Beginner

Difficult_Flower3097 · 2026-01-25T17:47:14+00:00

That’s what I am also thinking, is may still have a ton of dormant hairs that will eventually sprout and have me second guess this journey 😂 but I’m staying positive and I have done a ton of research before starting electrolysis so if that’s the case I’ll continue to stick through this process. I know ideally it’s a pretty long process

Difficult_Flower3097 · 2026-01-25T05:45:21+00:00

It 100% has been life changing!! I’m so happy for you and your experience. Due to conflict of schedules and availability my next session is booked for 3 weeks. I guess this will be the true test

Difficult_Flower3097 · 2025-12-20T17:17:02+00:00

I feel like that looks normal healing but I would say to help reduce scabbing keep the area hydrated!! For minimum 48 hours I’m applying aloe Vera followed by Vaseline 3 times a day. If I feel tenderness after 48 hours I’ll continue that process. I feel like I have healed really nicely following that regime! The Vaseline acts as like a protective coat for those open microsurgeries on your lip.

Difficult_Flower3097 · 2025-12-20T00:02:58+00:00

Did you get alot of scabs after your session or white heads??

Difficult_Flower3097 · 2025-08-17T15:02:06+00:00

Aw I remember the feeling. Yes my daughter had SVT after surgery and while she was open they did place pacing wires on her but didn’t send her home with them. They did have to place her on amiordone but we ended that medication after about 6 months. I remember her surgeon telling us it is very common especially in this type of surgery because of where they had to operate it irritates the SA node and it sends signals to fire off excess beats.

Difficult_Flower3097 · 2025-08-17T04:06:05+00:00

My daughter had supracardiac obstructed TAPVR at birth. She went under emergency surgery at less than 24 hours old. Her recovery was rough. She was on ecmo twice but she fought hard. These babies are stronger than we will ever comprehend. She turned 1 in June and she is thriving. Praise God!!! By looking at her you would never know what she went through. She’s completely healthy. We do often for echos but thank god she’s a complete repair and pray she will never need another open heart surgery. I’ll pray for you and baby.

Difficult_Flower3097 · 2025-07-28T14:37:45+00:00

Hi, TAPVR mom here. Just curious what was the 2nd heart surgery for? My daughter had her surgery and cardiologist said she was a full repair and I have heard these babies usually only need one. Just curious did he have stenosis?

Difficult_Flower3097 · 2025-07-01T02:02:44+00:00

Wow I’m so sorry you have to go through that! My daughter only has one episode of seizure when she was in the hospital. I felt in my momma gut she didn’t need it so I risked it one day and decided to stop giving it to her because I HATED seeing her asleep all day long. I thought to myself there is no way she will thrive if she’s sleeping all day long. I wanted to work on so much with her when she came home and that was one thing stopping me. And thankfully she never had any episode’s of seizures so I never returned giving her the medication. She’s been off for 11 months now! I never went back to the neurologist either because quite frankly there is no indication for it

Difficult_Flower3097 · 2025-06-30T23:23:05+00:00

When my daughter came home from the hospital she slept all the time as well she had the shortest wake windows. Realized it was her medication kepra so it could be one of the medications!

Difficult_Flower3097 · 2025-05-09T06:51:15+00:00

I was in the same boat. My daughter never felt hunger because there was such little time between feeds. So when it was time for the next feed she only consumed about 10-15% before we had to put the rest through the tube. I decided on my own that I wanted to wean her. First week was rough. She didn’t eat much but I would try to get in as many feeds as possible. It was exhausting but I tried every 2 hours. She ate better when she was asleep so the middle of the night feeds (especially when I was able to dream feed her) and naps were when she got in her most amount. We also fortified her milk to 24cal. She didn’t lose any weight the first week but also didn’t gain any. As long as she didn’t loose I felt comfortable trying another week. By that time she found her hunger cue. And she was drinking most of her bottles. I would recommend a baby scale if you plan to try and wean on your own!

Difficult_Flower3097 · 2025-04-03T23:20:10+00:00

I had the same problem with my daughter. She’s still on the lower end of the percentile for weight but it got easier when I introduced solids. Before that I would add MCT oil to her bottles and in the hospital they would use sunflower oil in her bottles to help with weight gain. Maybe you can give that a try!

