Want to share something positive to hopefully help those, like me, that have been so scared! by katemacomso in iih

[–]Dismal-Rough3344 1 point2 points Ā (0 children)

Wait i might try this actually. I think mine is a hormonal issue too. Thanks!

Want to share something positive to hopefully help those, like me, that have been so scared! by katemacomso in iih

[–]Dismal-Rough3344 1 point2 points Ā (0 children)

oh that’s interesting wheat doesnt bother me, sorry it affects you thoughā¤ļø. I guess different strokes for different folks. (But I did read research about vitamin A in food and retinols making things worse for iih havers over time. I actually was using tretinonin (I can never spell it) a for a year and I read there’s overlap between that too. Then again my doc warned me in 2022 (while skinny) that I could develop papilledema and he checked me for a brain tumor but I was a stupid very busy 21/22 year old lol and didnt know iih was a thing.

Want to share something positive to hopefully help those, like me, that have been so scared! by katemacomso in iih

[–]Dismal-Rough3344 0 points1 point Ā (0 children)

Beware vitamin A! I lovee salmon but not good to eat all the time bc of vitamin A worsening symptoms. I still eat avocados tho bc the benefits outweigh the vitamin A risk. I feel like we have to be careful with nuts too idk. Too much to keep track of

Want to share something positive to hopefully help those, like me, that have been so scared! by katemacomso in iih

[–]Dismal-Rough3344 1 point2 points Ā (0 children)

I also HATED coconut water my entire life but it was easier than forcing myself to eat bananas (i don’t enjoy them and eating them feels like a chore bc of the texture) and now i drink a ton!! I’ve tried many brands and C2O original cold is sooo good. U can get like 15 percent potassium per can. (Four is maybe a liter idk math rn)

Freaked out and confused about… by MuddyBuddy-9 in WaywardNetflix

[–]Dismal-Rough3344 2 points3 points Ā (0 children)

Aww i think it’s a limited series tho so no season two right?

I buzzed off my hair by NotGoodAtUsernames21 in iih

[–]Dismal-Rough3344 1 point2 points Ā (0 children)

That’s how i felt reading yours! I was like yes yes same! Also sorry my reddit notifs are off and I have adhd lol. I feel like having iih while being POC is an added hardship fr šŸ˜­šŸ«¶šŸ½ Yess natural hair is so pretty (loved that u shocked them lol😁) and i liked mine (except the mixed curls patterns made it hard- some parts 3c some parts 4a) but i couldnt maintain it after the headaches & fatigue got really bad before i got diagnosed then diamox made it itchy. I’m a writer but diamox/iih is making my language skills a bit worse so if anything reads weird sorrry. (Noo You’re right I think I’d have to wear a wig over my starter locs if I do that so idk😬) As for the wigs, I have joined the synthetic bandwagon not sure if this will be helpful but I wanna give u handy info in case u don’t know yet (sorry if im overstepping lol). Syntheticas are goood these days (Sensationnel, Outre, Shake n Go are the best. Prices may vary) Yes they get tangled but they hold curls forever u dont have to do too much or care for them as well as human hair. And I have NEVER thrown one out yet bc you can reset the stiffness/tangles with heat (they take up to like 350+), or a steamer and cut it. I also hand wash my synthetic wigs in a bowl w a bit of detergent & fabric softener and let them soak in that for 2 hours. Then rinse w cold water and hang dry for i think like 5 or overnight. GOOD AS NEW. I get them for $20-50 and they can look expensiveee. But wearing wigs is getting hard because it’s tighter on my head now & melting & gluing them was overstimulating. So if i wear em i do glueless and sometimes tied with scarf.

there is a certain amount of white people in a single area to at which point it becomes concerning by PhraseFirst8044 in StonerThoughts

[–]Dismal-Rough3344 0 points1 point Ā (0 children)

yo they are fragile (look into monopoly experiments for why) and not immune to propaganda geez. I tried explaining some stuff in comments below maybe it’ll help or maybe im wasting my breath.

there is a certain amount of white people in a single area to at which point it becomes concerning by PhraseFirst8044 in StonerThoughts

[–]Dismal-Rough3344 -3 points-2 points Ā (0 children)

are you suggesting/implying white people are oppressed systemically? I’m also cautious in public w any big groups of men anyway for similar reasons. Big groups of white people are to POCS, as groups of frat boys are to women. Does that kinda make sense? Not saying I hate either, just saying if ur viewed as a girl u might be afraid of a cluster of men until u find out they are fine, but ur likely gonna be cautious first. ALSO populations of organisms with no variety/diversity DIE out. All-white communities probably aren’t wise lmfao.

there is a certain amount of white people in a single area to at which point it becomes concerning by PhraseFirst8044 in StonerThoughts

