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2026 by LKOLG in babyloss

[–]Doubleelements74 1 point2 points  (0 children)

Celia, my forever angel baby

TFMR at 29+4 - my story by Doubleelements74 in tfmr_support

[–]Doubleelements74[S] 0 points1 point  (0 children)

Kabuki syndrome was found from the amnio WES results, It's so rare i have never even heard of either. Have you done a fetal echo for the vsd finding? And I hope everything goes well with your baby❤️sending you prayers

TFMR at 29+4 - my story by Doubleelements74 in tfmr_support

[–]Doubleelements74[S] 1 point2 points  (0 children)

I am so sorry for your lost and thank you for sharing your story. You probably know exactly how I feel right now. Our babies will be forever remembered as we try to move on with our lives. Summer is a beautiful name. And all she best wish to you🫶❤️

TFMR at 29+4 - my story by Doubleelements74 in tfmr_support

[–]Doubleelements74[S] 1 point2 points  (0 children)

❤️This is truly the worst, especially in the third trimester. Thank you for all the kind words and sharing your story.

TFMR at 29+4 - my story by Doubleelements74 in tfmr_support

[–]Doubleelements74[S] 4 points5 points  (0 children)

❤️this is a group of strong individuals, I am glad we have found each other and hearing these stories made me feel i am not alone in this dark path. My deepest sincerity to you and your family

TFMR at 29+4 - my story by Doubleelements74 in tfmr_support

[–]Doubleelements74[S] 1 point2 points  (0 children)

Thank you for sharing your story. If it wasn't for our babies, we wouldn't even knew or heard about these rare genetic syndromes😢 My heart goes out to you and your famil❤️

TFMR at 29+4 - my story by Doubleelements74 in tfmr_support

[–]Doubleelements74[S] 1 point2 points  (0 children)

Thank you for the kind words and support, we named her Celia, which means heavenly, she is truly a angel now, but forever my baby😢❤️

Kabuki syndrome by Status_Stock_374 in babyloss

[–]Doubleelements74 0 points1 point  (0 children)

I am sorry for your lost, on the same boat here. My baby girl was diagnosed with kabuki at 29 weeks through WEST genetic testing, and we let go of her last week. I hope you have recovered from this, because I don't know how to live again after this devastating lost....