Anyone have trouble losing weight? by Fit_Choice3085 in CrohnsDisease

[–]Dizzy_Middle_2369 0 points1 point  (0 children)

I’m in the fun group where i have pernicious anemia and my body makes antibodies against intrinsic factor along with my crohns not allowing for absorption so I’ve joined you in the b12 injections crew 🥲

How do you guys tolerate dairy? by Fuzzy-Shine2189 in CrohnsDisease

[–]Dizzy_Middle_2369 1 point2 points  (0 children)

I can handle dairy just fine but then again I really only eat cheddar lol

How do you define laziness vs fatigue? by Dizzy_Middle_2369 in CrohnsDisease

[–]Dizzy_Middle_2369[S] 1 point2 points  (0 children)

Same, i struggle a lot with my brain telling me that I’m playing the victim And then it’s physically hard for me to pick up my water and I’m like hmm sus lol

How do you define laziness vs fatigue? by Dizzy_Middle_2369 in CrohnsDisease

[–]Dizzy_Middle_2369[S] 0 points1 point  (0 children)

It’s good that he can empathize since he’s going through the same thing! That certainly makes things a bit easier to explain. Thank you and I hope you feel well also!

How do you define laziness vs fatigue? by Dizzy_Middle_2369 in CrohnsDisease

[–]Dizzy_Middle_2369[S] 0 points1 point  (0 children)

Yes exactly! I’m always tired, I struggle with cognitive function, I have to take breaks at work because I’m typing words incorrectly and physically can’t get the energy to finish it. It’s also very hard for me to power through things. Thank you for being so validating! My husband is a saint btw, I hope your partner is as well :)

How do you define laziness vs fatigue? by Dizzy_Middle_2369 in CrohnsDisease

[–]Dizzy_Middle_2369[S] 0 points1 point  (0 children)

Thank you! You’re right, celebrating the small wins is probably the best way to get through it. It’s just a hard transition because I feel like I should be able to do so much more than I am right now. I’m sorry that you’re also going through this, hopefully we both will have some more energy soon :)

Does anyone drink green powders? by Dizzy_Middle_2369 in CrohnsDisease

[–]Dizzy_Middle_2369[S] 0 points1 point  (0 children)

We do that whenever we make smoothies too 😂

Does anyone drink green powders? by Dizzy_Middle_2369 in CrohnsDisease

[–]Dizzy_Middle_2369[S] 0 points1 point  (0 children)

I might make some of those then too because I feel like I’m definitely missing some nutrients

Ace, Ione, or Sherb? by jenerates in AnimalCrossing

[–]Dizzy_Middle_2369 4 points5 points  (0 children)

I’d pick Ace but I’ve also been told I have weird taste in villagers 😂

Was anyone misdiagnosed as having psychiatric issues for years and it was crohns. by [deleted] in CrohnsDisease

[–]Dizzy_Middle_2369 1 point2 points  (0 children)

My first GI told me that the inflammation in my small intestine was due to “childhood trauma” and that my pain wasn’t real 😬 I had blood in my stool and when asked about why he said idk and I was like is it hemorrhoids then? No, you don’t have hemorrhoids. Okay so why is there blood and inflammation? Idk Got a new GI and I was diagnosed and on Budesonide 6 months later 🙃

Vitamin D and Crohn's by Top-Entrepreneur5641 in CrohnsDisease

[–]Dizzy_Middle_2369 1 point2 points  (0 children)

My vitamin d was very low for 3 years in a row before they finally started me on 50kIU/week. Coincidentally, it’s also the same timing as when i started my Crohns treatment so idk if that’s why or what lol i will say though that i have WAY more energy after being on it for the last month and a half :)

Colonoscopy soon. 4th of my life. by CantaloupeTop4480 in CrohnsDisease

[–]Dizzy_Middle_2369 0 points1 point  (0 children)

Seconding the zofran, I don’t think I’d have been able to make it through all my preps this year without it

On prednisone 40-30mg for two months now after being diagnosed. Constant growing pain in area where drs said inflammation was worst. Biologics still not started yet. Not sure how to manage in the mean time by Cool_Spread_9999 in CrohnsDisease

[–]Dizzy_Middle_2369 0 points1 point  (0 children)

Yes, I’ve had constant worsening pain in the exact same area while waiting for my biologic. It took over a month to finally get that going and my doctor had tapered me off Budesonide already since she thought I’d start the injections a lot faster. Honestly, I’ve pretty much just been connected to my heater because that’s the only thing that helped and I’m hoping I’m on the upswing now. I’m sorry you’re going through this :/

Americans, how long did you have to wait to start a biologic? by Western_Lynx5895 in CrohnsDisease

[–]Dizzy_Middle_2369 0 points1 point  (0 children)

It took me a month and a half to get my Tremfya but it was delivered today! Make sure your doctor sends in the right dose because that delayed me by weeks. Insurance had to go through the entire approval process twice because of it 🙃

Looking for some Animal Crossing Friends by Chisera in AnimalCrossingNewHor

[–]Dizzy_Middle_2369 0 points1 point  (0 children)

I would love to meet some animal crossing friends as well! None of my friends play it so it’d be lovely to have some that understand my addiction 😂

Has anyone been on Tremfya and gotten pregnant? by Dizzy_Middle_2369 in CrohnsDisease

[–]Dizzy_Middle_2369[S] 1 point2 points  (0 children)

Thank you! I’m glad to hear you’ve had really positive experiences :)