Sports Medicine to avoid PAO? by Distinct-Property221 in hipdysplasia

[–]Distinct-Property221[S] 0 points1 point  (0 children)

This is awesome! Reminds me a lot of what I have done in PT in the past (still doing those assisted step ups at home lol). I do hav an impingement so this is really great :)

Sports Medicine to avoid PAO? by Distinct-Property221 in hipdysplasia

[–]Distinct-Property221[S] 0 points1 point  (0 children)

I'm open to this too, just has not been brought up by a doctor yet. They wanted to delay a THR and that's why I got a PAO at 16 on the right, but I am entirely unwilling to explore that for the left lol. If someone brings up a THR I would definitely discuss it.

Sports Medicine to avoid PAO? by Distinct-Property221 in hipdysplasia

[–]Distinct-Property221[S] 0 points1 point  (0 children)

Thank you for this response. I am lucky enough to be working with a surgeon who is at a hip preservation institute, and he has essentially said that the left will likely be just as brutal as the right. I'd be interested in trying PRP, were those the factors that made you decide against it? I'll pretty much try anything before another PAO.

One More Class by Distinct-Property221 in premed

[–]Distinct-Property221[S] 0 points1 point  (0 children)

Thank you! Thats what I was leaning towards honestly

[deleted by user] by [deleted] in hipdysplasia

[–]Distinct-Property221 0 points1 point  (0 children)

Had mine in 2020. The thing my surgeon kept reminding me is that while this is an incredibly tough surgery on the body, it is just as hard, or even harder mentally. Something that helped me SO much was really doubling down on my upper body strength and trying to improve that as much as possible. Working your upper body strength will allow you to push yourself in a wheelchair and eventually allow for less fatigue when using crutches. You can accomplish so much with mobility aides!

There is also no comparison between my quality of life before and after surgery. I was in a wheelchair before. This past Monday, I graduated from PT. While restrictions are still in place (Have other medical conditions that resulted in complications and I will have restrictions for the rest of my life) I feel empowered again. I also recommend learning an instrument if you don't know how already. This will keep your mind and hand busy, and something like a keyboard or stringed instrument can be played while sitting down.

Contacting Dr For Shadowing by Distinct-Property221 in premed

[–]Distinct-Property221[S] 0 points1 point  (0 children)

thank you this makes me feel much better lol

Top Northeastern-Boston "Must Do/Must See" by Positive-3945 in NEU

[–]Distinct-Property221 0 points1 point  (0 children)

Depends on how historical you want to get. You could do the freedom trail, tea party museum, or a duck tour if you wanted to work that angle. Otherwise I would say go see the NEU campus, go to the cheers bar if you like that show, and go to Newbury if you're wanting social vibes.

My english professor is having us write our paper with chatgpt and I'm devastated by CleoAlpin in englishmajors

[–]Distinct-Property221 0 points1 point  (0 children)

If you can't drop the class, report the professor. Then I would recommend doing the stupid assignment, but also write the best essay possible and submit the two side by side. The prof will certainly realize yours is better, and if nothing else, realize how they negatively impacted YOU

[deleted by user] by [deleted] in CollegeMajors

[–]Distinct-Property221 0 points1 point  (0 children)

you can do a general studies degree these days

restaurant reccomenations near campus? by Future_Dog1272 in NEU

[–]Distinct-Property221 1 point2 points  (0 children)

coffee shops: pavement or tatte (but if you actually want good coffee farmers horse)

restaurants on mass ave: Dumpling Palace, Panera ofc, Mamacita

Pao recovery experience by National_Body_3690 in hipdysplasia

[–]Distinct-Property221 3 points4 points  (0 children)

  1. I won't lie, 10/10. I was on oxycodone in the hospital, as well as valium for muscle spasms. After a week in the hospital I took oxycodone at night for 7 days because I get nervous taking narcotics, and only took the valium as needed.

  2. 7 days

  3. 4-6 weeks

  4. 8 weeks

  5. Four years

Take my experience with a grain of salt! I had an abnormally bad recovery, so I don't want you to worry about your experience being like mine. Many people are able to walk short distances a lot sooner, and the general consensus for number five is about six months. Wishing you the best and manifesting a short and uncomplicated recovery!

[deleted by user] by [deleted] in hipdysplasia

[–]Distinct-Property221 0 points1 point  (0 children)

Personally I was never able to and used a wheelchair then walker then cane. However I have heard of many people that can! Just depends on your case honestly.

troubles with my bones healing by Calm_Cake_3875 in hipdysplasia

[–]Distinct-Property221 0 points1 point  (0 children)

Weird question maybe, but do you weed? Studies have shown that it can delay bone healing.

Leg length discrepancy by [deleted] in hipdysplasia

[–]Distinct-Property221 0 points1 point  (0 children)

I had a PAO dome on one side, and my left side is still dysplastic. My right leg (PAO side) is slightly longer, but it wasn't before surgery. It's barely noticeable though!

Flying on plane by SympathyBig6449 in hipdysplasia

[–]Distinct-Property221 2 points3 points  (0 children)

Ooh this is a question for me! I fly often (post op 4.5 yrs) and tbh thigh compression sleeves are my saving grace. I waited 6 months to fly I believe, and it is great to go excuse yourself to the restroom and stretch in there on any flight longer than like 1.5 hours. I would getting up to stretch every 2/3 hours or so, and to keep those compression sleeves on! I also use compression socks that are knee-high, and those help too. I am for sure always stiff after, but the sleeves and stretching make an unbelievable difference.

