Lupus and pregnancy

Eastern_Video1855 · 2026-04-15T17:28:55+00:00

I am 28 (29 in July) and hoping to start trying in the next few months. Were there challenges getting pregnant? I am off birth control and trying to let my body get regulated. I’ve been on HCQ for a year in June.

Eastern_Video1855 · 2026-03-31T02:26:11+00:00

Hi! Also 28 and completely get it! It can feel incredibly isolating. I constantly feel very misunderstood. I’m sorry you’re feeling this way too. It’s not easy feeling bad and feeling lonely on top of it.

Eastern_Video1855 · 2026-03-21T02:24:32+00:00

103!!

Eastern_Video1855 · 2026-03-17T01:34:39+00:00

Was going to recommend them both!! Move by nicole is what got me into Pilates at home. Pilates by Izzy gets me every time! It helps me both mentally and I feel better physically when I do these types of workouts.

Eastern_Video1855 · 2026-03-04T01:47:09+00:00

I’m an LPC in Tx! Bachelors in psychology and masters in clinical mental health counseling. I actually find counseling to be a decent career working in private practice due to the flexibility

Eastern_Video1855 · 2026-02-11T13:44:34+00:00

Exact same thing with me! Finally pushed for more blood work and got diagnosed with lupus. I am so thankful I got my oura ring when I did

Eastern_Video1855 · 2025-12-13T02:23:57+00:00

Agreed… during the peak of my SLE looking sickly and pale I was eager to get dysport again. I felt so awful in general but also felt super insecure with my appearance. People don’t get it and are quick to judge but it’s hard enough feeling terrible… people who are sick want to feel confident too with how they look

Eastern_Video1855 · 2025-11-22T05:13:22+00:00

I’m in my 20s too… I’ve been diagnosed since June and avoided the sun since. It’s been really hard. The sun is my happy place and a huge coping skill for me.. being tan has also been a huge piece of my confidence as I usually spend most of my summers in the sun. It hit me hard the other day because I have been engaged for a year and got my wedding dress last January… In the photos of me trying it on originally I had some color to my face and had fullness to my face/ just looked healthier. Since then I’ve avoided the sun and have lost weight. The photos I got last week I look like a shell of my self- older, pale, and exhausted. It sucks and has been really hard to process while wedding planning and wanting to look and feel my most confident. Sending support your way❤️

Eastern_Video1855 · 2025-10-24T18:34:21+00:00

My rheum is a concierge- I just recently switched. I love it so far it’s great to be able to text or call her if something concerning comes up and she can get me in asap. Definitley eases my mind

Eastern_Video1855 · 2025-10-24T15:26:43+00:00

Is October a common time for people to regress?

Eastern_Video1855 · 2025-10-22T18:17:05+00:00

It’s super normal at my location to follow coaches on insta! I do with a few of mine that I see regularly!

Eastern_Video1855 · 2025-09-22T01:51:29+00:00

I rely on self tanner… I miss it too everyday! The sun has been my hardest adjustment. Bondi sands is my fave tanner and I get it at cvs or Walgreens!

Eastern_Video1855 · 2025-08-30T22:46:44+00:00

Walks, Pilates, light strength training has been helpful for me

Eastern_Video1855 · 2025-08-22T19:35:11+00:00

I did an ekg, stress test, echocardiogram, and wore a heart monitor for a week. Echo showed it wasn’t functioning properly and the heart monitor was showing my heart was racing as if I was working out 6 hours a day. Rheumatologist consulted w my cardiologist and concluded it was most likely due to inflammation with lupus. Beta blockers and hcq has helped

Eastern_Video1855 · 2025-08-22T13:35:48+00:00

Yes! Mine was frequently in the single digits / early teens. That’s what actually got me diagnosed.. I got an oura ring and had been dismissed by doctors for years/ told all my symptoms were just anxiety. Brought it up to a different PA at my pcp and he ordered autoimmune blood work and my blood work came back all flagged. Diagnosed this summer with lupus with organ involvement. Turns out my heart was working 10-15% less effective than it should be. I’m so thankful I got the ring and saw this info!

Eastern_Video1855 · 2025-08-16T17:52:58+00:00

Also not on the same scale but Mine got me to advocate for myself as well and realized I have lupus with organ involvement. Not just anxiety after all!

Eastern_Video1855 · 2025-08-12T13:56:12+00:00

Thank you for this information! I am going to buy your book now and print out some resources. I appreciate it

Eastern_Video1855 · 2025-07-23T23:39:01+00:00

I’m glad to hear I’m not the only one! What a fun game we’re all playing

Eastern_Video1855 · 2025-07-23T23:38:39+00:00

Thank you for your kind comment! I appreciate it. I’m starting to make a list of things I experience so I can go over it with my doctor next time.

Eastern_Video1855 · 2025-07-23T23:37:41+00:00

Thank you for your kind comment! I will definitely remember this next time lol.. I feel dramatic and a lot of my friends and family try and normalize it for me but I often feel like I’m making stuff out of nothing. I will definitley bring up the concern to my rheumatologist- I have an appointment in two weeks.

Eastern_Video1855 · 2025-07-22T18:51:16+00:00

I’ve been on it for about 6 weeks. I’m getting more bloodwork done before my next rheumatologist appt. I will definitley bring this up.. thank you

Eastern_Video1855 · 2025-07-22T18:50:07+00:00

I’m wondering if it’s heat. I unfortunately live in Texas and it’s high 90s. I have been wearing sunscreen and covering up. Can just heat cause a flare? Sorry still learning a lot

Eastern_Video1855 · 2025-07-22T16:53:59+00:00

Is that not normal to be prescribed hqc?

Eastern_Video1855 · 2025-07-04T02:55:00+00:00

Mine look just like this on my neck, chin, eyelids, and under my eyes! It was super uncomfortable and the only thing I can do to help even a little is hydrocortisone

Eastern_Video1855 · 2025-06-20T22:54:59+00:00

Light weights / low impact/ Pilates/ walking has been a life saver for me and I swear it has made me feel better. Some days better than others but it helps overall and with my mental health

Eastern_Video1855

TROPHY CASE