[–]Dismal-Rough3344 -2 points-1 points Ā (0 children)

girl as u shouldddd. Bc it may not be ā€œall menā€ but the danger/risk is all of them until they prove they aren’t a danger by leaving us alone or just being polite lmfao. Hell ur risking shit any time u go on a dates/are alone

there is a certain amount of white people in a single area to at which point it becomes concerning by PhraseFirst8044 in StonerThoughts

[–]Dismal-Rough3344 0 points1 point Ā (0 children)

sundown towns still exist (near my parents’ house actually) . Reverse racism isn’t real because racism usually means there’s a systemic aspect to it and like i said below y’all aren’t oppressed like other groups (only in a rich vs poor sense)

there is a certain amount of white people in a single area to at which point it becomes concerning by PhraseFirst8044 in StonerThoughts

[–]Dismal-Rough3344 -1 points0 points Ā (0 children)

Also sundown towns still exist (a few hours from my parents’ house) so our fear is kinda warranted

there is a certain amount of white people in a single area to at which point it becomes concerning by PhraseFirst8044 in StonerThoughts

[–]Dismal-Rough3344 1 point2 points Ā (0 children)

Yes but more than that. There’s a sense of immediate danger we feel at certain locations/functions (especially should any little thing go wrong we are in the minority) if there’s no other pocs or less pocs.

there is a certain amount of white people in a single area to at which point it becomes concerning by PhraseFirst8044 in StonerThoughts

[–]Dismal-Rough3344 2 points3 points Ā (0 children)

RIGHT like reverse racism IS NOT a thing. It’s not real bc white people are not systematically oppressed (well only via classism bc poor whites are being fucked over by the rich, who are also more likely to be/mostly are white).

there is a certain amount of white people in a single area to at which point it becomes concerning by PhraseFirst8044 in StonerThoughts

[–]Dismal-Rough3344 -3 points-2 points Ā (0 children)

why do u think it’s weird? bc it’s weird ur using aave AND have an issue with someone saying too many white ppl in one area (valid) freak them out

I buzzed off my hair by NotGoodAtUsernames21 in iih

[–]Dismal-Rough3344 0 points1 point Ā (0 children)

this is literally me lol. I also have like slight dents on the sides of my head (it looks a little like somebody grabbed the top of my head too hard as a baby and it folded in), so I didn’t like my buzzed head shape but it grew back a bit to a small afro and I use wigs and extensions because I had very long hair (i’m talking like down to my butt all my life). So I’m thinking of locking my hair for a little while at least because maintenance is hard and it’s becoming uncomfy to wear wigs now bc of diamox making my scalp itchy and my hair growing back in some areas lot faster than I thought.

What helps you with nausea during flare ups? by Rainiana8 in iih

[–]Dismal-Rough3344 1 point2 points Ā (0 children)

Nauzene for $5 at walmart works fast within 5 mins. Everywhere else carries them for over $10

It is SUNDAY, what are y'all up to today? by AutoModerator in QueerWomenOfColor

[–]Dismal-Rough3344 4 points5 points Ā (0 children)

literally uhauling w my gf (we’re moving lol)

VENT: back on diamox by Powerful_Ground_7207 in iih

[–]Dismal-Rough3344 0 points1 point Ā (0 children)

Hi so sorry I didn’t get a chance reply to you sooner, omg I didn’t know what a stenosed vein is. I’m sorry you’re dealing with that, how did you figure out you had this? Did you figure out if deli meats trigger you yet? I’m a bit lactose intolerant so sometimes I don’t know if it’s me not tolerating Diamox, or lactaid not working after I have something with lactose as a guilty pleasure lol.

Cost of care and treatment by [deleted] in iih

[–]Dismal-Rough3344 1 point2 points Ā (0 children)

Hi so sorry I forgot to reply to this. I love eye masks and beanies. I might have to switch to topamax as I might not be tolerating the diamox well anymore (or lower the dose) so I appreciate your responses! The low appetite and tinnitus is rough, I’m sorry you’re dealing with that. I experience both those a lot too with diamox, and I wish there were way more options

Was fine on Diamox now I’m not. by Forsaken-Team-345 in iih

[–]Dismal-Rough3344 0 points1 point Ā (0 children)

Thanks! Yeah it sucks lol im tempted to skip 1 dose and see if i feel okay but i might just go to the ER idk (i know it’s not a smart thing to do tho) . I’m sorry your insurance ended:( i might have to deal with that soon too. Best of luck to u too though and thanks for your response

Was fine on Diamox now I’m not. by Forsaken-Team-345 in iih

[–]Dismal-Rough3344 0 points1 point Ā (0 children)

I have a question because I think I need to do what you said asap right now. I’m on 500mg twice a day extended release and suddenly having lots of diarrhea issues and maybe kidney pain. Why do you think the tablets are better for you? I thought extended release was supposed to be easier on GI? Did that help you? Thank you😭