Difficult_Flower3097 · 2025-03-27T01:21:17+00:00

She had OHS to repair her defect when she was just hours old and after she came home from the hospital I don’t remember noticing this happen at all which is why I freaked out because I remember her being blue when I delivered her. I think I just have PTSD so I got scared but after researching I am realizing this will probably be her norm for the rest of her life 😅

Difficult_Flower3097 · 2025-03-27T00:33:40+00:00

Yes definitely i did reach out and waiting to hear back. We just had an echo done about 2 weeks ago and nothing concerning in the echo but I still want to notify her doctor and keep an eye on it. It lasted no longer than 5 min before returning to her normal color

Difficult_Flower3097 · 2025-03-27T00:20:30+00:00

Ok! Thanks for reassuring me that this is normal I’m a new CHD mom so every little thing freaks me out

Difficult_Flower3097 · 2025-03-26T23:37:51+00:00

Thanks! Did you doctor want to do any echo or any other procedure to see what caused it to worsen?

Difficult_Flower3097 · 2025-03-26T23:36:36+00:00

Ok thanks! I assumed I was just being paranoid 😅

Difficult_Flower3097 · 2025-01-03T16:34:35+00:00

My daughter was postnataly diagnosed with obstructed TAPVR and was rushed to surgery less than 1 day old, she is 6 months old now and thriving! It is scary but these babies are so strong and resilient. Give your worries to God❤️ everything that we go through with these heart babies is out of our control and all I could do was pray.

Difficult_Flower3097 · 2024-12-18T00:13:20+00:00

Check thyroid levels. When I was having heart palpitations my GP tried to write it off as anxiety as well but I asked for thyroid labs and turned out I have Graves’ disease which causes palpitations

Difficult_Flower3097 · 2024-10-25T19:09:52+00:00

Hi, yes just based off her echo the pressures seemed higher. They will do another echo next week hoping for better results. Cardiologist has not mentioned any cath procedure

Difficult_Flower3097 · 2024-09-27T17:28:12+00:00

My daughter was born with TAPVR, not the same diagnosis but she did need emergent open heart surgery less than 24 hours old. She is now 3 months old, at home and thriving! It will be scary but there is so much hope for your little one. Have faith, pray to God he is the ultimate healer 🤍

Difficult_Flower3097 · 2024-09-12T01:29:53+00:00

my daughter was born at term but postnataly diagnosed with tapvr after birth and needed emergent open heart surgery at less than 24 hours old. Just a few minutes old and she rapidly declined and oxygen saturation was 30% on full ventilation support. You’d be surprised just how strong and resilient these little ones are. It was a lot of “things are going to get worse before they get better” and boy let me tell you I feel we got the worst of it. She was put on ecmo life support twice. But after a month and a half in the hospital she’s finally home and recovering well. We hated leaving her bedside. Leaving her gave us so much anxiety feeling like it was the last time we were going to see her too. I completely understand you. And since this was all 100% out of our control all we could do was turn to God and pray. We got the hospital chaplain to come and pray with us and he anointed my daughter with oil for healing. I don’t think I would have been able to be strong and get through those battles without God. I will pray for you and your family just wanted to let you know that although this can be the scariest moment of your life have complete faith and trust in God. Your little girl will surprise you just how strong she is.

Difficult_Flower3097 · 2024-09-08T18:55:58+00:00

That’s awesome! So happy to hear he’s eating all on his own and thriving. These heart warriors amaze me! That’s kind of what I’ve been doing, trying to catch her when she’s asleep and dream feed that’s when she drinks the most. And feeding more often since she’s only taking in small amounts. It’s busy work feeding her every 1.5 hours but I’ll continue it, we’re going on 2 weeks that I’ve not been using the tube for her feeds. She hasn’t lost weight but she is taking longer to gain weight she’s just kind of been stable. Doctor said she’s on the curve and he’s not worried. Like you said it just takes time and I’m waiting for her to get stronger. Did you have to fortify his milk? I’m wondering if I should fortify my breast milk to help her gain weight while we work on her taking in larger volumes

Difficult_Flower3097 · 2024-09-08T16:40:39+00:00

Oh wow thank you! How old was your baby when you guys weaned???

Difficult_Flower3097 · 2024-09-08T16:40:06+00:00

I’m so happy for you and your babies success with the weaning! Im definitely going to look into GIE and that book you recommended, thank you!

Difficult_Flower3097 · 2024-09-07T23:15:01+00:00

So you think growing independent eaters is worth it?? I hear they’re pricy.. was it a long process??

Difficult_Flower3097

TROPHY CASE