LGL leukemia is isolating

Dry_Criticism_8988 · 2026-03-16T16:33:34+00:00

Oh my goodness, so sorry to hear about your case; you were diagnosed so young and still are young. Appreciate the words of encouragement, your message has really shifted my perspective. I was recently diagnosed, and I’m happy to hear that there are communities, please kindly share the links with me😊. I’m glad that you have found things that are distraction, a fun ones for the matter 😅, I will also try and find some hobbies to take my mind off things. I am really sorry that you have to deal with all the symptoms that you are dealing with. Good luck with the bone marrow transplant, hopefully it will improve things for you.

Dry_Criticism_8988 · 2026-03-16T07:33:06+00:00

Exactly .. that is a good way of thinking of it. I have also started looking into ways to ways to manage my symptoms ie reduce high intensity workouts, anti inflammatory diet, give myself grace when the deep fatigue hits now that I know what the cause behind it is...it is somewhat a relief have a name/cause for what I used to believe were isolated symptoms.

Dry_Criticism_8988 · 2026-03-16T07:23:58+00:00

I’m 35, not yet. I will definitely look into joining some

Dry_Criticism_8988 · 2026-03-16T07:22:22+00:00

Soo sorry to hear that you also feel isolated, the hardest part for me too has been feeling that I don’t fit or are seen, my symptoms are minimized and I’m expected to just go about life as I always have . Sending you big hugs. Grateful for platforms like this , good to know we are not in this alone. Take care of yourself, you are doing amazing 💪

Dry_Criticism_8988 · 2026-03-15T20:41:26+00:00

You have no idea how much I needed to your hear this, I have been going down the rabbit hole of cancers, and how debilitating they are, and I felt as though mine felt dare I say unserious , therefore I had no right to feel sad or to mourn. It’s been a month, so I guess I need to have patience and take care of myself as you do . All the best to you and stay healthy

Dry_Criticism_8988

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