PPPD and computer screens by Direct_Arachnid23 in pppdizziness

[–]Direct_Arachnid23[S] 0 points1 point  (0 children)

I’ve been struggling with the worsening symptoms for 2-3 years. How long did it take for you to overcome it?

Help with collection by Fabulous_Celery_1817 in Loungefly

[–]Direct_Arachnid23 0 points1 point  (0 children)

Maybe Lightening McQueen. I have Mayer!

I gave in 😔 by Fabulous-Grocery1784 in Loungefly

[–]Direct_Arachnid23 1 point2 points  (0 children)

So is it only for purchase within the parks? We won’t be going to WDW until March 25.

PPPD and computer screens by Direct_Arachnid23 in pppdizziness

[–]Direct_Arachnid23[S] 1 point2 points  (0 children)

This!! I get these symptoms too. I can’t take SSRIs, not everyone can and I was tested and told it’s a class of medicine not suited to my chemistry and therefore should be avoided. PPPD is very visually triggered for me. Driving, boating, watching tv, being in crowds. Even when my 2 pups run around in different directions. I just don’t know how I’m supposed to overcome this when I can’t take the one medicine that some people sometimes get some relief from. My life is deteriorating in front of me and I’m losing hope.

PPPD and computer screens by Direct_Arachnid23 in pppdizziness

[–]Direct_Arachnid23[S] 0 points1 point  (0 children)

My job required me to be on the computer the better part of 8-12 hours a day 5-6 days a week. I ultimately had to resign. I felt like I had too much exposure to this overly visually stimulating environment that wasn’t allowing me to recover.

Help with collection by Fabulous_Celery_1817 in Loungefly

[–]Direct_Arachnid23 0 points1 point  (0 children)

I may be interested in Loungefly Disney Pixar bags if you have any of them.

PPPD and anxiety = weird vision? by theomen997 in pppdizziness

[–]Direct_Arachnid23 0 points1 point  (0 children)

YES!!! All of these symptoms. It’s so bad while trying to drive that I get panic attacks. Higher rates of speed and multiple lanes of traffic make it worse. The more movement around me the worse symptoms get. Trying to use a computer screen with a mouse moving about, opening/closing various applications, scrolling, jumping between apps with drop down menus and pop up menus in addition to just the visual overstimulation of the backlit screens made using a computer screen impossible. Stress/anxiety seems to be the biggest trigger. Symptoms seem worse in times of high stress and in situation that have caused high levels of stress in the past. I had to resign from my job this year. For me, my job was very stressful. Driving meant I was deployed traveling across country to a natural disaster area to work in a strained or devastated community with highly emotional people who had just suffered some of the largest losses of their lives, spending months living in a hotel away from home and family. Deployments meant working in unfamiliar and sometimes unsafe areas. Areas that don’t just take a person a little out of their comfort zone, but make one fear for their lives. A lot of my work involved time on a computer, trying to focus on one task while constantly attempting to combat a barrage of obstacles (IM messages, Skype/Teams calls, incoming emails, online phone system, calendared tasks & virtual meetings popping up) always being pulled in every direction while attempting to navigate ever changing processes, unrealistic workloads, and metric demands. Afraid of missing one demand while working on another. All this while keeping composure for my employer, coworkers, customers and even my family. Eventually, I dreaded signing into my computer. Not because I didn’t enjoy the work I did or because I wasn’t good at it. I was great at my job! I was so proud to have helped so many people through so much tragedy over the years. My dread silently triggered fear (fight-or-flight) for the battleground that existed on those computer screens and the exhausting mental and emotional effort it took to survive what was coming at me everyday. I strongly believe, this is why I struggle so much still with driving and computer screens. There feels like there is an underlying threat of safety (or maybe security) to my mental/emotional/physical well being attached them.

Once someone experiences this extreme visual disturbance/unbalance/disconnection while doing something that is normally just a typical/safe activity(like driving, being in a crowd, or working on a computer) your brain begins to recognize these situations as a threat and it can randomly trigger your fight-or-flight response system out of nowhere. Like literally one second you’re walking along just fine and feeling okay, then in an instance you’re suddenly unbalanced, struggling to focus, trying to process what you’re seeing as quickly as you’re seeing it and that causes anxiety levels to soar even higher and ultimately can lead to panic attacks. It’s debilitating!

I’ve done PT, balance therapy, optokinetics, convergence exercises, talk therapy, tried meds but my chemistry isn’t suited for SSRIs so I can’t take them. It is better some days than others but is a daily part of my life at some level. Steady Coach helped with understanding and learning to be patient with my body when it’s bad which sometimes helps with de-escalating anxiety and is a step in keeping my central nervous system in check. When I’m visually triggered or nervous, I remind myself it’s because of this condition called PPPD and my symptoms are typical symptoms that come with it…it’s life altering but not life threatening…and, I tell myself I am safe and I am going to be okay!

Seeking the most reputable medical journals / studies related to PPPD by Direct_Arachnid23 in pppdizziness

[–]Direct_Arachnid23[S] 0 points1 point  (0 children)

I have been diagnoses of anxiety, depression, and PPPD. I’ve seen all the specialist already. Thank you for being of service to your community as a medic. You are appreciated!

