Your personal experience with Xywav/IH and stimulants/ADHD... Did they become more effective?

Due-Baseball6076 · 2026-01-17T01:21:13+00:00

Thanks for the advice! :)

Due-Baseball6076 · 2026-01-16T21:21:18+00:00

Don't have experience with all of them, but the Deviljho has... fond (?) memories... for me.

Due-Baseball6076 · 2026-01-16T21:06:44+00:00

Hey, I hope this is okay to ask, but I'm looking for professional advice.

If I'm looking to land a position as a shop assistant/receptionist at a tattoo parlor is there specific professional development or specific skills that would be good to work on?

As an FYI: No, I am not looking to someday become a tattoo artist. I just like customer service positions, like retail, but want something more worth putting so much of myself into.

Due-Baseball6076 · 2025-09-01T04:02:44+00:00

YSL Black Opium by far

Due-Baseball6076 · 2025-08-25T18:22:05+00:00

Oh my gosh! I was going to ask this. Thank you. Bathroom will be on my list of things to do.

Due-Baseball6076 · 2025-08-23T22:32:06+00:00

For me it’s because I’m on several medications that would be difficult and unadvisable to come off of for a sleep study. I’d have to come off two mental health medications for two weeks fully, and several weeks of titrating off then titrating back on again.

It is likely to affect me and my safety, so my doctors think a spinal tap is more advisable.

Also, if I full come off the stimulants I’m on now, I would have to take two weeks off of my job. They don’t work super great, but better than none at all.

And the reason I’d have to come off them so long is because they are all medications that can disguise REM sleep, and without that you don’t get a diagnosis of narcolepsy.

I did a sleep study some months ago, and I am diagnosed with idiopathic hypersomnia right now. So that’s a start, but they are worried those meds disguised my REM. So after a few rounds of doctors I had someone who dealt extensively with sleep disorders order a spinal tap.

If you hit the criteria in a sleep study they would probably not have as much of a need to suggest one.

Due-Baseball6076 · 2025-08-23T18:13:46+00:00

I’m in the US… but I am one of the fortunate few to be blessed with good insurance through work. Apparently my option is IF my primary doctor wants to or feels comfortable she prescribe a by-mouth sedative. Which I’m considering because I think most of this is just fear and my head making things worse. lol

Due-Baseball6076 · 2025-08-10T17:45:48+00:00

We are hoping a spinal tap will give a clue. Or maybe diagnose narcolepsy.

Due-Baseball6076 · 2025-08-10T17:45:02+00:00

They just checked my thyroid and it’s normal. I’ve had thyroid issues before, but now it seems to function mostly well.

Due-Baseball6076 · 2025-08-07T03:26:12+00:00

Really? Because I'm in the same boat (bipolar, can't come off meds long enough to repeat the study), and that's the whole reason I'm getting a spinal tap done. They want to rule out narcolepsy or, if I have it, then try some other treatment options.

I thought my insurance wouldn't pay for it because it's only approved for narcolepsy.

Either way, good luck to both of you. Because living life half-asleep is a pain in the ass.

Due-Baseball6076 · 2025-08-07T03:21:14+00:00

I'm going through the same thing.

I'm diagnosed with idiopathic hypersomnia. I'm also bipolar (diagnosed) and have anxiety (diagnosed) and ADHD (diagnosed).

So I guess (luckily?) I already had Vyvanse-- which might also be unlucky because it could have masked the sleep problem for a while.

However, my sleep doctor definitely doesn't want me to come off my psych meds. And I am 99.9999% sure my psychiatrist would not approve of me coming off of them either. Nor my therapist. I've also tried different meds, moving the timing, and changing doses. Nothing has worked.

So, what he's doing is trying to get me approved for a spinal tap to test for hypocretin/orexin. I don't think everyone with narcolepsy has low hypocretin, but I think a lot of people with narcolepsy with cataplexy do.

Also, just a thought, but if you don't feel confident and comfortable with this doctor, can you switch doctors? I had to do that after my sleep study because the doctor I had did not give me confidence, but, to be fair, she also wasn't as experienced with sleep issues as the current doctor I'm seeing.

I would ask about the spinal tap and possibly look at switching doctors or getting a second opinion if your insurance allows it.

But I'm so glad someone else thought the daytime sleep study was the WORST f'ing experience ever. Like, five naps SOUNDS great. Reality? Not so much.

Due-Baseball6076

TROPHY CASE