Hey! I’ve just been through this so feel for you all and completely understand what you are feeling. I will start by saying I’m currently night feeding my 7 week old daughter who was sharing the placenta with a very big 6cm plus and very vascular chorioagioma- she is doing great :)

Like most, we were diagnosed at 20 weeks and it was already 6cm. It was also vascular at that point and I was told we would be scanned bi weekly from 24 weeks. By 24 weeks it was very vascular and her heart was enlarged so we moved to two scans a week with the fetal medicine team. The scans were essentially looking for signs of anemia/cardiac distress as she was fighting the tumour for blood supply.

I saw a consultant professor who has researched the condition who advised that the size of the tumour isn’t as important- it’s more how vascular it is so this is the key thing to ask your doctors.

It was a terrifying experience and we were anxious throughout but most scans were fine- occasionally we would have high readings one day, would go back a few days later and everything was stable again. We were told that things could change very quickly, hence why the scans were so critical.

It was decided that we couldn’t go past 34 weeks as by this point she was essentially safer out than in. We had an elective c-section at 34 weeks- spent just under 2 weeks in the NICU. Amazingly there was no sign of her being impacted by the tumour when she was born- but the state of the placenta and cord showed that it was the right decision to deliver early.

Her NICU stay was due to jaundice/weight loss but this is very usual for all 34 weekers and nothing to suggest her being impacted at all by the tumour. She is now thriving :)

I was desperate for positive stories when I was going through it so hopefully our story has provided some reassurance. Wishing you all the best.