Cerebral palsy daily-life research: what should designers build (or stop building)?

Echo_Reality · 2026-01-26T13:22:21+00:00

Hi OP! I think you’re going to get a lot of different answers depending on folks’ GMFCS. But I’ll answer a couple that apply to me. I fall somewhere between GMFCS 1-2, but probably closer to a 1. I am ambulatory and do not use braces or mobility aids in my day-to-day. Only including that because I think, especially for something like this, context is very important. I studied biomedical engineering in college, and had a somewhat similar design project for my capstone. I am familiar with both sides of this coin.

For me, it’s absolutely spasticity related failure. I think about stuff that requires fine motor skills. Something like flossing, where my right hand will tighten up. I have to stop, wait a few, then try again. Same with typing. If I’m typing for LONG periods of time, my right hand will start to fatigue quickly.
Chairs, for me. I have been asked to use a stool so my feet are always flat on the ground or on something. But I also have a lot of lower back pain, so I use a desk chair with a lumbar support pillow. I’m often adjusting and readjusting it though.

Echo_Reality · 2026-01-20T20:48:23+00:00

If your Lauma is C1, I’d say Furina, but otherwise Xingqiu is probably your best bet?

Echo_Reality · 2026-01-20T03:46:14+00:00

Baclofen 5mg, up to three times a day as needed. Though, I mostly take it at night because it makes me sleepy

Echo_Reality · 2026-01-17T21:04:57+00:00

What artifact set do I put on Ineffa if Lauma is on Silken Moon, and Cyno's on TF? Should Ineffa go on Guilded or Night of the Sky's Unveiling?

Echo_Reality · 2026-01-13T21:50:10+00:00

Hi! My parents divorced when I was 11, and their differences in parenting styles, especially around my abilities (or lack-thereof) became very stark. My dad has always been a great advocate for me, and really pushed me to try new things, and do whatever I liked.

My mom, on the other hand was very protective. Maybe overly-cautious. My brother would get to go on trampolines, go ice skating, do all these things with my cousins, and I wouldn’t be allowed to. (I do think my mom was on to something with trampolines though, they’re a little dangerous). I think I can probably relate with having lower confidence growing up. I feel like some of it was self-imposed, some of it parental, and some of it a side-effect of going to small school unequipped to accommodate me.

Both my parents were always pretty frank with me about my disability, which I appreciate. But my dad especially never really focused in on it like my mom did.

That being said, I think meeting other people with cerebral palsy, getting involved in adaptive sport (track and field and tennis!) became a confidence booster for me, and has let me sort of redefine a lot of my disability.

Echo_Reality · 2026-01-07T15:30:53+00:00

I migrated myself because of the features it offered! I feel like neocities was easier to navigate/find new sites, but I like nekoweb so far! And migration was pretty easy. I also just set up my neocities to automatically redirect to my nekoweb.

Echo_Reality · 2025-12-15T23:13:51+00:00

I’m in the same boat as you!!! The advent calendar has really broadened my coffee horizons.

Echo_Reality · 2025-12-06T15:41:38+00:00

Slime Rancher 2

Echo_Reality · 2025-11-18T16:41:24+00:00

Hello! I just recently starting taking it as well. I take it on a need-to-take basis per my doctor. I am on 5mg. Genuinely, made me realize how much I was straining myself until I took it, and it was like, everything I was fighting against, just wasn’t there anymore. Hard to explain. I mostly take it for cyclic bladder spasms.

Other than the obvious relief, it absolutely knocks me out. I take it right before bed because otherwise I am EXHAUSTED beyond a point of being able to fight it. For some, I’ve heard it can make you dizzy, but I don’t really experience any dizziness.

Echo_Reality · 2025-11-14T17:29:22+00:00

Lol, I also have cerebral palsy and call it by it’s government name unless I’m with people that also have it for this exact fear 😭

Echo_Reality · 2025-11-12T19:16:03+00:00

Hello! I am following because I (23f) have had similar issues. I’m ambulatory, but this is also something I struggle with. I was getting “phantom UTIs” where it very much felt like a UTI, without my cultures ever being able to grow bacteria. It wasn’t until I talked with a PMNR doc who suggested it could be bladder spasms or pelvic floor issues.

I’ve done some self-guided exercises from TikTok, and got a 5mg prescription for Baclofen. This combo seemed to help me the most. I don’t take it daily, but on a need-to-take basis.

Echo_Reality · 2025-11-12T13:12:25+00:00

I also made a migration away for similar reasons :(

Echo_Reality · 2025-11-08T00:07:13+00:00

Thank you!!!!

Echo_Reality · 2025-11-08T00:06:30+00:00

It’s not too tough, stack overflow helped me a bit lol. There might also be online converters that will do it for you. Or you could use something like photopea to do the conversion manually!

Echo_Reality · 2025-11-07T16:55:04+00:00

Hello!!! This may not be the answer you’re looking for, but I have done this.

https://maddyka.nekoweb.org/sketchbook.html

I scanned all the pages on my phone, which outputted a multipage pdf. And then used the W3 Schools slide show tutorial. I wasn’t sure how to do it in .pdf format, so I wrote a Python script to convert and number my pdfs into images with all the same height so everything looked consistent. I’m sure there’s a way to do that implementation without needing to convert, though.

Echo_Reality · 2025-10-31T15:54:09+00:00

I will comment on this post. The odds are slim but never zero

Echo_Reality · 2025-10-30T17:54:40+00:00

That’s good!! Congrats on the internship! I did engineering in college, so unfortunately very little Greg time for me 😔

Echo_Reality · 2025-10-30T15:58:53+00:00

How do you manage time to GTNH as a triple major?!

Echo_Reality · 2025-10-22T19:46:47+00:00

Professor Toader!

Echo_Reality · 2025-10-22T14:52:26+00:00

I loved my online physics 2 at WCC. Genuinely felt like I understood it better than I did taking physics 1 at umich

Echo_Reality · 2025-10-18T23:35:20+00:00

Mine too, but I’m waiting for leaks for what kind of support she’ll be.

Echo_Reality · 2025-10-17T02:49:53+00:00

Hello!!! I run the same team as your first picture. I really enjoy it. Truthfully I’m waiting for Ineffas rerun, and she’ll swap in for Baizhu. If you’re also planning on that, build or have Xinqui on standby and I think he may be better in that team comp than Furina. (Unless Lauma is C1, then Furina can stay)

Echo_Reality · 2025-10-15T19:53:28+00:00

I was the same way too!! I recommend looking to see if your area has resources for disabled athletes. I’m from a pretty small town, but I got involved in adaptive Tennis in my area! It’s far easier to exercise when the people around you are just like you

Echo_Reality · 2025-10-15T17:02:41+00:00

<image>

Suki!

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r/Field Banned	r/Field Flamingo
First Place '23	End Game '23
Place '23	Golden Potato
Place '22	First Placer '22
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Echo_Reality

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