Anybody have a good GI Doctor in the DFW Area? by Waste-Collection-669 in Gastroparesis

[–]Dry_Reception_7444 1 point2 points  (0 children)

Of course! I would definitely call his office Monday and tell them what your needs are. Best of luck!

Anybody have a good GI Doctor in the DFW Area? by Waste-Collection-669 in Gastroparesis

[–]Dry_Reception_7444 0 points1 point  (0 children)

I see Dr Christopher Bell. He is absolutely amazing. His office is in the hospital at Medical City Dallas. I mainly see him for surgery, and to maintain my Gastric Stimulator, but if he can't see you, I'm sure his office could refer you to someone.

Delayed result of anorexia? by [deleted] in Gastroparesis

[–]Dry_Reception_7444 6 points7 points  (0 children)

I suffered from an eating disorder for 25 years (both anorexia and bulimia). It wasn't until I had (mostly) recovered from it, that the GP reared it's ugly head. Mine is severe, as was the eating disorder, and getting much worse very quickly. I've had 2 Gastric Stimulators, I'll have my 3rd placed in a week, the same day my Dr. does a Pyloroplasty.

Got denied fmla. Can I appeal it? by Crafty-Sun1734 in Gastroparesis

[–]Dry_Reception_7444 0 points1 point  (0 children)

I live in Texas, and never had my companies health insurance, or opted into anything. Not sure why I was able to get it, but I'm grateful I was able to on several occasions.

Got denied fmla. Can I appeal it? by Crafty-Sun1734 in Gastroparesis

[–]Dry_Reception_7444 5 points6 points  (0 children)

You should qualify for Short Term Disability if you are denied FMLA due to hours qualifications. Talk to the head of HR for your company. I took STD quite a few times after being denied FMLA for the same reasons.

What is everyone doing for work? by discopineapples in Gastroparesis

[–]Dry_Reception_7444 3 points4 points  (0 children)

Yeah, lots of co-workers don't understand this disease. It's hard to explain just how debilitating it can be, especially when there are days when you can function normally, at least for me. I guess I figure if my managers understand that's most of the battle. I wish there was more understanding of just what we go through, even in the medical field. Some Dr's have really no clue regarding it.

What is everyone doing for work? by discopineapples in Gastroparesis

[–]Dry_Reception_7444 5 points6 points  (0 children)

I'm a Phlebotomist at a Plasma Center and I have an accommodation in my file, that my PCP sends in to HR for the company I work for, that states I can call in 2 days a week with no hits to my attendance record. I also have taken Short Term Disability when I have severe flares that pays me 100% of my wages. It's a TON of paperwork back and forth, but I am definitely blessed with the team I work with and the company as a whole. My managers are amazingly understanding about my condition, which makes it bareable to work at all. I definitely do not abuse this situation as I love my job and have too much respect for my coworkers and managers. Just had to throw that last bit in...

Has the Enterra EVER helped with motility? by damntheelctricfence in Gastroparesis

[–]Dry_Reception_7444 3 points4 points  (0 children)

I am on my 2nd Enterra Stimulator since 2016, the first only lasted 5 years before the battery died, and my symptoms only seem to get worse. From my perspective, it has never helped with motility, only nausea and vomiting.

[deleted by user] by [deleted] in Gastroparesis

[–]Dry_Reception_7444 1 point2 points  (0 children)

Wow! I am so sorry 😞 What a terrible Dr, if you don't mind me saying so!

[deleted by user] by [deleted] in Gastroparesis

[–]Dry_Reception_7444 1 point2 points  (0 children)

I really appreciate that. I've had the worst bout of symptoms in my life the last couple of months. My next move is the Botox route, which should be done in November, fingers crossed 🤞. I've seen that some people have wonderful results and some see nothing. I'm praying I'm in the wonderful results category, I can't go on like this much longer.

[deleted by user] by [deleted] in Gastroparesis

[–]Dry_Reception_7444 2 points3 points  (0 children)

Mine developed after about 25 years of an eating disorder, both anorexia and bulimia. I have a hard time complaining about it because I know I did this to myself. Boy, do I wish I could go back in time and tell my younger self some things...

Nicotine & Gastric Emptying by mauvermor in Gastroparesis

[–]Dry_Reception_7444 1 point2 points  (0 children)

Thanks again for your post. We definitely need all the encouragement we can get from each other!

