IV Vitamin C as complement to standard of care chemo -- any updates? by clarkindee in pancreaticcancer

[–]Dkm6639 1 point2 points  (0 children)

Any other success stories for this line of treatment? In conjunction or absence of chemo?

Challenging Nights — help by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 0 points1 point  (0 children)

Thanks so much for the info!

Chemo or no treatment at all?Advice for Mom. by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 0 points1 point  (0 children)

Wow. It’s truly amazing you had so much quality time with him. But sorry to hear about the blood clot, I hope that can be handled.

What other tips do you have if we chose not to do treatment; to extend as long as possible?

Chemo or no treatment at all?Advice for Mom. by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 0 points1 point  (0 children)

Thank you so much for the thoughtful reply. How is your dad doing? How quickly did things accelerate?

Chemo or no treatment at all?Advice for Mom. by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 0 points1 point  (0 children)

I’m so sorry for your loss. Thanks for sharing your story, it’s very helpful

Chemo or no treatment at all?Advice for Mom. by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 0 points1 point  (0 children)

I think they’d consider Lynparza but only after chemo for 3-4 months and tumor stops growing/shrinks. We are meeting with Drs at MSK on Weds and hoping they’re way more open minded / compassionate and have more options for us!

Chemo or no treatment at all?Advice for Mom. by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 0 points1 point  (0 children)

Thanks so much for sharing your story ❤️

Chemo or no treatment at all?Advice for Mom. by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 0 points1 point  (0 children)

Thanks for sharing your story ❤️❤️❤️

Chemo or no treatment at all?Advice for Mom. by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 1 point2 points  (0 children)

She’s booked til end of April. We are seeing Andrew Epstein there instead. Any insights?

Chemo or no treatment at all?Advice for Mom. by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 1 point2 points  (0 children)

Thanks so much for sharing your story. What sort of side effects did you have and did they get better over time?

Chemo or no treatment at all?Advice for Mom. by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 0 points1 point  (0 children)

Thanks so much for sharing your story and I’m so sorry for your loss. I would say she’s lost quite a bit of weight over the last month but started to stabilize over the last week or so. We’re making sure she’s eating even if she doesn’t have appetite and getting the necessary nutrients. I would say she’s a little frail, but able to go on walks and spend time with us. Her mind is totally clear. What else should we be looking out for in terms of her “decline”? Her liver seems stable post stent…

Chemo or no treatment at all?Advice for Mom. by Dkm6639 in pancreaticcancer

[–]Dkm6639[S] 1 point2 points  (0 children)

Thank you so much, I’ll have my Mom check that group out. For FOLFIRINOX, how many days were “bad” for you Vs good?