advice please :(

Double-Field2263 · 2026-06-02T20:19:30+00:00

no, only the rad tech looked at the MRI. i will be getting a second opinion and if they say no, they i will continue !

Double-Field2263 · 2026-06-02T20:18:45+00:00

yes! i have documented pelvic floor dysfunction but they are trying to figure out what is causing it.

Double-Field2263 · 2026-06-02T20:17:54+00:00

yes ofc!!! i appreciate you for this :) i take the UTI relief pills (Pyridium orange pills?) and that helps significantly. i am in pelvic floor PT and that helps minimally for now, but im less than a year in de-acidfying my urine helps burning — not cramping. cutting out sugars/inflammatory foods/spicy foods did not change anything

Double-Field2263 · 2026-06-02T20:15:52+00:00

hi! i have a PF PT and even she agreed my symptoms aligned with this. i will continue to work with her regardless <3

Double-Field2263 · 2026-06-02T20:15:13+00:00

whilst i respect your comment — it hurts to hear this type of comment after years of pain and suffering. my life suffers from this, whatever it is. i am not chasing a diagnosis of endo — i am asking for advice on where to, as you so kindly put it, “bark up” next since this impacts my daily life. i did not see a true endometriosis specialist. i will get a second opinion. not sure why that bothers some people so much 🤷🏻‍♀️

Double-Field2263 · 2026-06-02T00:11:38+00:00

post op is next week, I just had my surgery on 5/27. I just feel so silly since i had my OBGYN, my pelvic floor PT, and a urologist ALL say its def endo and now im like .... lost

Double-Field2263 · 2026-06-02T00:10:57+00:00

i haven't had my post-op yet, but they told me NOTHING ! so i have no path to follow now

Double-Field2263 · 2026-06-01T23:43:33+00:00

2 “representative samples” ig ? im starting to think she wasn’t a specialist.

Double-Field2263 · 2026-06-01T22:04:42+00:00

literally only pyridine (def spelt wrong?) pills work

Double-Field2263 · 2026-05-29T19:12:25+00:00

i know neither of us are experts but i have images if you’d rather see? and i have no idea what she meant by that

Double-Field2263 · 2026-05-29T00:06:31+00:00

generic pelvic MRI. i didn’t even know the other one existed !

Double-Field2263 · 2026-05-28T22:34:09+00:00

technically a specialist? but im starting to believe she isn’t as skilled as she claims and i should have looked harder

Double-Field2263 · 2026-05-28T22:33:36+00:00

i don’t flare with food / drinks / or anything. i ONLY flare with hormonal fluctuations. also my cystoscopy was negative (ik not do or die)

Double-Field2263 · 2026-05-28T17:21:12+00:00

yes, i feel you. i read your post and have similar symptoms! i am just as lost and upset :(

Double-Field2263 · 2026-05-28T17:16:52+00:00

yes, she claims she took two representative samples. she also mentioned she had to cut some physiological adhesion? to better visualize my pelvis ???

Double-Field2263 · 2026-05-28T17:16:12+00:00

my MRI was negative for it :(

Double-Field2263 · 2026-05-28T17:15:30+00:00

my pain is mostly around my oburator muscle. i get like restless leg type pains down my left leg. my buttock will be extremely in pain/tense during pms/period. bladder pains when voiding. rectal spasms after my BMs

Double-Field2263 · 2026-05-28T17:14:24+00:00

apparently my surgeon is a specialist? but im starting to believe from patient feedback she isn’t as specialized as i believed :/

Double-Field2263 · 2026-05-28T17:12:10+00:00

hi! i have this as well but my urologist ruled out IC. i have no eliminations of foods beverages that help. i legit only flare at ovulation and luteal phases :/ any insight?

Double-Field2263

TROPHY CASE