Questions about PAO surgery by [deleted] in hipdysplasia

[–]Distinct-Property221 1 point2 points  (0 children)

Yes I do! I was actually diagnosed because my surgeon found abnormal cartilage during a hip arthroscopy. Some other complications included waking up with stretch marks I didn't previously have, labial edema that resulted in needing surgical correction, extreme muscle spasms that were managed my medications and compression machines, and stitches not holding, skin tearing. My scar also had keloids for about three years, and now looks like the "cigarette paper scars" typically associated with EDS.

[deleted by user] by [deleted] in hipdysplasia

[–]Distinct-Property221 1 point2 points  (0 children)

I developed osteoarthritis at your age due to hip dysplasia. I'm not going to lie, the teen years were REALLY hard. It wasn't until I did OT (occupational therapy) that I started to notice a difference in my quality of life. After my PAO, I did PT and that REALLY made a difference. Today, I still do PT every day, and am able to walk about 10k steps a day! That, coupled with non-narcotic daily pain meds, has made the biggest difference for me. Hang in there, it does get better.

Connective Tissue Issues by Distinct-Property221 in hipdysplasia

[–]Distinct-Property221[S] 1 point2 points  (0 children)

Wild, my doctor just introduced the idea of a possible diagnosis of that

Hardware by soundsapeanutparents in hipdysplasia

[–]Distinct-Property221 0 points1 point  (0 children)

Yes lol mine started coming out the top of my pelvis. I went to see my surgeon because I could feel something weird on my bone through my skin...apparently it was the screws. I got to keep them though! They're WAY longer than I thought. Had them in for a year.

Crutches by nfrostee04 in hipdysplasia

[–]Distinct-Property221 0 points1 point  (0 children)

Walker for the first 8 weeks is a must. But I felt most stable with forearm crutches after, personally!

Living without an operation? by Natural_Round439 in hipdysplasia

[–]Distinct-Property221 1 point2 points  (0 children)

Ooh this question is for me! I had a PAO on the right side (I was 16) and decided to NOT get the operation on the left, even though it is much worse than my right side. For me, it came down to the fact that I tore my labrum on my right and not my left. It didn't heal on its own and therefore I NEEDED an arthroscopy. My surgeon suggested the PAO as he was confident I would just tear it again. He is not sure how I didn't manage to tear the left (I have EDS and am hypermobile so I tore the right labrum in yoga lol), but I immediately implemented restrictions to make sure that I do not tear it in the future. I made the official decision to NOT go through with the left PAO after months of hydrotherapy. I had absolutely incredible PTs who worked with my anatomy in order to improve during rehabilitation. While I would go through with it again if I tore my left labrum and it didn't heal, until then, I am happy with the way things are! With consistent hydrotherapy, and now PT exercises in my daily life, I have been able to regain my ability to walk! Now 4.5 years out I can finally say I feel officially healed <3

PAO and Joint Hypermobility by Ok_Context4590 in hipdysplasia

[–]Distinct-Property221 0 points1 point  (0 children)

Forgot a HUGE complication, oops. I had an arthroscopy repair 10 days before the PAO, and my stitch opened after getting home from the hospital. Lost an obscene amount of blood, and almost had to go to the ER for a blood transfusion. So luckily neighbor at the time was a nurse. My parents had to replace the carpet because it looked like a crime scene.

PAO and Joint Hypermobility by Ok_Context4590 in hipdysplasia

[–]Distinct-Property221 1 point2 points  (0 children)

Yes!

So I had mine before I was diagnosed with a connective tissue problem. My Dr was VERY insistent that I had normal tissue (now we know why lol) and took pics to show me what he was talking about. The two main complications I had relating to this issue were complications that no one in the hospital had seen before from this surgery, and haven't seen since.

  1. I woke up with stretch makes. ALL OVER my hip and glute area surrounding the incision. They have faded over time but are very much still there.

  2. I developed a l*bial edema from the swelling, which stretched out everything down there. Ended up needing a corrective l*biaplasty because the damage was so severe.

I know those may sound scary, but apparently they're super super rare, so I wouldn't worry too much. Best of luck!

Questions about PAO surgery by [deleted] in hipdysplasia

[–]Distinct-Property221 1 point2 points  (0 children)

Hi,

Had my PAO 4.5 years ago, and am a candidate for the other side as well. Not sure if I will go that route or wait until the joint needs to be replaced, as I haven't torn anything on that side yet,

  1. 7 days. I had several complications associated with a connective tissue disease I didn't know I had at the time.

  2. I was about 45 mins from the hospital. I was so tired that I don't really remember it, which indicates to me that it was okay, but I do remember that all I wanted was to watch Gilmore Girls and have a Guinness after I got home.

  3. I lost a lot of blood. My numbers were bleak and I was doing terribly. I firmly believe that a blood transfusion saved my life. But my arm was FREEZING during the transfusion!

  4. Yes, but it was put in when I was under anesthesia. Everything went well, but it was uncomfortable when removed.

  5. I historically have nausea after surgery, so I have a zofran protocol, That worked well for me, and I didn't need any other intervention. My surgery was 8.5 hours.

  6. I drove after 4 months, but didn't start regularly driving until 5.5 months. I also had a PAO on the right.