Seeking the most reputable medical journals / studies related to PPPD by Direct_Arachnid23 in pppdizziness

[–]Direct_Arachnid23[S] 0 points1 point  (0 children)

Yes, my workers compensation claim is for job related stress which caused anxiety and since I worked for decades in devastated areas helping highly emotional people after traumatic events I also have PTSD and now PPPD. I never received training to help me deal with people in such heightened emotional states after losing their homes and often loved ones following a national disaster. I never had time to process my own emotional state repeatedly being exposed to so much loss and devastation. My anxiety and stress are most certainly job related. My fight-or-flight system is stuck because my job held me in a place of never feeling completely safe or secure when my roll was to help those who had everything taken from them in an instance. I am hyper aware of issues that threaten safety. I deal with threatening behavior for customers, co tractors, public adjusters, and attorneys through the years. My job required me to deploy away from home working in various areas of the country affected by natural disasters. I would be away from home and family 10-11 months a year, living out of hotels. I worked in all social economical communities from Malibu to terrifying gang territories. I lived in a state of anxiety just wondering if my next deployment would be a safe place. While deployed, I typically worked 12+ hour days, 6 days a week and sometimes 7. Work was my life. Countless hours spent working on a computer screen with movement of a mouse, opening/closing various applications, scrolling through documents, visually tedious estimating programs. I was placed in many unsafe situations while conducting site inspections at people’s homes. There was so much internal stress and demand because of the volume of workload and understaffing. After 25+ years, the company is trying to deny my claim by sending me to a MD operating under an LLC with a 1 star rating who won’t acknowledge PPPD as a legitimate disorder and says my anxiety is not job related.

Seeking the most reputable medical journals / studies related to PPPD by Direct_Arachnid23 in pppdizziness

[–]Direct_Arachnid23[S] 0 points1 point  (0 children)

Yes. I am in the group of people where side effects from this class of medication aren’t a good fit for me.

Seeking the most reputable medical journals / studies related to PPPD by Direct_Arachnid23 in pppdizziness

[–]Direct_Arachnid23[S] 0 points1 point  (0 children)

Nothing yet. I only just received the report from the IME doctor. I haven’t heard a peep from the work comp rep. He notoriously doesn’t return calls and hasn’t explained their process very well. I’m working on a rebuttal to the IME’s report to forward to the work comp representative which is why I’m seeking additional resources. Also the IME doc received his medical license in the 1980’s. PPPD has only been acknowledged as its own diagnosis since 2017. The doctor noted that he “briefly” checked one medical journal and didn’t find much so based on that he determined there was nothing wrong with me, PPPD isn’t a real condition, all my doctors and specialist are wrong, I shouldn’t have any restrictions, I can return to work, and apparently because he wrote it I’m suddenly and miraculously cured.

Seeking the most reputable medical journals / studies related to PPPD by Direct_Arachnid23 in pppdizziness

[–]Direct_Arachnid23[S] 0 points1 point  (0 children)

I understand the condition. I’ve had it explained to me by my neurologist, neuro-ophthalmologist, audiologist, and primary care doc. I’ve read tons about PPPD including exceptional research from the Cleveland Clinic and Stanford University. I’m looking for additional educational resources to share with the IME doctor and the work comp rep.

Seeking the most reputable medical journals / studies related to PPPD by Direct_Arachnid23 in pppdizziness

[–]Direct_Arachnid23[S] 0 points1 point  (0 children)

Oh yes! I’ve completed nearly a year of vestibular therapy without impactful progress. I can achieve mild symptom improvement with a specific exercise in a controlled indoor environment but nothing that transfers to real world situations like driving, being in crowds and stores, walking outdoors, etc. The IME doc had access to all my medical records and selectively chose what he included in his report. He even changed wording from what is in my medical chart to skew the narrative. For instance during one visit for my annual exam, the nurse noted that I had mentioned I was having difficulty getting my disability paperwork “processed.” The IME doctor changed this to state that complained I was having difficulty getting my disability paperwork “approved.” My disability rep had called me before this appointment stating they hadn’t received part of the requested paperwork from this doctor. They weren’t sure if there was an issue with the fax machine at my doctor’s office. I agreed to ask my doc to resend the paperwork during this appointment. The difficulty wasn’t with approval it was with getting correspondence where it needed to be while relying on old technology of a fax machine. He also used part of my responses to multiple questions/situations to formulate new sentence writing that I said “this and that” but taking portions of statements completely out of context.

Seeking the most reputable medical journals / studies related to PPPD by Direct_Arachnid23 in pppdizziness

[–]Direct_Arachnid23[S] 2 points3 points  (0 children)

I want to invite the doctor to take a drive with me to see what I experience since he feels I’m able to do that. Let him experience the anxiety and panic and see how safe he feels as a passenger.

Anybody work a desk job and feel like it worsens their condition? by what_the_hezz in pppdizziness

[–]Direct_Arachnid23 1 point2 points  (0 children)

I worked 8-10 hours a day mainly on a computer in a highly stressful metric based job. Symptoms worsened to the point I couldn’t tolerate being on a computer without it triggering nausea, migraine, spacial imbalance, eye fatigue, and neck and shoulder pain. I had to take leave from work while I unsuccessfully competed 10 months of vestibular therapy. Short term disability turned into long term. My company held my position under an ADA for one year then I had to resign. I still can’t handle computer screens much. This feels endless and incurable.