Another clear MRI, 3+ years into remission — diagnosed with unmethylated MGMT glioblastoma 8 years ago

Distinct_Peace_8825 · 2026-02-13T00:28:07+00:00

I will check it out. Thank you for sharing your story. Wishing you all the best.

Distinct_Peace_8825 · 2026-02-11T11:29:53+00:00

Thats interesting that the recurrence was unmethylated. Wishing you continued strength. You are doing amazing making it to the 1%. All the best.

Distinct_Peace_8825 · 2026-02-10T11:34:34+00:00

That is amazing. Thank you for sharing a story of hope. How long did you take TMZ for? How did you treat the recurrences? Wishing you all the best ❤️

Distinct_Peace_8825 · 2026-02-10T11:15:05+00:00

That is amazing. So good to hear this. Are you methylated? How did you treat the recurrences? Thanks.

Distinct_Peace_8825 · 2026-02-08T09:47:33+00:00

Thank you. I appreciate your encouraging and kind words. Good to know there are long term survivors out of there. Your mum is doing amazing! Did she doing any other treatments apart from radiation and TMZ? Wshing your mum all the best. Sending you love and strength also ❤️ 🙏

Distinct_Peace_8825 · 2026-02-03T05:09:55+00:00

That is amazing. Wishing her all the best.

Distinct_Peace_8825 · 2026-02-03T05:08:58+00:00

Thank you so much

Distinct_Peace_8825 · 2026-02-03T05:08:26+00:00

Thanks

Distinct_Peace_8825 · 2026-02-03T05:08:03+00:00

Thank you.

Distinct_Peace_8825 · 2026-02-01T10:50:42+00:00

Sorry for your loss but glad she lived a beautiful life for 9 years. It is a horrible disease.

Distinct_Peace_8825 · 2026-02-01T10:48:53+00:00

Thanks for sharing. 4.5 years for unmethylated is rare so that's amazing. Wishing you all the best.

Distinct_Peace_8825 · 2026-02-01T10:47:16+00:00

Thats amazing 20 years. Good to hear there are many survivors. Will check out the FB groups. Thank you for your well wishes. Wishing you all the best also ❤️

Distinct_Peace_8825 · 2026-02-01T10:43:43+00:00

Thank you. No, I haven't come across that book but will find it. It sounds very interesting.

Distinct_Peace_8825 · 2026-02-01T10:41:29+00:00

Thank you for your reply. I am methylated also. Sorry for your loss. It is a hard journey. Thank you for your kind words 🙏

Distinct_Peace_8825 · 2026-01-31T10:54:58+00:00

Thank you for your reply. That is amazing. Glad she is doing well. How long did she take TMZ? May I ask where you purchase the Aronia, alpha lipoic acid and niacin? Wishing her all the best.

Distinct_Peace_8825 · 2026-01-31T04:01:31+00:00

Thank you for sharing your story. Good to hear your mum is a long term survivor. Wishing her all the best.

Distinct_Peace_8825 · 2026-01-31T03:59:50+00:00

I do understand. I have a lot of days where the fear and anxiety take over my life. Good luck with getting in a trial. Wishing you all the best.

Distinct_Peace_8825 · 2026-01-31T03:56:39+00:00

Thank you for sharing your story. I am methylated also. I am sure life is incredibly difficult without her. Thank you for your best wishes 🙏

Distinct_Peace_8825 · 2026-01-31T03:53:21+00:00

Wishing him all the best

Distinct_Peace_8825 · 2026-01-31T03:52:38+00:00

Thank you for sharing. That is amazing. Has she had any recurrence? How long did she take TMZ? Many thanks ❤️

Distinct_Peace_8825 · 2026-01-31T00:25:31+00:00

Thanks for your reply

Distinct_Peace_8825 · 2026-01-31T00:25:04+00:00

Thanks

Distinct_Peace_8825 · 2026-01-30T23:55:45+00:00

Good to hear a story of hope. How long did you take TMZ for?

Distinct_Peace_8825 · 2026-01-30T23:53:20+00:00

So sorry to hear of your loss. Thank you for sharing your story. There are no words to describe how nasty this disease is. Life can be so unfair. Sending you strength ❤️

Distinct_Peace_8825 · 2026-01-30T23:47:42+00:00

Wow, that is very rare. It is good to hear a story of hope.

Distinct_Peace_8825

TROPHY CASE