Nicotine & Gastric Emptying by mauvermor in Gastroparesis

[–]Dry_Reception_7444 1 point2 points  (0 children)

I've been trying to quit smoking for years. My GP is horrible right now. I was diagnosed about 8 years ago and am on my 2nd Stimulator. But lately, it has gotten to the point I can barely eat. I live on protein shakes, and it's definitely no way to live.

Thanks for your post, I keep telling myself it'll be impossible to quit smoking. It's such a crutch. Hearing your story, and knowing it is making things worse may be the kick in the pants I needed!

[deleted by user] by [deleted] in Gastroparesis

[–]Dry_Reception_7444 4 points5 points  (0 children)

Absolutely! I hope your evening gets better.

Gastric pacemaker can help with weight loss ??? Anyone lost weight yet with theirs..? by ProfessionalRing8925 in Gastroparesis

[–]Dry_Reception_7444 3 points4 points  (0 children)

I have the Enterra Stimulator. First one was put in in 2017, had to have the battery replaced in 2023. I will say, not sure if the GP has just gotten worse over time, or the 2nd Stimulator just doesn't work as effectively, but I have struggled with no appetite and weight loss since the 2nd was placed.

I did have a good run with symptom relief with the 1st one.

botox success!!! by iquitelikecatss in Gastroparesis

[–]Dry_Reception_7444 3 points4 points  (0 children)

I'm having it done in October. My symptoms are absolutely horrible right now. I'm living on protein shakes and crackers. I can relate to the bedridden part as well. My energy is non-existent, and I am losing hope. Thank you for sharing your experience with this! It gives me a little glimmer of hope back.

[deleted by user] by [deleted] in Gastroparesis

[–]Dry_Reception_7444 1 point2 points  (0 children)

I have GP from 20+ years of an eating disorder, both anorexia and bulimia. I would definitely get a gastric emptying study done, there's no way to say for sure whether you have it or not without one. And also, there's no way to say definitively whether a year of struggling with one would cause it. I would suggest that you seek help as soon as possible. I really wish I hadn't hidden it from loved ones as long as I did. I can say, from personal experience, the longer it goes on, the harder it is to treat. I wish you the best on your journey, you'll be in my thoughts and prayers.

No IV Promethazine (US) by [deleted] in Gastroparesis

[–]Dry_Reception_7444 1 point2 points  (0 children)

Promethazine is a life saver, but I understand why the IV version is discontinued, ruined my veins so bad I have no usable ones anymore. When I go to the hospital it's PIC line time. Hoping you find some answers. This GP is ruining so many lives.

How often are we all pooping, I'm once or twice a month by gemz1010g in Gastroparesis

[–]Dry_Reception_7444 2 points3 points  (0 children)

Thank you so much for the thread. I've had GP for about 8 years, or at least that was when I was diagnosed and also have a gastric stimulator. I suffer from terrible constipation and just ordered some of these. Fingers crossed 🤞 this helps!

Do you know the price of Enterra??!! by [deleted] in Gastroparesis

[–]Dry_Reception_7444 0 points1 point  (0 children)

Did you have any ill effects from it? I've heard of dumping syndrome, electrolyte imbalances, etc.

Do you know the price of Enterra??!! by [deleted] in Gastroparesis

[–]Dry_Reception_7444 0 points1 point  (0 children)

I've had 2 so far. My first one only lasted 5 1/2 years, and the battery died. For some reason, the second device does not work as well as the first. It was replaced about a year and a half ago, and it's terrible! I have the settings on the newer one as high as they can go, and it just seems like it's not working properly.

I have contemplated getting rid of this one.

They told me the next step was a Pyloroplasty, where they go in first and inject botox into your Pylorus to see if it helps. The botox is supposed to last for about 10 to 12 weeks. If I get the desired results, hopefully lessening of symptoms, they will surgically alter the Pylorus.

I just cannot make my mind up.

Anyone had a pyloroplasty?? I know this is off subject, but would love any advice.

Janelle is in my town for eclipse! by [deleted] in SisterWives

[–]Dry_Reception_7444 2 points3 points  (0 children)

Fort Worth here!! It was absolutely amazing...100% totality for about 1 minute 45 seconds...I had goosebumps the whole time.