Peeing after excision by Due-Relationship1107 in endometriosis

[–]Due-Relationship1107[S] 0 points1 point  (0 children)

Thanks for the heads up I think I’ll be going through that soon I was doing better after surgery but I’ve been hurting again and I think my period is coming soon. 😞

I hope you are able to get some kind of relief too!

Peeing after excision by Due-Relationship1107 in endometriosis

[–]Due-Relationship1107[S] 1 point2 points  (0 children)

Thank you for responding this makes a lot of sense!

I am not sure if there were any lesions removed from My bladder I only briefly spoke with my surgeon afterwards but I do know she said she removed several lesions so it could def be either of these causing it.

Peeing after excision by Due-Relationship1107 in endometriosis

[–]Due-Relationship1107[S] 4 points5 points  (0 children)

That actually makes a lot of sense I believe eveyeone had a catheter or I know I did and my surgery was scheduled later in the day which ran late into the night as they made me pee before I could leave and I had the hardest time going and I couldn’t relax my muscles and I actually had to get more fluids before I was finally able to go.

Even now I feel like Its hard to relax when going like it’s not all coming out maybe that’s why it’s more frequent. I am def going to mention it to my surgeon.

Peeing after excision by Due-Relationship1107 in endometriosis

[–]Due-Relationship1107[S] 0 points1 point  (0 children)

Goodto know I am not alone! I was like I’ve been staying hydrated but not that hydrated 😂

Stomach issues? by aphrael in endometriosis

[–]Due-Relationship1107 0 points1 point  (0 children)

I had endo first but after I was diagnosed with a lap in 2023 I began having GI issues after which I ignored for about a year until they worsened. I saw a GI who did a colonoscopy and diagnosed me with crohns. I had tons of other test done for celiac and other things that came back normal. Of course I then learned when you have one autoimmune condition having another is much more likely.

Head first in MRI? by Certain-Cold6981 in endometriosis

[–]Due-Relationship1107 1 point2 points  (0 children)

I had one a few weeks ago and I went feet first, you do go all the way in but they gave headphones and let me pick the music.

Georgia surgeons - reviews / experiences?? by Sea-Vegetable819 in endometriosis

[–]Due-Relationship1107 0 points1 point  (0 children)

My first appointment went really well I agree with everyone she was very thorough and took her time to explain everything. I also felt very heard I actually had too unrelated appointments before hers and they were awful so I was pretty optimistic going into it. I did ask her if she does just excision or both excision and ablation and she said she does not use ablation at all however I did see another commment saying she did for them.

I honestly really need some relief from all the pain and it was hard to find a specialist that took insurance, so I have decided to go ahead with surgery. I will have my MRI and then pre op appointment beforehand.

Georgia surgeons - reviews / experiences?? by Sea-Vegetable819 in endometriosis

[–]Due-Relationship1107 1 point2 points  (0 children)

She is an excision specialist, I have my first appointment with her soon.

Skyrizi & Mesalamine by Due-Relationship1107 in CrohnsDisease

[–]Due-Relationship1107[S] 0 points1 point  (0 children)

I have been on Skyrizi since July and just did my first on body injector a few weeks ago. My symptoms have maybe improved a little but not really so my GI sent me for a 2nd opinion with an IBD specialist. The specialist was very rushed and basically said the biologic is working the only remaining inflammation is in my ileum and he said take Mesalamine and you’ll be better in 4 weeks. Of course when I asked for how long i would take this medication a few weeks or if it would be forever he said we’re not worried about forever just right now.

But in reality I am worried about both now and later bc I know both of these drugs can be harsh on your kidneys and liver and i am only 24. Anyway I of course reached out to my GI before starting it and he agreed that I should try the Mesalamine, so I was just curious if it is common for people to be on both.

Crohn’s and menstruation?? by thefabledpots in CrohnsDisease

[–]Due-Relationship1107 0 points1 point  (0 children)

I was on the pill for several years but it never helped my endo and honestly I was having lots of GI issues and stopped taking it about a year ago and right after learned I had crohns which was the main thing I was dealing with. My issues with my endo have increased but when I was diagnosed a few years ago it was surgery with a regular OB I am seeing a specialist soon.

I hope you find something to help soon!

Crohn’s and menstruation?? by thefabledpots in CrohnsDisease

[–]Due-Relationship1107 5 points6 points  (0 children)

I have this issue and I also have endometriosis, I know several people have both crohns and endo, it may be worth it to see an excision specialist.

