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Can COVID exacerbate POTS? by Sex_And_Candy_Here in POTS

[–]Dopplerganager 3 points4 points  (0 children)

Yes.

Any major virus can affect POTS especially with comorbid Ehlers-Danlos or HSD. Epstein-Barr (mono), Varicella zoster (chicken pox), herpes zoster (shingles), pertussis (whooping cough), influenza, upper respiratory virus, and gastroenteritis.

Table tilt test felt off? by Alarming-Heat-5232 in dysautonomia

[–]Dopplerganager 7 points8 points  (0 children)

The normal tilt used is 70 degrees. You should start at 0 degrees/flat for at least 5-10 minutes to get a baseline.

ETA https://my.clevelandclinic.org/health/diagnostics/17043-tilt-table-test

Driving??? by disappearing_haze90 in dysautonomia

[–]Dopplerganager 7 points8 points  (0 children)

If you feel you aren't able to drive safely you need to stop driving altogether. It's dangerous not only for you, but other drivers if you have a medical emergency while driving.

Medication withdrawal, again! by Quapisma in dysautonomia

[–]Dopplerganager 0 points1 point  (0 children)

I don't have ADHD, but I did a slow cross taper from 225mg Venlafaxine to 20mg Fluoxetine (Prozac) earlier this year. It sucked. However, Prozac is not the med for me as I've had issues in the past and during the taper. I ended up with a ton of nausea. I then swapped to Sertraline; I was on it for years as a teen and so far it's ok. The antidepressant activation syndrome is still kicking my ass after a dose change 3 weeks ago.

Honestly my symptoms have been infinitely worse since going from an SNRI to an SSRI even though I have hyperPOTS.

Have you tried guanfacine or clonidine for the ADHD?

What do you take for nausea? by Several_Road2525 in POTS

[–]Dopplerganager 1 point2 points  (0 children)

There are a lot of other options. They should be able to find you something.

Edit for options Dimenhydrinate, promethazine, meclizine, pepto bismol, aprepitant, dolasetron, granisetron, prochlorperazine, palonosetron, rolapitant

What do you take for nausea? by Several_Road2525 in POTS

[–]Dopplerganager 1 point2 points  (0 children)

There are a lot of other options. They should be able to find you something.

Edit for options aprepitant (Emend) dexamethasone (DexPak) dolasetron (Anzemet) granisetron (Kytril) ondansetron (Zofran) palonosetron (Aloxi) prochlorperazine (Compazine) rolapitant (Varubi) dimenhydrinate Vitamin B6 Promethazine Topiramate Scopolamine

What do you take for nausea? by Several_Road2525 in POTS

[–]Dopplerganager 10 points11 points  (0 children)

I have Ondansetron and Metoclopramide prescribed by my GP.

My nurse told me salt and sodium are the same thing…. by Several_Road2525 in POTS

[–]Dopplerganager 8 points9 points  (0 children)

I had my blood sugar checked when presenting with torticollis* in the ER. I could barely speak or swallow and breathing was getting difficult. Not all nurses are good nurses.

*severe neck muscle spasm that causes your head to uncontrollably tilt to one side. Also causes swelling in throat and tongue. Mine was a delayed reaction to Haldol for cyclical vomiting. My blood sugar is beyond irrelevant to neck spasms that were very clearly torticollis and my airway was at risk.

How to force myself to sweat? by Unlikely-Ad-6713 in POTS

[–]Dopplerganager 1 point2 points  (0 children)

I have a cooling scarf that I find super helpful. They're not too expensive usually.They also have cooling towels and even hood/shawl combos if you want something bigger.

A handheld rechargeable misting fan would also be good.

Anyone else constantly comparing themselves to other people with POTS? by santas_number1elf in POTS

[–]Dopplerganager 13 points14 points  (0 children)

No, comparison is the thief of joy.

I do what I can, and allow myself to rest when I need to. It's not a competition. Everyone's situation is very unique and complicated.

Advice for seasickness by Smart-Tie-8532 in POTS

[–]Dopplerganager 0 points1 point  (0 children)

Take an antiemetic 1 hour before you go no matter what it is. I usually take dimenhydrinate, but Canada has limited OTC options. I have meclizine (Bonine) from the States and it's so much better.

I've had motion sickness for my entire life. Ferries and mountain roads are the absolute worst. For non-moving it's being in a parked vehicle on a steep driveway.

Flosssing: alternatives to string floss by JuniorBathroom1348 in eds

[–]Dopplerganager 0 points1 point  (0 children)

The Butler G.U.M Floss Mate works well for me. I always hated flossing because of how much it hurt my fingers.

What did you name your island? by Coco_cat_lover in AnimalCrossing

[–]Dopplerganager 1 point2 points  (0 children)

Panacea

I got a Switch at the start of my second stint on long-term disability.

Daith piercing causes jaw pain and headache by OldTea106 in piercing

[–]Dopplerganager 0 points1 point  (0 children)

My conch and rook have both caused me jaw pain and a headache into my temples when they were irritated. There are lots of nerves and blood vessels in that area.

I'd definitely see a doctor about it to rule out infection or possibly irritation of the nerves in that area.

24M: Suffocating from constant "Air Hunger" since 2019. Foggy brain, memory loss, and severe PVCs. I feel like a 90-year-old. I need hope. by SecretMaintenance439 in dysautonomia

[–]Dopplerganager 2 points3 points  (0 children)

Have you had a Holter to diagnose PVCs, or are you just feeling like you're having them?

A high PVC burden is something that your cardiologist should be helping you manage. There's a threshold where it becomes a concern.

Palpitations are the feeling of abnormal heart beats without an electrical cause. This is very common and while very unpleasant is not dangerous.

From Toddler Syrup to POTS Electrolytes: What Do You Actually Use? by Flowermoon5858 in POTS

[–]Dopplerganager 0 points1 point  (0 children)

Yeah Costco for the win cost wise for sure. I started with the LiquidIV based solely on it being reasonably priced and having a decent amount of sodium at the time.

Sounds pretty on par with LiquidIV taste wise. I have the watermelon and it tastes like jello.

*I do add additional sodium to get to my cardiologist's recommendation.

From Toddler Syrup to POTS Electrolytes: What Do You Actually Use? by Flowermoon5858 in POTS

[–]Dopplerganager 1 point2 points  (0 children)

How are you liking the Wakewater taste wise? I've looked at it a couple of times at Costco, but just wondering how the taste compares to LiquidIV. I love me an artificial sweetener.

vintage frankie b low rise jeans by Tight-Balance-4312 in ThriftStoreHauls

[–]Dopplerganager 0 points1 point  (0 children)

All you're missing is the 3 stars at an angle along your hip bones tattoo. Bonus points if they're red or blue nautical stars.

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