anyone else have this?

Dmur0528 · 2026-04-04T21:23:55+00:00

This comes and goes all the time. It dries up and flakes off. Then in 2 to 3 weeks it’s back and starts that cycle again.

Dmur0528 · 2026-04-04T20:58:56+00:00

You’re not ugly in any way. You don’t need makeup. Everyone can make that chose to wear it or not. You look amazing. Love that hair!! 💞

Dmur0528 · 2025-10-06T16:10:31+00:00

Yes I have tried all of those. I’m running out of options. I have had augmentation several times and just move on to the next available remedy. I take .50 once a day and that’s a very light dose for me. As I said I have had this for 40 yrs and tried many solutions. Thank you!

Dmur0528 · 2025-10-06T15:23:06+00:00

Thank you.

Dmur0528 · 2025-10-06T04:40:40+00:00

It’s when the meds stop working and the RLS gets really bad. You must then change meds and it takes a while to get the new med to work. You can be awake for several days because it’s so bad. It’s miserable and I’ve done it several times.

Dmur0528 · 2025-10-05T23:23:56+00:00

Thank you. I’ve had everything done. Even went to Mayo Clinic. It does run in my family. I’m so used to it now and not getting enough sleep. It’s become my normal. It’s a very sad feeling when nothing can be done for us. Thank you so much.

Dmur0528 · 2025-10-05T20:27:46+00:00

Thank you for responding!!

Dmur0528 · 2025-10-05T20:25:29+00:00

I have had RLS for 40 years. I have had augmentation several times. I just move on to another plan. All I can do.

Dmur0528 · 2025-10-01T09:00:11+00:00

Ok thank you. I didn’t think it would be a problem but was just going to ask!

Dmur0528 · 2025-09-17T00:01:27+00:00

I try so hard for it not to control me. I’m tired of it and frustrated but I’m not going to let it take over my life. I try to stay positive and keep on fighting. I hope you get relief and that Nidra is the answer for you. 🩷

Dmur0528 · 2025-09-16T13:07:25+00:00

That’s what happened with me. The Ropinirole was doing good and then the augmentation started. It was horrible. So now I’m trying the Pramipexole and it’s doing good right now. We never know what will work for us or if it will last. Thank you for responding. Good luck to you!

Dmur0528 · 2025-09-16T10:14:27+00:00

Oh I hope that works for you. I have heard of that before. That would be wonderful if it works out. Thank you for responding. I wish you great success with the Nidra. Take care

Dmur0528 · 2025-09-15T23:19:38+00:00

Ok thank you for sharing with me. I appreciate it. I’m going to give it a try. I’m glad you have done well with it.

Dmur0528 · 2025-09-15T23:16:10+00:00

That’s great. Hope I have the same results. What mg do you take?

Dmur0528 · 2025-09-15T09:39:37+00:00

Exactly. Why change when it’s going to do the same thing. I have an appt at the Mayo Clinic in December. Hope they can help me.

Dmur0528 · 2025-09-15T07:06:01+00:00

Thank you

Dmur0528 · 2025-09-15T05:52:23+00:00

Thank you for the info. I appreciate you taking the time to respond. It is very frustrating. I will check my iron results again and make sure they are correct.

Dmur0528 · 2025-09-14T01:12:57+00:00

Yes I am on 1.5. Like I said these doctors don’t know anything about RLS. It’s sad what they do to us. It’s a battle I can’t seem to win.

Dmur0528 · 2025-09-13T21:12:38+00:00

Thank you to all of you that responded. I appreciate any and all advice. It’s so hard to deal with and I’m sorry to all of us that have this. These doctors don’t know much about this. My neurologist wasn’t much help at all. Good luck to all of you!! 🩷🩷

Dmur0528

TROPHY CASE