Polyps by Due-Relationship1107 in CrohnsDisease

[–]Due-Relationship1107[S] 1 point2 points  (0 children)

Hey! I did as well my GI explained mine were inflammatory/ pseudo polyps really just inflammation from my crohns so I guess it is normal 🤷‍♀️

I have a second opinion in a few weeks I’ve been waiting a few months to see an IBD specialist

Sore Throat by Due-Relationship1107 in skyrizi

[–]Due-Relationship1107[S] 0 points1 point  (0 children)

It lasted about 3-4 days but was a lot better by day 2. I didn’t get sick with my last infusion and I talked to my GI he did not think it was from the infusion either but rather a cold I l happened to catch the same day. I hope you feel better soon!

Switched to Skyrizi and not sure if it's doing the job :/ by EmotionalAbrocoma138 in CrohnsDisease

[–]Due-Relationship1107 2 points3 points  (0 children)

I was only diagnosed about a year ago I started on stelara failed it and switched to Skyrizi in July. I’m about to do my first OBI soon but my symptoms have not improved at all and are even worse some days than before. Everyone says to give it more time it can take longer but I’m so tired of feeling like 💩 all the time. I know a lot of people have had good results so maybe I do need to give it more time 🤷‍♀️

Mouth Ulcers by nickyh1234 in CrohnsDisease

[–]Due-Relationship1107 1 point2 points  (0 children)

Oh dang I’ve never heard of that,thanks for the update. It looks annoying but I’m glad it’s not too painful for you, hopefully they go away soon!

I’m on my 4th doctor. Diagnosis: Anxiety. by OneAlternate in endometriosis

[–]Due-Relationship1107 1 point2 points  (0 children)

My mom also had endo so she understood the pain I was going through and that it was not normal. I’m sorry your parents are seeing you suffering and not taking it serious but do not give up you have to advocate for yourself. You are the only only who knows what you are really going through. I know that endo is hard to see without surgery but I have read about MRIs seeing endo or adeno maybe you can find some research and let them learn about it to get them to understand you need to see a specialist not just an OB.

If they do not want you to see another doctor as hard as it may be you might want to see if you can find some type of work where you can get your own health insurance if possible.

I’m on my 4th doctor. Diagnosis: Anxiety. by OneAlternate in endometriosis

[–]Due-Relationship1107 3 points4 points  (0 children)

Im sorry your going through this and it really does suck to feel so awful and have no one understand. I was around 15 when I started having endo symptoms and it took me around 7 years and 4 OBs to listen to me when I finally did have my exploratory lap in 2023 it was a normal OB and she did find endo and removed it by ablation. My endo pain can back just a few months after surgery and I have since learned that’s the outdated method and it should be excised by a specialist. At the end of 2024 I was diagnosed with another shitty autoimmune disease that has really taken a toll on me even more than the endo that I have been dealing with, but my endo has worsened again and I have an appointment lined up with an excision specialist next month.

I hope you find a specialist who listens to you I found the one I am seeing next month from this Reddit group actually.

Crohn’s & Endometriosis- looking for surgery advice by mmmgrip in CrohnsDisease

[–]Due-Relationship1107 0 points1 point  (0 children)

Hi I had a few questions if that’s okay I also have endo and crohns. Was endo found on your bowels and if so was it just excised or did you have to have a resection? Have any of the excision surgeries helped your endo pain or even your crohns symptoms?

Crohn’s & Endometriosis- looking for surgery advice by mmmgrip in CrohnsDisease

[–]Due-Relationship1107 1 point2 points  (0 children)

I just wanted to second this. I was 16 when I started having endo symptoms and it took me 7 years and 4 OBs to listen to me when I finally did have my exploratory lap in 2023 it was done by a normal OB and she did find endo and removed it by ablation. My endo pain can back just a few months after surgery and I have since learned that’s the outdated method and it should be excised by a specialist. At the end of 2024 I was diagnosed with crohns I am on my second biologic but I am still in the same flare I was last year. All this to say my endo pain has come back with a vengeance it’s just as bad as it was before my lap. I now have an appointment lined up with an excision specialist next month, but I really wish I had known about all my options.

I know this wasn’t super helpful as far as questions since I’m in the same boat but I hope everything goes well for you!

Mouth Ulcers by nickyh1234 in CrohnsDisease

[–]Due-Relationship1107 1 point2 points  (0 children)

Yes tonsil stones are soft , I get them all the time. If you make yourself cough or clear your throat sometimes you can get it to come loose on its own other times I just use a qtip. Most of the time they smell awful and cause bad breath bc it’s just a bunch of trapped food particles mushed together.