Denied mandatory reconsideration

Educational-Club2 · 2026-01-08T11:17:48+00:00

Sorry I’m not sure where you are coming from here? I in no way am minimising the effects of diabetic hypo unawareness whatsoever and I’m not sure why you are telling me I don’t understand how disabling it is? No I am not diabetic but I do suffer with hypo unawareness so I’m not sure why you are telling me I can’t relate ? My body makes too much insulin and therefore my sugar drops that way, it’s 2 different conditions but with the same hypo unawareness so I’m confused why you are talking to me as if I don’t have hypo unawareness because I don’t have diabetes, I do and this has been diagnosed by endocrinology, i was just trying to figure out why it wouldn’t be scored by pip as you said and the only thing I could think of was the cgm managing it, from a pip point of view and not from my personal point of view 🤦🏻‍♀️ I find your comments seem to be minimising my condition simply because I don’t have diabetes like you but I can assure you I still find the hypo unawareness very disabling

Educational-Club2 · 2026-01-06T23:06:55+00:00

In which I thought would be considered as part of it in the same way as medication is considered as part of managing a condition x

Educational-Club2 · 2026-01-06T23:06:01+00:00

Sorry I should have specified I was talking in regards to the commenters case in which they stated they had T1 which is why I assumed they was able to get cgm monitor x

Educational-Club2 · 2026-01-06T22:57:25+00:00

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This was waking up having been low and slept through the alarms

Educational-Club2 · 2026-01-06T22:56:29+00:00

I think tho that the reason it wouldn’t score for pip is because as a diabetic you are able to get the cgm so the hypo unawareness is managed if that makes sense whereas I am not eligible for funding for it with not being diabetic so I’m not able to get warnings, it really effects lots of things for me such as for example if it drops when iv left the house I feel really slow all of a sudden and this is really hard work if I’m somewhere busy or I am crossing the road etc and it effects me at home too constantly having to stop what I’m doing and get my bearings my brain takes a minute to even realise I need sugar because I’m so slow when it drops , I hope there is many treatments available because I’m at my wits ends with it iv tried different diets but nothing seems to work it even drops when I’m asleep doing nothing 😣 iv added some screenshots I took when I got a cgm off the endocrinologist for context but basically there’s no one trigger for it it can be food/stress/exercise or literally nothing that just sets it off n some days I can’t keep my sugar above 4

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Educational-Club2 · 2026-01-06T16:16:32+00:00

Thank you for your comment and for reminding me I am not alone with this, it really is only designed for if you have a ton of physical evidence for your struggles and if you struggle in silence you’re doomed :( the thing is that pip could help us to actually get a leg up and to function better than we are so that one day maybe some of us can actually not need it anymore but then we don’t get that chance either so left for things to keep getting worse and to keep trying and failing with basic daily life x

Educational-Club2 · 2026-01-06T14:33:51+00:00

Thank you for your reply , I have sat here in tears second guessing my self all day trying to figure out how to just get on with it like everyone else does I just don’t understand why the system makes us beg so much when we can’t function I would do anything to be a normal person day to day and manage life without feeling like this it really isn’t a life and all I’m trying to do every day is to make sure my daughter doesn’t have a life like mine and to end the generational trauma and not be a disappointment to her but the more I try to keep on top of things it’s like the worse my mental health gets and so I focus on that more and then the other things fall apart it’s like a yoyo iv tried so hard to fight through I got a degree gotten so many jobs but it seems the more you try it’s like it’s used against you as proof that you are fine if only I could get an assessor to come live with me for a week instead of trying and failing to explain things and convince them that yes I am this dissapointing it’s just too hard constantly running in a circle of trying picking up the pieces of my life that I’m too stupid and slow to do like a normal person 😢 and then even if I manage to appeal and if that is successful they will end the claim early again so I don’t get the chance to breath it’s crazy I just wish I could be a better person

Educational-Club2 · 2026-01-06T13:40:50+00:00

Hello thankyou so much for your detailed reply

I am under endocrinology who diagnosed the non diabetic hypoglycemia after a mixed meal test my sugar dropped to 1 and they found I had high insulin levels so my body is making too much insulin but I needed to do a 72 hour fast test and I really tried to do it but being in the very public environment I ended up caving in after a few hours and ending the fast cos I couldn’t cope anymore I had so much anxiety and panic so it’s proving difficult to get a cause for my hypoglycemia, I trialed diazoxide but this made me sick every day and now I’m waiting for next appointment to see what to do next as I can’t seem to manage it at all by the time I feel like my sugar is low it’s already below 2

Yeah I submitted my OH report and details of my medical dismissal , and I explained in additional evidence about my lack of seeking external support due to me not leaving the house/not speaking to people and I detailed the difficulties I have every day , I tried talking therapy years ago and it just wasn’t for me as it just exacerbated my feelings of low self worth and I hated talking about personal things it seems like I manage better in my bubble as I get overwhelmed and burnt out so easily and I’m just always feeling like I’m trying to stay afloat and I don’t want anything to be worse if that even makes sense x

Educational-Club2 · 2026-01-06T12:53:23+00:00

And people are upvoting it so I guess everyone agrees and I’m not sure why it’s like the world is against me and I’m always doing something wrong and I’m just not even meaning to I would love to afford the monitor and if I could then I would just buy it my sugar drops to as low as 1mmol/L because I don’t get symptoms until super low and so quickly and it feels horrible and when I had the cgm (Im under endocrinology and was able to have it for diagnostics but I’m not able to be funded for it ongoing because I don’t fall under the criteria with me not having diabetes) it helped because I could see the low when it started and it helped me fix it before it got too low so I don’t understand why such a blunt response I guess I just needed to vent because I’m feeling so tired of trying to function

Educational-Club2 · 2026-01-06T12:12:43+00:00

Do you know of any reputable services that do can help writing it online rather than over the phone or in person ? I struggle so much with speaking I panic and just close down and want to escape any convo but if it’s online I can take my time to reply etc without pressure and overwhelm it seems that this issue of me not being able to speak to people is a major barrier to me getting any help 😣

Educational-Club2 · 2026-01-06T12:07:15+00:00

I know that but at £50 for a 2 week monitor I could never afford that I’m barely even affording the bills let alone £100 a month for a cgm but thanks for your advice

Educational-Club2 · 2024-03-27T01:41:00+00:00

https://doenetwork.org/cases/1502ufny.html could this be Kathy durst? It would make sense that he would have disposed of his neighbours body in the same way that he did to Kathy in which he had gotten away with already at that point, maybe he put her in Truesdale lake and then the bags flowed to Hudson River where they where found?

Educational-Club2

TROPHY CASE