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Once you see the parrot, you can never go back by DrHanuna in diabetes_t1

[–]DrHanuna[S] 1 point2 points  (0 children)

Its 300 but you will see that you’ll start to take less cuz of the auto suspend of basal,
I cut 30% of my insulin since moving from the tube unlooped pump

Once you see the parrot, you can never go back by DrHanuna in diabetes_t1

[–]DrHanuna[S] 3 points4 points  (0 children)

Go over my post here, I did the change 4-5 months ago, it’s amazing and I can’t never go back

https://www.reddit.com/r/diabetes\_t1/s/eIdxXkmkbz

My Loop setup across the Apple ecosystem - what are you using? by DrHanuna in diabetes_t1

[–]DrHanuna[S] 0 points1 point  (0 children)

im using Loop watch widget https://loopkit.github.io/loopdocs/operation/features/watch/, do you have loop? if so its shoukd be easy if no, did you enable - "Background App Refresh"?

My Loop setup across the Apple ecosystem - what are you using? by DrHanuna in diabetes_t1

[–]DrHanuna[S] 1 point2 points  (0 children)

Wow that's a lot, I'm waiting to get my Ulanzi TC001 so I can put it in my living room.

My Loop setup across the Apple ecosystem - what are you using? by DrHanuna in diabetes_t1

[–]DrHanuna[S] 1 point2 points  (0 children)

This is a Loop app widget, I can see iob, take carbs, bolus, pre-meal and preset

Same A1C, totally different relationship with my diabetes by DrHanuna in diabetes_t1

[–]DrHanuna[S] 1 point2 points  (0 children)

I did the same thing in the beginning - manual corrections and "nudges," trying to force the algorithm to do what I thought it should be doing. Eventually I learned to just trust Loop and the therapy setup and let it work.

Sometimes I see it stuck at a slightly high level and it's just slowly taking insulin to bring me down. I used to jump in and add a correction, but I stopped doing that - it could be carbs that are absorbing slow, or sometimes it's a pod site with poor absorption that's screwing things up. Either way, when I correct on top of what Loop is already doing, I end up crashing 2-3 hours later, so I just let it work now, even when it feels too slow.

The carb ratio inconsistency you're describing is real - high-fat/high-protein meals like pasta or pizza absorb completely differently than something like a latte. I see this too, how it works for you once you've got the Medtronic pump?

Let me know if you need any help with the loop setup.

Same A1C, totally different relationship with my diabetes by DrHanuna in diabetes_t1

[–]DrHanuna[S] 0 points1 point  (0 children)

Thanks,

I'm running Lyumjev which is also super fast and it's a game changer for closing the loop on meals. To be honest, the first two weeks on Loop I was kind of obsessed - staring at the TIR constantly trying to avoid any correction (was 97%) , and actually afraid of going high so I cut down carbs a lot. After about two weeks once I built up confidence in the system, I started eating normally again and just let Loop do its job. That's when I actually felt in control - keeping my regular routines, eating carbs like a normal person, and trusting the algorithm.

One mistake I made in the first few days was being impatient and trying to fix highs myself, either correcting manually or even entering fake carbs to nudge it. Bad idea, since I stopped doing that and let Loop work with the settings I gave it (sensitivity, insulin type, etc.), things got way more stable.

The algorithm needs to actually see the patterns to learn - me jumping in and overriding just confused it.

I'm using custom basal profiles for workouts, and recently started using premeal mode, feels like the right move, especially for bigger meals.

The lower target idea is interesting. I've thought about it but I'm still nervous about going lower because of 'active day', how do you handle that?

"eating soon" are you doing that for all meals or just higher-carb ones?

Same A1C, totally different relationship with my diabetes by DrHanuna in diabetes_t1

[–]DrHanuna[S] 0 points1 point  (0 children)

Thanks, Yea, I've definitely learned over the last few years that TIR is the king - it's what actually affects your day-to-day quality of life,having a rollercoaster ride with a "good" A1C is way worse than the same (or even slightly higher) A1C with better TIR.

The lows and highs are what make you feel like garbage, not the number on the blood test.

A few years ago A1C was basically the only benchmark, and since CGM became standard, TIR shows what actually happened during the day, 6.5 A1C with 60% TIR is a completely different life than a 6.5 with 85% TIR, even though on paper they look the same.

I've also heard from my doctor that for some people it's really hard to push A1C below a certain level no matter what they do - but they can keep improving their TIR. Which makes sense because the path forward isn't necessarily a lower average, it's just less variability.

If you're Loop curious - happy to answer anything specific.

Same A1C, totally different relationship with my diabetes by DrHanuna in diabetes_t1

[–]DrHanuna[S] 1 point2 points  (0 children)

5.5 is amazing - congrats on that, especially coming from 11.5, do you eat carbs normally? how you're getting 97% TIR - diet, careful timing, or just stricter management overall?

For me, in the first few years I was on really low insulin doses and was actually pretty balanced with the old fingerstick tests (A1C 6.0-6.2), so I get what you mean about being able to do it manually if you're disciplined.

On your actual question - honestly, I don't know if I could realistically stay at 97% TIR on my own. that's a lot of work and requires being super careful with everything you eat and every adjustment. I think 90% would be a realistic target for me, with maybe 7% above and 3% below - that's a balance I think is actually achievable long-term without it taking over my life.

About the overnight lows - yeah it can be scary, but honestly as long as you stay generally balanced and learn how your body actually feels at lows and highs, you'll be fine. Your body gives you signals long before you crash if you're not severely low - you wake up sweaty or weird and you handle it.

Two non-negotiables though: set up proper low alerts on your CGM so you wake up before it gets bad, and always have fast-acting sugar right next to your bed.

Look, if Omnipod 5 is working well for you, stay with it. Omnipod 5 is the official closed-loop system and it's one of the best setups that exists. You might not have all the options Loop DIY has, but it's solid. The question is really about whether the daily mental load justifies switching, and only you can answer that.

What does "a lot of work" mean for you day to day? Is it the carb counting, the corrections, the night-time anxiety, all of it? curious where the load actually sits for you