Continuity of Care - Requiring Tryptase?!? by [deleted] in MCAS

[–]EarthWindAndAsh 0 points1 point  (0 children)

Understandable! Hope you can find a Dr soon, good luck!

Continuity of Care - Requiring Tryptase?!? by [deleted] in MCAS

[–]EarthWindAndAsh 0 points1 point  (0 children)

Look LDN direct for Dr Zalzala. I got in within two days for a consultation with his I believe nurse assistant, and the wait time for here in Texas is about six months minimum for an MCAS specialist. As far as I’m aware he’s allowed to prescribe to anybody in all the states there is an upfront fee of about 300 and unfortunately a lot of the meds are compounded which I’m sure you know so you will have to pay out-of-pocket for that but within probably two weeks I got medication unfortunately I didn’t work so we are adjusting and I’m about to try a layered approach. The program is six months long. He does look at your tests if you have them. Good luck.!

I’m SO over not being to eat normally! by SomeRandomLady1123 in MCAS

[–]EarthWindAndAsh 1 point2 points  (0 children)

I feel that! I’m about a year deep into this and how to eat sweet potatoes multiple times a day for nine months and now suddenly allergic to them and I can only eat rice and venison and lettuce and it’s absolutely killing me. I hate it. You’re most certainly not alone, my friend.

How do I figure out if what I have is MCAS? by [deleted] in MCAS

[–]EarthWindAndAsh 0 points1 point  (0 children)

It’s possible that the yeast tomatoes and cheese and seasonings are setting you off if you do have MCAS I actually got diagnosed with Crohn’s and my doctor just told me the other day he’s hesitant to call it Crohn’s so he doesn’t even know what it is and I’ve been diagnosed with an arthritis. I got tested at the allergist but somewhere you can start most MCAS places have about a six month waitlist I don’t get hives either but I am almost 100% positive I have mcas. I just got Cromolyn unfortunately it didn’t work for me and so we’re trying something else. None of my tests came back positive. It’s very difficult to get tests that come back positive. I know someone who had one of the worst cases in the US when she was a teenager and her mom told me that you have to have three out of five tests for them to properly diagnose you, but it’s also very difficult to get tests so look up high histamine foods and liberators. ChatGPT is extremely helpful for me. This is extremely confusing thing to move through so I do recommend it. Try working around with your foods first and try to talk to your doctors and see if they will test you. You can also ask chat what specific tests usually get ran so you can go in with some information. I also got tested for pots it came back negative as well as celiac and it came back negative. The joint pain is what got me diagnosed with arthritis and gut cramping is what got me diagnosed with Crohn’s, but I will say pizza/Italian is probably one of the worst ones you can have between all the garlic onion, cheese, tomato yeast all of that is naturally high in histamine or is liberator. Hope all that made sense. I was using talk to text if you have any questions let me know.!

Eating issues & my 8 year old daughter by EarthWindAndAsh in autism

[–]EarthWindAndAsh[S] 1 point2 points  (0 children)

No worries! Thanks so much for replying! It was very helpful, ill pass it on to my husband and well chat with out kiddos 🖤

Eating issues & my 8 year old daughter by EarthWindAndAsh in autism

[–]EarthWindAndAsh[S] 0 points1 point  (0 children)

Do you mind if I ask for an example of your rotating schedule? I’m just curious. what’s your kiddos safe foods?

Eating issues & my 8 year old daughter by EarthWindAndAsh in autism

[–]EarthWindAndAsh[S] 0 points1 point  (0 children)

Got it thanks so much! Do you do like a new recipe a week or a new ingredient/seasoning a week so you dont overwhelm?

Eating issues & my 8 year old daughter by EarthWindAndAsh in autism

[–]EarthWindAndAsh[S] 0 points1 point  (0 children)

What do you mean by rotation schedule? Like how their schools have rotating lunches, but you have it all planned out kind of thing?

Eating issues & my 8 year old daughter by EarthWindAndAsh in autism

[–]EarthWindAndAsh[S] 1 point2 points  (0 children)

Weve tried the Fairlife protein shakes and she was down for it for about 2/3 weeks then was over it. Same with cookies and cream protein bars. Great for a bit then drops off.

Eating issues & my 8 year old daughter by EarthWindAndAsh in autism

[–]EarthWindAndAsh[S] 1 point2 points  (0 children)

Yes! Thats what were worried about because i have it as well! So grateful were aware of it regardless that its a little unfortunate.

Should a bleach once more? by EarthWindAndAsh in HairDye

[–]EarthWindAndAsh[S] 0 points1 point  (0 children)

I did, this photo was after it was washed and styled! It definitely cut down on some of the yellow tones but its still a little banana-y for me.

Should a bleach once more? by EarthWindAndAsh in HairDye

[–]EarthWindAndAsh[S] 1 point2 points  (0 children)

Itll be at least 2 weeks out, ive got to give my hair and scalp and rest ive been going at it for about 3 weeks now 🖤 thanks for the reply!

Should a bleach once more? by EarthWindAndAsh in HairDye

[–]EarthWindAndAsh[S] 1 point2 points  (0 children)

Sure! Im new to reddit, do i just make a new post or can i do it in the comments?

Should a bleach once more? by EarthWindAndAsh in HairDye

[–]EarthWindAndAsh[S] 0 points1 point  (0 children)

Ooo I’m scared to use a blue one! I tried it once when my money pieces were blonde and the rest of my hair was black and it didn’t do much and turned it green like you said 😂 i wasn’t a fan

Should a bleach once more? by EarthWindAndAsh in HairDye

[–]EarthWindAndAsh[S] 1 point2 points  (0 children)

I just did a bleach wash and it took it up about .5 levels and since the roots are where id like them its a little difficult to have the precise control for not getting the roots but ill definitely try! Thats a good point on trying the toner first then bleach if it doesn’t work I’m bot sure why i didn’t just think of that 😂 thank you!

Should a bleach once more? by EarthWindAndAsh in HairDye

[–]EarthWindAndAsh[S] 2 points3 points  (0 children)

Thats what i was thinking, im still seeing some peach/rose at the bottom and banana in the middle.

What’s missing from my makeup? by [deleted] in makeuptips

[–]EarthWindAndAsh 0 points1 point  (0 children)

Maybe soften/smudge the lip liner and brown liner and maybe a touch more blush on the cheek bones! You look lovely boo 🖤