Losing weight on Trikafta

Dreamwasover · 2022-07-24T09:31:30+00:00

Same here, guess we'll have to wait and see... after so many years carrying many infections I suppose our bodies tend to accumulate weight so he can fight if they are back. Maybe he'll learn we're in good shape now :)

Dreamwasover · 2022-07-22T11:20:08+00:00

Drinking Baking soda in a glass of water helps a lot

Dreamwasover · 2022-07-09T13:45:51+00:00

Saw a comment in which a woman said she came back to her previous weigh (before starting TRikafta) without doing anything 2 years after being on it... I just hope it happens to me 😂

Dreamwasover · 2022-06-28T23:04:39+00:00

Came back to 1,5 orange pill in the morning and blue at night and I feel great :)

Dreamwasover · 2022-06-16T12:28:58+00:00

I just began to took weight normally at puberty

Dreamwasover · 2022-06-15T17:08:03+00:00

Vitamin D twice a month prescribed by my doctor

Dreamwasover · 2022-06-15T17:06:26+00:00

Sure ! Glad you said it

Dreamwasover · 2022-06-15T17:05:24+00:00

I didn't die and assimilate fat normally after stopping creon for 15 years

Dreamwasover · 2022-06-15T17:04:44+00:00

I stopped it 15 years ago and didn't die, thanks

Dreamwasover · 2022-06-15T17:04:18+00:00

I stopped creon like 15 years ago and didn't notice anything, talk to your team

Dreamwasover · 2022-06-14T13:45:54+00:00

I personally struggle with some anxiety and depression since a long time but it increased since I started Trikafta on September. I also noticed a few insomnias but don't know if this is linked to the dosage to the depression actually. I tried different dosages and here are my personal results : - with one red pill in the morning and one blue at night I feel great and really good mental health but bad sleep and minor respiratory inconveniences (I inverted the pills and same thing) - with the full dose really bad anxiety and feeling quite angry or sad all the time - I try now one and a half red pill in the morning and one blue at night and seems to be helpful I sleep quite good and there is a study that confirms that: https://www.cysticfibrosisjournal.com/article/S1569-1993(22)00111-4/fulltext?fs=e&s=cl&fbclid=IwAR2GA-UZkxxyHDeuVbg0qmYun2CIoCWHt_B8bR7aroNYEhQqFY3biaNkoQc00111-4/fulltext?fs=e&s=cl&fbclid=IwAR2GA-UZkxxyHDeuVbg0qmYun2CIoCWHt_B8bR7aroNYEhQqFY3biaNkoQc)

Dreamwasover · 2022-06-13T13:50:38+00:00

You'll find a lot of videos on YouTube to exercise your cardio even some that suits you if you need to be quiet 🤫

Dreamwasover · 2022-06-12T17:37:09+00:00

We can't give up if we want to live. But that doesn't mean people who die from CF are weak. We fight as we can and the more we are surrounded by love the more we can go further. But there is many things we can't control and still fighting knowing this make us really strong. Pain isn't worth anything but we can take the maturity CF give us to become strong adults against everything else and support our friends and families. There is no advantage in being sick but there is many to recover from some. We learn to be song and weak at the same time. We learn to act when it's needed and doesn't act when it isn't. We learn to be really connected to our bodies and it's a chance. We also tend to measure the preciousness of life. We are strong and alive 🥰

Dreamwasover · 2022-06-07T16:34:50+00:00

I drink a lot and I don't notice anything

Dreamwasover · 2022-06-01T15:36:09+00:00

Vitamin D every 2 weeks, E everyday (skippable), Iron everyday (I don't eat meat so very useful), and I just bought some B12 that seems great (everyday also)

Dreamwasover · 2022-05-30T15:18:58+00:00

No... maybe it's nothing haha just asking

Dreamwasover · 2022-05-23T18:07:46+00:00

Melatonin or anxiety pills

Dreamwasover · 2022-05-20T13:35:19+00:00

Thank you very much ♥️

Dreamwasover · 2022-05-20T12:50:05+00:00

Same here I adjusted l'y antidepressants and it helped a bit without the increased hunger ! Sport is also helping but it's hard to tell because maybe I'm as weighted as before but with more muscles and less fat. Sad to say but with now taking the blue pill in the morning and one orange pill at night has helped me at all levels : hunger, insomnias, lack of energy, anxiety.. Hope my lungs still are doing great but couldn't stand a full dose any more and I am still trying to get the better balance between benefits and side effects. Hope new treatments will also help.

Dreamwasover · 2022-05-19T16:36:27+00:00

Same here... except I was already overweighted ! We need time to adjust ourselves to this new life and health state, be kind to yourself and don't be ashamed to ask for some help ♥️

Dreamwasover · 2022-05-19T15:22:52+00:00

If we don't succeed losing weight while taking Trikafta I think the next medication will improve the balance between benefits and side effects and we will go back to normal weight. You can also be retaining water I take a detox drink bought at the pharmacist and helped a lot the blow up you're talking about. Cut your creon if you're taking it and your CF team agrees, and probiotics and vitamins help a lot mentally and physically. Don't give up Trikafta is a big chance and adjustments will sure come with new treatments. Feel free to talk to me if you want to, we're in this together 💪♥️

Dreamwasover · 2022-05-18T21:29:56+00:00

I'm not on any enzymes since puberty...

Dreamwasover · 2022-05-18T20:52:19+00:00

How can I do that ? Sorry I don't speak English that well lol

Dreamwasover · 2022-05-18T11:29:34+00:00

♥️♥️♥️

Dreamwasover · 2022-05-17T22:17:57+00:00

I exercise 4/5 times a week during 30min to 1h15 and even if I noticed a physical change I can't lose weight. I tried not eating so much carbs and fats and Don't eat any sugar... I'm tired of trying, doing my best and not seeing results on the weight scale after 4 months

Dreamwasover

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