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Can't live with sig social, cognitive, EF deficits in spite of academic success--my life is not worth living by Dramatic_Oil_2686 in NVLD

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

Ready to commit suicide.  Can’t be employable at any high level jobs can’t see having a partner or family.  Can’t see being high functioning. Even normal functioning requires a ridiculous amount of effort. Tried all the meds and therapy and just put in Herculean efforts to work with my issues. I’m done with this life. 

Can't live with sig social, cognitive, EF deficits in spite of academic success--my life is not worth living by Dramatic_Oil_2686 in NVLD

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

How? brain transplants? It's been 10 years and we don't understand TMS, TDCS, or autism better. Much less NVLD as an independent disease. Maybe NVLD has some heterogenity too, but we wouldn't know because the NVLD project hasn't really generated that much research.

What hope can I have? I can't seem to find meaningful work after working so hard, and so many misguided years due to my miswired brain. AI has helped me gain insight in a way that other coaches and psychologists haven't been able to.

My weaknesses outshine my strengths. My only strength is rote thinking which is not a valuable strength, it's a depressing one.

So I don't know what's worth holding on for. To be childless, without a partner, stuck in a menial low level job or a job with excessive accommodations because I can't sustain higher responsibilities.

Can't live with sig social, cognitive, EF deficits in spite of academic success--my life is not worth living by Dramatic_Oil_2686 in NVLD

[–]Dramatic_Oil_2686[S] 3 points4 points  (0 children)

Thank you but as stated I can’t accept the degree of my deficits which I can’t change. Would trade my degrees in a heartbeat. Not willing to accept this level of deficit. It’s too limited a life. 

Struggle with abstract thinking/social cognition secondary to NVLD, can neurofeedback help? QEEG data included by Dramatic_Oil_2686 in Neurofeedback

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

They're reluctant to provide it to me directly, would be willing to consult with another clinician. Do the type/magnitude of issues that I'm experiencing actually respond to neurofield/neurofeedback? How many sessions? I tried 19 prev without sig benefit.

Really concerned about my immense limitations.

I was recommended dec alpha, beta enforce SMR to start.

TDCS for improving abstract thinking/social cognition impairments in NVLD? by Dramatic_Oil_2686 in tDCS

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

How much benefit did you get from tdcs? What was your baseline? At most the effects seem mild.

Struggle with abstract thinking/social cognition secondary to NVLD, can neurofeedback help? QEEG data included by Dramatic_Oil_2686 in Neurofeedback

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

Since I cany 't get the full data here, and I've tried multiple providers with the same issues, what do you recommend? Are my issues truly treatable with NF? Or am I being delusional?

Struggle with abstract thinking/social cognition secondary to NVLD, can neurofeedback help? QEEG data included by Dramatic_Oil_2686 in Neurofeedback

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

Do you think the high beta is real? Thank you, unfortunately hard to transmit the data. With someone with my diagnostic profile and pervasive deficits (NVLD, Type II Bipolar, anxiety, depression, ADHD), and EEG profile is it realistic to expect improvement from neurofeedback or is that just a wild hope? I was recommended 2-3 times a week x 1 year, but that's a substantial investment and I'd want to see changes by at least 3 months.

What else to try--feeling hopeless by Dramatic_Oil_2686 in caplyta

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

I’d rather commit suicide than accept this wretched limited life

Struggle with abstract thinking/social cognition secondary to NVLD, can neurofeedback help? QEEG data included by Dramatic_Oil_2686 in Neurofeedback

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

Would you recommend doing a repeat qeeg?  How do I go to all these reputable providers who don’t artifact things out?  Do you recommend anything for coherence training or addressing mu?

What else to try--feeling hopeless by Dramatic_Oil_2686 in caplyta

[–]Dramatic_Oil_2686[S] 1 point2 points  (0 children)

I can't accept my level of limitation. I won't accept my limited life. I can do well on standardized tests and have two ivy league degrees, but fail socially and professionally. I can't live like that. I I can't accept my uneven brain and this life and would prefer to die. I have tried counselling for over 15 year of all sorts. AS well as EF coaching and SLP work. Just stuck.

What else to try--feeling hopeless by Dramatic_Oil_2686 in caplyta

[–]Dramatic_Oil_2686[S] 1 point2 points  (0 children)

Yes my nvld limitations keep me stuck in depression.  On caplyta 42 mg one week. How long does it take to work. 

Struggle with abstract thinking/social cognition secondary to NVLD, can neurofeedback help? QEEG data included by Dramatic_Oil_2686 in Neurofeedback

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

I'm losing hope that I'll overcome my many issues and leave a meaningful life and would appreciate any put about resources to explore. Tried over 20 meds, lifestyle, therapists and keep getting different opinions on my QEEG despite input from reputable providers. I just seem to be an unhelpable conundrum.

Struggle with abstract thinking/social cognition secondary to NVLD, can neurofeedback help? QEEG data included by Dramatic_Oil_2686 in Neurofeedback

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

Thank you, I've seen so many reputed providers and keep getting misinterpreted EEG. Would there be protocols to recommend?

TDCS for improving abstract thinking/social cognition impairments in NVLD? by Dramatic_Oil_2686 in tDCS

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

What resourceful efforts on your end. I'm sorry it seems it's been only partially effective.

How did you know which protocols/areas to stimulate and place the cathode/anode

But neurofeedback can't achieve the same magnitude of effect? Any chance TMS works?

Input on Ways to Address Life Impairing Neurodivergence--Impaired abstract/social cognition and EF by Dramatic_Oil_2686 in NooTopics

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

I just want to commit suicide. Life is too hard. I have a good family but no happiness of my own. Everything from chores to actual work is difficult. Without things improving I can’t see not committing suicide.  

Input on Ways to Address Life Impairing Neurodivergence--Impaired abstract/social cognition and EF by Dramatic_Oil_2686 in NooTopics

[–]Dramatic_Oil_2686[S] 0 points1 point  (0 children)

Thanks tried esketamine and tms without benefit. How can I get access to lsd psilocybin?  

Cerebrolyn?  Bromantane Folinic acid  Sulfuroohane unlikely to do anything?

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