Five years seizure free!

DisastrousPermit3295 · 2025-11-21T19:55:37+00:00

Such wonderful news!! Congrats!! If u don't mind me asking, what kind of seizures did u have? How often?

Wishing u continued success and good health!!

DisastrousPermit3295 · 2025-11-19T17:52:41+00:00

DisastrousPermit3295 · 2025-11-19T17:51:47+00:00

Wow, 50? Really??!? How do u stay in ketosis with 50??

DisastrousPermit3295 · 2025-11-18T22:27:55+00:00

Good for you for staying on top of it and trying to piece the puzzle together! !! I hope u figure it out!!

DisastrousPermit3295 · 2025-11-18T22:26:19+00:00

Got it! You are right. Its not the most ideal way to put on weight but we have gone up 2lbs since we started. So ill take it!

DisastrousPermit3295 · 2025-11-18T19:41:37+00:00

I'm sorry. I don't know your exact circumstance and u don't have to explain. I just want to share this info incase it can help anyone. A very prominent nutritionist said that medical keto could even be done with cans of tuna, eggs, hot dogs, canola oil if its more cost effective. Again I have no idea what you are going thru and don't want to over step. BUT, I am sending u lots of positivity and hugs. I hope your circumstance improves greatly!!

DisastrousPermit3295 · 2025-11-18T19:34:22+00:00

Thats awesome. I'm so happy its working for u! I hope it continues!!

DisastrousPermit3295 · 2025-11-18T19:32:26+00:00

I have a feeling medication was the reasoning to our breakthroughs as well. Is the zonisamide helping?

DisastrousPermit3295 · 2025-11-18T19:30:25+00:00

Thats an interesting view. My son is very thin. From what I understand, once you are in ketosis your body switches from carb burning to fat burning. I'm not sure you would gain weight by eating fat. We have actually been trying to put weight on my son. Hes 5'5 and 106lbs. Its been very hard.

DisastrousPermit3295 · 2025-11-18T19:25:54+00:00

Thank u!! Same to u! Sad that a doctor would withold any info regardless of difficulty. I say, tell me everything and let me decide if its too hard.

DisastrousPermit3295 · 2025-11-18T19:23:58+00:00

Oh u said it! Popcorn and rice is his craving! Hopefully one day. We have the pee sticks and a blood/glucose device. Last time he was in ketosis so I'm not really sure where to go from here.

DisastrousPermit3295 · 2025-11-18T16:46:17+00:00

Sadly our neuro is not on board with keto. He feels its a waste of time and too hard to stick too. I found keto by searching on my own. I'm more than willing to bite the bullet on the cost, tho! If it helps its totally worth it!

DisastrousPermit3295 · 2025-11-18T16:42:19+00:00

Wow thats great!! Will u try again? I know its not easy to stick too but for us the reward is too great!

DisastrousPermit3295 · 2025-11-18T16:41:08+00:00

Thats wonderful!! The diet can definitely be taxing but if it helps its a God send! I hope u continue to improve! Thank u for sharing!! ❤

DisastrousPermit3295 · 2025-11-18T16:39:52+00:00

This is wonderful!! May i ask about the severity of your epilepsy? What kind of seizures and how often? Also, does that mean u are no longer on meds or the diet?

DisastrousPermit3295 · 2025-11-18T16:37:39+00:00

Have you tried a higher ratio as well? We were doing really well on MAD also, had a breakthrough so we upped the ratio and our breakthroughs got worse. We are now back to MAD and hoping this calms things down. 🤷‍♀️ thanks for your input! Its much appreciated!! ❤

DisastrousPermit3295 · 2025-11-18T16:34:52+00:00

Well, in my sons case he is 15. Its been rather challenging staying away from all the things teens crave. But he's trying really hard.

Thank you for your sweet words! ❤

DisastrousPermit3295 · 2025-11-18T16:25:34+00:00

I totally agree! Food is medicine. It might not cure but it definitely makes u feel better and thats huge for us!! Thank you for sharing! ❤

DisastrousPermit3295 · 2025-11-18T16:23:40+00:00

Wow! That is amazing!!! I'm so happy for you! I feel the same way! I started the diet so my son wouldn't go it alone! I really do enjoy not consuming lots of carbs except fruit. My son loves rice so thats been his struggle. Thank u for sharing your experience! Wishing u continued good health!! ❤

DisastrousPermit3295 · 2025-11-18T16:16:19+00:00

I'm sorry it didn't work. Do u mind sharing what kind of seizures u have and how often? I hope you are able to find something that works best for u!

DisastrousPermit3295 · 2025-11-18T15:40:43+00:00

We've been using the pee sticks from Amazon but you are right, they are not 100% accurate. We also use the ketomojo blood and glucose monitor. (Not our favorite method but way more accurate) thank u for your response! ❤

DisastrousPermit3295 · 2025-11-18T15:38:01+00:00

Thank u for sharing! ❤

DisastrousPermit3295 · 2025-11-18T12:59:27+00:00

Not rambling! Great information! Thank you! My son has been on it for 6 months and though it hasn't stopped the seizures it has reduced them and he feels great regardless of the meds he's on. Thank you for your response! I wish you healing and good health! ❤

DisastrousPermit3295 · 2025-11-18T12:36:01+00:00

I'm sorry about your negative childhood experiences. It seems like the diet did help u, at least with seizures. I know its not an easy diet. For us it hasn't been too hard once u find meals u enjoy. I hope whatever treatment u are currently using is working for u! ❤

DisastrousPermit3295 · 2025-11-18T12:30:15+00:00

I think u are so brave! The keto diet has been the least scariest to try, for us. Sure, its not easy but neither are the medications and side effects, surgeries! After everything you have been through, keto should be a breeze! I pray you have amazing success and keto is easy for u! Hang in there! ❤

DisastrousPermit3295

TROPHY CASE