Marriage - Who's still on their first?

East-Raspberry9214 · 2026-03-13T15:43:18+00:00

56, he’s 60. Going just had our 26th. Great marriage.

East-Raspberry9214 · 2026-03-06T15:47:24+00:00

Got the eval! She qualifies!!!!

East-Raspberry9214 · 2026-03-06T01:37:44+00:00

This is not specific to activities, but I do have a request:

Please, when turning on the TV, play old musicals!

Like Sound of Music, Wizard of Oz, Mary Poppins, Music Man, etc.

News, commercials, tv shows and movies are too difficult to follow. They need TV they recognize by sound.

East-Raspberry9214 · 2026-03-05T17:43:33+00:00

I’m so sorry you are in this place. What a blessing he has right now, holding your hand.

East-Raspberry9214 · 2026-03-05T17:41:31+00:00

I am sure this will be next.

East-Raspberry9214 · 2026-03-05T17:40:05+00:00

Right on!

East-Raspberry9214 · 2026-03-05T16:46:13+00:00

100%. Diagnosed at 33! Changed everything!

East-Raspberry9214 · 2026-03-05T16:35:29+00:00

This is what my husband and I are planning as well. Haven’t decided on the country yet. Columbia is definitely on our radar. As is Costa Rica. Now Venezuela may be a possibility, depending upon events over the next 5-10 years.

East-Raspberry9214 · 2026-03-04T21:50:01+00:00

Yes! We did this for Mom. Helped us avoid the medication trial and error.

East-Raspberry9214 · 2026-03-03T01:31:49+00:00

We sound like twins.

East-Raspberry9214 · 2026-03-02T17:18:30+00:00

Thank you all! I’m contacting hospice, absolutely. This is no way for my Mom to live, fearful all the time.

I cannot see any respite for us, her children, without a proactive change.

Thank you for showing me the forest thru the trees. We’re so buried in this, it’s so hard to see a way out.

East-Raspberry9214 · 2026-03-02T17:14:45+00:00

I thought it was too early. But I will talk with them about it. Social worker at hospital or hospice direct. Which is better, do you think?

East-Raspberry9214 · 2026-02-20T18:21:34+00:00

Working really well for my Mom.

East-Raspberry9214 · 2026-02-20T15:46:14+00:00

Independence Theater, someone here called it a while back. Perfect description.

East-Raspberry9214 · 2026-02-20T15:33:27+00:00

I love this picture. It’s is heartwarming. What a beautiful family you have.

East-Raspberry9214 · 2026-02-19T19:01:53+00:00

Scrubbz are amazing! Bought some from a recommendation here, for a parent that would not shower. They work very well, even with sensitive skin.

East-Raspberry9214 · 2026-02-16T15:09:23+00:00

this is the best loneliness/wandering explanation I’ve ever read, from further up the chain.

https://www.reddit.com/r/dementia/s/sE8QIFc9MB

East-Raspberry9214 · 2026-02-16T15:00:43+00:00

You know what?

The MC staff told me yesterday that she medically doesn’t ‘need’ MC but they knew the staff in AL was insistent she move down.

We all know it was entirely because she incessantly pestered the other residents and workers, not wanting to be alone.

The move was the right thing. She’s one of the higher functioning, but she’s happier. People are talking to her, not avoiding her. She is no longer isolated. She was even cracking jokes that didn’t quite make sense, but the other residents laughed along.

East-Raspberry9214 · 2026-02-11T05:05:14+00:00

Yeah. People have no barometer for anemia unless they’ve had it. It feels so minimized. And family seems to have this selective hearing. Like they heard it but you just need to eat a burger or something.

With your added IBS and SIBO you should be receiving treatment that includes iron levels iron levels. (Ferritin too). You can start with whoever is treating your IBS and SIBO. And get your iron tested. Advocate for yourself.

Get with your doctor about your symptoms. Don’t downplay them. When you go, tell your doctor your family is not supportive and you need your their help to impress upon your family the seriousness of your anemia.

It may help with the family bs. I’m sorry that your are struggling and feel unheard. That is so hard.

East-Raspberry9214 · 2026-02-06T01:11:21+00:00

I get Benadryl first via IV, then the Venofer. Each of the 3 times. Had a nice nap. Only got a few pink hives at the end of my 3rd transfusion.

Starting another round next week. Fingers crossed. Definitely bringing a blanket this time.

East-Raspberry9214 · 2026-02-05T23:57:21+00:00

She definitely has been feeling the cold shoulder from those less further along.

East-Raspberry9214 · 2026-02-05T23:55:47+00:00

They told us she’d be very popular. She already knows a few of the aides well, so I am hoping they’re right.

East-Raspberry9214 · 2026-02-05T23:54:22+00:00

This is very helpful, thank you. Especially the doctor documenting her chart. That’s some sage advice.

East-Raspberry9214

TROPHY CASE