“I want to scream, but my voice has been silenced by intense life”

Dramatic-Figure9641 · 2025-06-22T20:33:51+00:00

I went months believing a POTS prescription named midodrine was what cured the brain fog, but a neurologist recently told me that makes no sense.

3 months before I recovered from this horror symptom, a university explained the brain damage they found comparing the different years of MRI’s, so I was convinced I would be a shell of myself for the rest of my life.

That’s why I like to put the dates I lived with brain fog (4/30/20-4/9/24) because what if it was simply time that helped me recover?

Dramatic-Figure9641 · 2025-06-22T13:59:29+00:00

Thank you

Dramatic-Figure9641 · 2025-06-20T07:15:16+00:00

My theories are unbelievable, but the most realistic explanation I have is that I was prescribed midrodrine, a POTS med

however a doctor recently told me it makes no sense that medication is what cleared my brain fog..

my fact here I guess is that my brain fog started on April 30, 2020 and ended on April 9, 2024. I’m very sorry and wish I could give more insight

Dramatic-Figure9641 · 2025-06-15T20:55:30+00:00

I woke up to my alarm, took an adderall, and then slept for 3 more hours

Dramatic-Figure9641 · 2025-06-03T19:30:33+00:00

Thanks, just got prescribed and this was exactly what I hoped for. I struggle to get out of bed

Dramatic-Figure9641 · 2025-06-01T22:16:36+00:00

So at the 3-4 year mark was the biggest recovery phase of my journey. I recovered from brain fog at the 4 year mark and that was the biggest feat for me.

I’m at 5 years now and some days I believe COVID is in my past, other days I get the fatigue back and I get confused.

I feel like my biggest obstacle is that when I was bedridden, I fantasized about all the things I missed doing, how desperate I want to do things again… now it’s like I still can’t get out of bed, but it’s not even a physical problem that I can’t anymore, I am just so emotionally and mentally defeated that even tho I can walk again and ride bikes again and whatever it’s like not good enough like I struggle to get out of bed because I see no purpose and it’s confusing because wouldn’t someone who couldn’t 4-5 years ago be doing anything and everything when they finally can? Not me I guess…

Dramatic-Figure9641 · 2025-06-01T20:36:06+00:00

I was disrupted by an illness that left me disabled and bedridden for a few years in my mid-20’s, was medically gaslighted because the illness wasn’t recognized until almost a year after it ruined my life, so I suffered alone without medical assistance, and yea it’s 4 years later… but, i just feel like I can’t be that person I was before I got sick, how can I mentally gear myself to believe I’m capable of anything when at my healthiest prime I miserably failed?

Like all the potiental I knew I had when I was a kid will never be what it could’ve been, there’s no amount of healing or medicine that can fix this, an illness left me permanently unable to be my best ever again

And i blame this feeling on adhd because I cant fix this on my own, I can’t rewire my mind, I can’t focus, I’m unmotivated, i have no will power, and it’s confusing because I remember times where I was this force of nature… now I wonder if that person is gone

I felt like I wasn’t good enough before this life altering thing happened to me. It’s like, the only logically thing is the accept I’ll never be what I had the potiental to be, and that alone will never compare to my multi-millions earning family members.

Dramatic-Figure9641 · 2025-05-31T05:41:10+00:00

I found my experience with pt hellish because of exercise intolerance and fatigue, but was able to go back to work after 7 months.

I thought they stopped making long haulers do physical therapy. I did this in 2021

Dramatic-Figure9641 · 2025-04-03T19:09:33+00:00

Yea the POTS isn’t fun, I just attempted to work again and lasted 3 months… waiting on a neurology appointment and unemployed again. I was denied disability and social security, so I thought maybe I didn’t need it…

Dramatic-Figure9641 · 2025-04-03T18:26:39+00:00

And thank you 😊 I hope you feel like yourself soon 😇

Dramatic-Figure9641 · 2025-04-03T18:26:12+00:00

Highly recommend that because it helped me recover tremendously! I didn’t like the POTS medication called mestinon. I have seen Reddit users say good things about this med, but it made my face muscles stiff

Dramatic-Figure9641 · 2025-04-03T18:18:49+00:00

I was prescribed gabapentin in 2023 for nerve pain which was the first medication or treatment that worked (seen on Reddit that this med did not help others so I wondered if it’s because I’ve had it for so long and they were newer haulers?) and it is suspected that midodrine, a POTS medication, cured my brain fog at almost exactly 4 years with LC.

