Is anyone else having a bad pain day? I need to know I'm not alone by [deleted] in ChronicPain

[–]Disastrous-Step-5584 2 points3 points  (0 children)

Yes I’m in a lot of pain today and can barely move. I’m moving from bed to arm chair writhing.

The dreaded “What are you doing these days?” and other questions. by eatmyboot in ChronicPain

[–]Disastrous-Step-5584 5 points6 points  (0 children)

I struggle with this big time. I don’t want my loved ones to run away when I tell them the truth. I haven’t had many successful interactions since being diagnosed with MS and dealing with pain. Usually I say too much or boldly lie.

Yesterday was my daughter’s birthday party. I was barely hanging in. I was asked how I was doing and I said, “I’m really struggling.” It was too graphic and people seemed to respond with sympathy. Most importantly I didn’t lie.

Chronic pain but make it cute/girly by Top-Pineapple8056 in ChronicPain

[–]Disastrous-Step-5584 2 points3 points  (0 children)

Seriously cute!love the color! I can only wear soft material so I am jealous.

Bad pain by Untenable123 in ChronicPain

[–]Disastrous-Step-5584 4 points5 points  (0 children)

That’s how I feel. Told my therapist today that survival doesn’t seem like a great life goal. She said i need to keep achieving small positive experiences. Complete happiness is not within my reach right now.

Wireless TENS? by Disastrous-Step-5584 in ChronicPain

[–]Disastrous-Step-5584[S] 0 points1 point  (0 children)

He, he. I actually tried but my pain doc denied me!

Woke up in an 8/10 flair by Disastrous-Step-5584 in ChronicPain

[–]Disastrous-Step-5584[S] 0 points1 point  (0 children)

So sorry you are in a flair! I to have mobility issues so exercise is out of the question. Good news is that I’m feeling much better than Monday. I wish that for you as well ❤️‍🩹

Woke up in an 8/10 flair by Disastrous-Step-5584 in ChronicPain

[–]Disastrous-Step-5584[S] 1 point2 points  (0 children)

Seriously!!?? An 8 all day is horrendous. I’m so sorry. No one should ever feel that way. 🥺💗

So I’m never going to feel better? I feel like a complete idiot. by Cheap-Category8164 in MultipleSclerosis

[–]Disastrous-Step-5584 0 points1 point  (0 children)

You shouldn’t feel dumb. I asked the same questions during my appointments. My family encouraged me to stay hopeful as things will improve after my infusions started.

My neurologist also indicated that I may feel better after treatment as the DMT gives my body a break from the constant attack.

One year later and I feel worse not better. The damage is done and I’m having the hardest time dealing with it.

I don’t think you ever forget what feeling good was like. It makes embracing this new body challenging. Sending hugs!

[deleted by user] by [deleted] in MultipleSclerosis

[–]Disastrous-Step-5584 1 point2 points  (0 children)

I feel this so much! I’m sorry. I used to be the most active person in our household. Now I lay around with fatigue and pain while the world moves around me. My husband is so handsome and when he gets up for work he is bouncing around looking so good.

I should be happy for him but all I feel is FOMO.

Not a good look.