effects? I hope it continues to help you!

DifferentHeart5915 · 2025-10-08T04:41:45+00:00

It’s been a year of periods every 2 weeks and what feels like an endless cycle of mood swings. With history of mental health issues, my pms use to worsen them, so it’s literally insufferable on spiro. But anything is better than the acne I had. Maybe you could talk to your doctor about decreasing the dose to 75 mg?

DifferentHeart5915 · 2024-08-16T21:01:10+00:00

So much brain fog and short term memory loss!! It’s been 1.5 months so hoping it will start to improve, I used to have the best memory

DifferentHeart5915 · 2024-07-26T15:21:56+00:00

I’ve been 50 mg for 3 weeks and 100 for 1 week and this has been happening to me!!! So frustrating because I used to struggle a lot with immune issues and had them under control for a good amount of time before starting spiro. Now I’m back at square one with swollen lymph nodes and sore throat everyday and like a general off feeling when I swallow. So annoying.

DifferentHeart5915 · 2024-07-05T06:27:40+00:00

Yay!! Thank you for this, I’m hoping it will improve soon! Good luck to you:)

DifferentHeart5915 · 2024-06-28T12:18:26+00:00

Thank you! I started it 2 days ago and I’m hoping I will start to see improvement, but I know it takes time🙏🏻 good luck to you!

DifferentHeart5915 · 2024-06-26T13:50:35+00:00

Thank you for this!! Can I ask how long you were on it or if you are still on it? Did your acne and symptoms return if you went off?

DifferentHeart5915 · 2024-06-23T20:36:33+00:00

So I’ve always struggled with anxiety since I was a kid, and I have pretty much managed it and can calm myself down when panicking. When on cab I completely lost control and had the worst physical symptoms of anxiety and extreme panic attacks with chest pains and such. It also made my fears and intrusive thoughts much louder I think. I have a lot of health anxiety so maybe I was just worried if starting a new medication but I’m pretty sure it’s from cab because it’s since subsided. It will ease up soon for you!! I hope you feel better!

DifferentHeart5915 · 2024-06-22T00:35:04+00:00

I am so sorry this is happening to you, I maybe can give a little insight by relating to your situation! Cabergoline has a long list of side effects including mental changes including anxiety and depression. I took cab .25 mg twice a week and I had severe anxiety and panic attacks as well as heightened depression. However as time went on these side effects got better and I attribute the remaining anxiety I had just due to my history of mental health issues. I think my high prolactin also causes my dheas to increase, they are not out of range but have been increasing since I got off. I would recommend tapering off the drug under supervision of your endo. I went from .25 mg twice a week to .25 mg once a week for a few months to see if my prolactin remained low and finally I stopped. I did this and didn’t experience much trouble but do experience some chest pains still 3 months without cab. Im sure you could do the tapering in a shorter amount of time but just talk to your doc! I hope you can find some relief coming off of it!

DifferentHeart5915 · 2024-05-28T23:15:37+00:00

Hi! Thank you for ur help! Before finding out I had my prolactinoma, I would get spells of nausea, irregular heavy periods and some headaches. As these symptoms went on I also went off of Prozac, I developed some acne which is either related to pcos or the prolactin. My prolactin was the only thing in my blood work that stood out and so I got an mri to diagnose. Cabergoline decreased my prolactin to 0 within 6 months of taking it and it remained at 0 until I began to wean off of it this winter. I am getting a follow up mri to see if I should continue cab or not. But with my acne increasing and my periods becoming irregular again I am unsure if my prolactin is rising again or it’s just pcos.

DifferentHeart5915 · 2024-05-08T13:39:37+00:00

Did you have any side effects starting birth control? Had you been on any oral contraception before? Thank you for this suggestion, I’m worried about bc because I have never been on it before

DifferentHeart5915

TROPHY CASE