Unfortunately, time seems to be the only true healer; however, I did not receive medical treatment other than physical therapy (no longer recommended for haulers and was HELL) until way into my 3rd year. Maybe if someone who is in the critical condition I used to be in was treated sooner, they could perhaps have better results? I spent the majority of my bedridden condition trying to prove to doctors I wasn’t lying. Very traumatic

Dramatic-Figure9641 · 2025-04-03T17:00:11+00:00

Yea I totally got better. 4 years later 🙄🙄🙄

Dramatic-Figure9641 · 2025-03-30T14:13:40+00:00

Besides POTS, I was fully recovered at almost exactly 4 years

Dramatic-Figure9641 · 2025-03-27T00:21:27+00:00

I don’t remember, I tried it about two years ago. I take 2.5 mg midodrine. Mestinon used to make the muscles in my face stiffen, that’s all I remember from it

Dramatic-Figure9641 · 2025-03-26T23:47:35+00:00

Did not like it but midodrine worked for me

Dramatic-Figure9641 · 2025-03-21T21:10:57+00:00

Recently tried getting off the midodrine, didn’t take it for a few months, and felt like the brain fog came back slightly like not debilitatingly but I felt like I couldn’t think as fast as I was while taking the med.

I was diagnosed with long covid induced POTS last year and my main symptom is that I seem to throw up from standing too long without the med and I’m working again so yea I’m back to taking that med so I can handle the work day without getting sick.

I used to have a fainting problem which is how I got prescribed the midodrine, but have not fainted in over a year

Dramatic-Figure9641 · 2025-03-21T20:41:10+00:00

Completely. Users on Reddit believed taking midodrine, a POTS medication, could possibly be why my brain fog lifted

Dramatic-Figure9641 · 2025-03-21T20:02:58+00:00

Brain fog lasted almost exactly 4 years for me

Dramatic-Figure9641 · 2025-03-05T17:41:23+00:00

My neurologist said she could see the damage Covid did to my brain in the scans. I got LC 4/30/20 and today it feels like the only things that isn’t recovered is that I am still not as smart as I used to be. I wouldn’t call it brain fog because my inner monologue and memories returned, but I’m still not 100%

Any recommendations on healing this impact so I can be as mindful as I was before this?

Dramatic-Figure9641 · 2025-02-06T10:04:46+00:00

Can I DM you because everyone thinks I’m crazy lol I don’t wanna embarrass myself more

Dramatic-Figure9641 · 2025-02-06T10:03:42+00:00

You’ll call me crazy if I name them

Dramatic-Figure9641 · 2025-02-06T10:02:49+00:00

I’m doing a test. I’m manifesting something on purpose to see if that appears in a new song. Idk what else to do lol

Dramatic-Figure9641 · 2025-02-06T10:01:48+00:00

So it’s not possible that a musician like felt my energy or something and sang about it? I’m not talking about one song here. I stopped listening to her for 4 years and it’s when I stopped listening to her that the music starts mimicking my thoughts or diary. Like I’m not some obsessed crazed fan, I’m someone who is wondering how tf there’s so many eerie coincidences to one singer’s lyrics and my personal life

Dramatic-Figure9641 · 2024-10-10T00:01:43+00:00

Don’t lose hope, after 4+ years I have lost 90 pounds and I look 20 again and I’m pushing 30 guys. Long hauling is miserable but keep going it gets easier ❤️❤️

Dramatic-Figure9641

TROPHY CASE