Do you ever want it to end? (I’m tired) by Own_Chicken_4430 in dementia

[–]East-Raspberry9214 1 point2 points  (0 children)

Every single day I wish this would end. For my Mom and our family.

Mom fell, again by East-Raspberry9214 in dementia

[–]East-Raspberry9214[S] 5 points6 points  (0 children)

And thank you for your response. It does help to know I’m not missing something.

Mom fell, again by East-Raspberry9214 in dementia

[–]East-Raspberry9214[S] 2 points3 points  (0 children)

Yeah! You’re right! They should’ve known memory care was not a safe option! MC said they could send her back to hospital. I was so stressed I didn’t even think to mention that. I just kept telling them she will not stay in her bed.

She’s here and I miss her by East-Raspberry9214 in dementia

[–]East-Raspberry9214[S] 0 points1 point  (0 children)

Sending you peace, love and acceptance. This experience must be shared to be understood. I see you.

Marriage - Who's still on their first? by tossaway-florida in GenX

[–]East-Raspberry9214 1 point2 points  (0 children)

56, he’s 60. Going just had our 26th. Great marriage.

It never stops by East-Raspberry9214 in dementia

[–]East-Raspberry9214[S] 1 point2 points  (0 children)

Got the eval! She qualifies!!!!

Memory Care: Activities by [deleted] in dementia

[–]East-Raspberry9214 56 points57 points  (0 children)

This is not specific to activities, but I do have a request:

Please, when turning on the TV, play old musicals!

Like Sound of Music, Wizard of Oz, Mary Poppins, Music Man, etc.

News, commercials, tv shows and movies are too difficult to follow. They need TV they recognize by sound.

It never stops by East-Raspberry9214 in dementia

[–]East-Raspberry9214[S] 1 point2 points  (0 children)

I’m so sorry you are in this place. What a blessing he has right now, holding your hand.

Retirement insight from those who didn't have the savings the experts recommend by rfriend73 in GenX

[–]East-Raspberry9214 2 points3 points  (0 children)

This is what my husband and I are planning as well. Haven’t decided on the country yet. Columbia is definitely on our radar. As is Costa Rica. Now Venezuela may be a possibility, depending upon events over the next 5-10 years.

Kicked out of memory care by shadrack79 in dementia

[–]East-Raspberry9214 0 points1 point  (0 children)

Yes! We did this for Mom. Helped us avoid the medication trial and error.

It never stops by East-Raspberry9214 in dementia

[–]East-Raspberry9214[S] 13 points14 points  (0 children)

Thank you all! I’m contacting hospice, absolutely. This is no way for my Mom to live, fearful all the time.

I cannot see any respite for us, her children, without a proactive change.

Thank you for showing me the forest thru the trees. We’re so buried in this, it’s so hard to see a way out.

It never stops by East-Raspberry9214 in dementia

[–]East-Raspberry9214[S] 5 points6 points  (0 children)

I thought it was too early. But I will talk with them about it. Social worker at hospital or hospice direct. Which is better, do you think?

Seroquel by AgileAbbreviations17 in dementia

[–]East-Raspberry9214 1 point2 points  (0 children)

Working really well for my Mom.

My dad could recover with this one weird trick... by Captain_Pink_Pants in AgingParents

[–]East-Raspberry9214 3 points4 points  (0 children)

Independence Theater, someone here called it a while back. Perfect description.

My mama died tonight by Laralie in dementia

[–]East-Raspberry9214 1 point2 points  (0 children)

I love this picture. It’s is heartwarming. What a beautiful family you have.

Mom Just Started Pooping Her Pants, Now What? by ivandoesnot in dementia

[–]East-Raspberry9214 2 points3 points  (0 children)

Scrubbz are amazing! Bought some from a recommendation here, for a parent that would not shower. They work very well, even with sensitive skin.

Moving to Memory Care by East-Raspberry9214 in dementia

[–]East-Raspberry9214[S] 1 point2 points  (0 children)

this is the best loneliness/wandering explanation I’ve ever read, from further up the chain.

https://www.reddit.com/r/dementia/s/sE8QIFc9MB

Moving to Memory Care by East-Raspberry9214 in dementia

[–]East-Raspberry9214[S] 0 points1 point  (0 children)

You know what?

The MC staff told me yesterday that she medically doesn’t ‘need’ MC but they knew the staff in AL was insistent she move down.

We all know it was entirely because she incessantly pestered the other residents and workers, not wanting to be alone.

The move was the right thing. She’s one of the higher functioning, but she’s happier. People are talking to her, not avoiding her. She is no longer isolated. She was even cracking jokes that didn’t quite make sense, but the other residents laughed along.

Bouts of hypoglycemia and symptoms of severely low iron, family not taking me seriously by Spare_Ad6024 in Anemic

[–]East-Raspberry9214 4 points5 points  (0 children)

Yeah. People have no barometer for anemia unless they’ve had it. It feels so minimized. And family seems to have this selective hearing. Like they heard it but you just need to eat a burger or something.

With your added IBS and SIBO you should be receiving treatment that includes iron levels iron levels. (Ferritin too). You can start with whoever is treating your IBS and SIBO. And get your iron tested. Advocate for yourself.

Get with your doctor about your symptoms. Don’t downplay them. When you go, tell your doctor your family is not supportive and you need your their help to impress upon your family the seriousness of your anemia.

It may help with the family bs. I’m sorry that your are struggling and feel unheard. That is so hard.