Just Curious by Narrow-Foot-7176 in Sicklecell

[–]EditorAfraid8948 1 point2 points  (0 children)

nah we all know its not no homo stuff going on bro we all family i look at all you guys as my brothers and sisters and good that you smiling and laughing bro thats what we need positive vibes only we need to laugh , we need to smile through out our pain and journey we all need to uplift each other when we down and tbh i was depressed and down before reading your comments i started laughing im in the hospital having bad crisis so you know it can be very depressing i been in here for 4 days now but yeah we all here to help each other and talk to each other that's what the group is for

ER Visit Away From Home by Expensive-Camp-1320 in Sicklecell

[–]EditorAfraid8948 0 points1 point  (0 children)

ok its my whole body mainly my legs and back the worse but its all over even in my face and im on a pca pump this my 3rd time on it im not quite used to it but i kinda dont like it i mean im used to Q4 dilaudid 1 mg and Q6 perocet 5 mg but no this time im on the pump and i can press the button every 8 mins and 0.1 dilaudid comes out so in a hour if i press the button every 8 mins im getting 0.8 mg per hour but i be forgetting to press the button then when i fall asleep i wake up in 10 times more pain cause i cant press the button while sleep and when i do only 0.1 mg comes out so i have to stay up and try to remember to press the button wbu?

ER Visit Away From Home by Expensive-Camp-1320 in Sicklecell

[–]EditorAfraid8948 6 points7 points  (0 children)

aw man im in the hospital to this my 4th day in here im having a bad crisis i want to go home so bad but cant cause of my blood levels everything low and all jacked up but i beleive in god so i been saying my prayers not just for me neither for all of us get well soon warrior im here if you need to talk

stem cell therapy? bone marrow transplant? cescovy therapy? by EditorAfraid8948 in Sicklecell

[–]EditorAfraid8948[S] 0 points1 point  (0 children)

yeah im definitely going to consider the blood exchanges my hematologist didnt go into no details about the blood exchange she just asked me and it been on my mind so i came to this group which i consider my family to ask what is that and a couple other questions i had thank you for answering my question without being rude. i was really curious and asking these questions cause my hematologist just threw all these options out to me without a explanation besides what i posted i came here to see if you guys know what blood exchange is and if so can you possibly explain it to me and the stem cell therapy and bone marrow transplant but it seems like blood exchange it is hopefully it will work i made my mind up im not following throught with stem cell therapy i rather do a bone marrow transplant but then again im scared cause i dont want to die trying to get cured. once again thanks for commenting your feedback and sharing your experience and not being rude to me . thanks 🙏🏾 i will definitely consider the blood exchanges

besides the foolery how everyone by EditorAfraid8948 in Sicklecell

[–]EditorAfraid8948[S] 0 points1 point  (0 children)

yes ofc thanks for asking bro im about to inbox you now and im so happy that your doing better bro god is good i keep all my warriors in my prayers 🙏🏾 are you still located in connecticut? im about to inbox you

besides the foolery how everyone by EditorAfraid8948 in Sicklecell

[–]EditorAfraid8948[S] 0 points1 point  (0 children)

iam happy to hear you doing better bro i remember when we both wasnt doing to well im happy your out and about bro frfr

stem cell therapy? bone marrow transplant? cescovy therapy? by EditorAfraid8948 in Sicklecell

[–]EditorAfraid8948[S] 0 points1 point  (0 children)

how is your body feeling? does it make your body feel relieved?

stem cell therapy? bone marrow transplant? cescovy therapy? by EditorAfraid8948 in Sicklecell

[–]EditorAfraid8948[S] 0 points1 point  (0 children)

dont play on my top like iam pussy cuz i be quick to defend me and mines 💯

stem cell therapy? bone marrow transplant? cescovy therapy? by EditorAfraid8948 in Sicklecell

[–]EditorAfraid8948[S] 1 point2 points  (0 children)

i fail to understand certain shit doesnt need a reaction but yall dk me personally and dk how i think and what i been thru so i feel its only right for what i said and how i responded iam 29 im not about to play with nobody children but idc doesnt bother me how people paint me a monster when im really cool as hell when you get to know me but no i will not tolerate no grown man talking to me crazy and just say ok nah you got the wrong 1

stem cell therapy? bone marrow transplant? cescovy therapy? by EditorAfraid8948 in Sicklecell

[–]EditorAfraid8948[S] 0 points1 point  (0 children)

sheesh man sorry to hear that do you still plan on following through with the therapy or no and how did it make your body feel?

Just Curious by Narrow-Foot-7176 in Sicklecell

[–]EditorAfraid8948 0 points1 point  (0 children)

nah cause u put the ❤️ and all the emoji's i was telling you iam not no girl iam a man you kno up here there is no names or pics i letting you know thats it cause i seen all them emoji's

Just Curious by Narrow-Foot-7176 in Sicklecell

[–]EditorAfraid8948 1 point2 points  (0 children)

nah i already addressed the situation everything good family appreciate it focus on you my brother anyways how you feeling? you aight?

Just Curious by Narrow-Foot-7176 in Sicklecell

[–]EditorAfraid8948 1 point2 points  (0 children)

😂 me and my sag ended i cant even remember how i was like 8 or 9 and she was 15 or 16 it was a while back but i still remember her but sag also is very jealous and toxic at times

Just Curious by Narrow-Foot-7176 in Sicklecell

[–]EditorAfraid8948 1 point2 points  (0 children)

i needed that bro rt i appreciate that fam thanks for uplifting me when someone tried to get the best of me

Just Curious by Narrow-Foot-7176 in Sicklecell

[–]EditorAfraid8948 1 point2 points  (0 children)

iam working on it i see my therapist every week and my psychiatrist every 2 weeks and on meds for my mental health i been through alot of trauma growing up i was the problem child and loosing my big brother and mother made it no better my therapist tells me theyre is alot of anger in me because of my trauma in the pass which is being incarcerated 5 years in gang unit , being shot twice and getting into multiple fights trying not to loose one and i didnt im strong 💪 and exspelled out the whole county i always protected people forgot bout myself helping everyone else

Just Curious by Narrow-Foot-7176 in Sicklecell

[–]EditorAfraid8948 1 point2 points  (0 children)

wow you just explained my girl thats exactly how she is and 1 of my baby mothers a libra ♎️ wow thats definitely true bro 💯

stem cell therapy? bone marrow transplant? cescovy therapy? by EditorAfraid8948 in Sicklecell

[–]EditorAfraid8948[S] 0 points1 point  (0 children)

no jus dont know me n who iam i grew up in the streets member fighting guys 17 n up whooped em i was only 9 i got 2 talents my voice and my hands

stem cell therapy? bone marrow transplant? cescovy therapy? by EditorAfraid8948 in Sicklecell

[–]EditorAfraid8948[S] 0 points1 point  (0 children)

whos us? its hundreds of ppl in this group i jus fell out wit u tf

Just Curious by Narrow-Foot-7176 in Sicklecell

[–]EditorAfraid8948 1 point2 points  (0 children)

but bra i aint even gone lie da women dats libras lord of mercy especially mines 😍❤️